RE: https://mas.to/@skeletor/115650781874784413

Reminder to self: you may feel like you've plateau'd, and yes, it's exhausting to be exhausted and tired all the time, but remember: two years ago you could barely walk. You're a expert survivor.

#csfleak #autoimmune #autonomicdysfunction #eds

"What in the devil is going on," I ask myself as I stumble for the couch, holding my throbbing hands upright like oversized lobster-claw oven mitts.

"I've done next to nothing today and I'm completely exhausted-- oh," I check my phone, "It's Barry-effing-metric again."

I'm a weather witch in the worst way.

#chronicillness #sjogrens #autonomicdysfunction #weatherwitch #weather

For anyone wondering what #PoTS is (which I keep referring to), it's a type of #AutonomicDysfunction, and affects my heart rate, digestion, temperature control, blood flow to the brain - causing a wide range of symptoms that worsen when upright, digesting, talking, or too hot!

Follow @penny's and my #3Sisters #garden at @3SistersEnglishGarden account.

We toot post our progress.

We are trying different methods of gardening so I can physically help despite my #ParkinsonsPlus #mobility, #AutonomicDysfunction and other issues that have hindered my gardening in the most recent years.

#Parkinsons

Latest post:
https://oldfriends.live/@3SistersEnglishGarden/110546436130859491

Paul's 3Sisters English Garden (@[email protected])

Attached: 4 images The corn is growing and the beans are in. In little over a week, we will plant the #pumpkins, #squash, #melons, #cucumbers, #watermelon & #zucchini The #SweetPotato are taking off in their bags. #3Sisters #Gardening

oldfriends.live

@SecularJeffrey

I never had a problem with #allergies. I even once grew poison ivy inside by accident because I thought it was a beautiful vining plant. It almost killed my wife of 34 years, then girlfriend, when she had a reaction to the vine that was growing in my kitchen during the date where I cooked for her the first time.

As my #ParkinsonsPlus #AutonomicDysfunction gets worse, I've developed severe allergies to #pollen and so many other things. My brain just can't mitigate the stimuli.

1/2 A very common new diagnosis with long covid is postural orthostatic tachycardia syndrome (POTS). We may be seeing much more of POTS in the future. It can be mild or severe.

The 1st step in feeling better is knowing what the problem is. There are coping strategies.

This is a simple/easy test you can do at home, w 1 or 2 other people there, then discuss w your Dr. It is well worth knowing what to look for.

More details: https://onlinelibrary.wiley.com/doi/epdf/10.1002/pmrj.12894

#POTS #dysautonomia #AutonomicDysfunction

I love my keyring cards. It's like having an easy-read, personalised book that summarizes my disability and needs - so I can quickly, effectively, and with minimum energy, let people know the essentials in a way that makes them smile, understand and accept.
See the full range at
https://stickmancommunications.co.uk/product-category/keyring-cards-product-type/
#Hypermobility #EDS #Pain #AutonomicDysfunction #Fatigue #DisabilityAwareness #DisabilityAcceptance #MentalHealth #
Keyring Cards Archives - Stickman Communications

Keyring cards which enable individuals to communicate about their needs and conditions quickly and effectively - with minimal stress.

Stickman Communications
ok mastodon: point me at the corner of here talking about the overlaps around #AutisticBurnout #POTS #eds #mcas #ADHD #ActuallyAustistic #cptsd #somatics and #autonomicDysfunction
Ooof, things are tough going at the moment! #AutonomicDysfunction #PoTS are quite messed up at the moment so talking = increased symptoms, and talking while on my feet = instant disabling symptoms, literally after one or two words. As a chatty person it takes HUGE concentration not to just reply to people. And to take all precautions before I do talk (sit or lie, feet up, core activated, fidgetting, somewhere cool, not having just eaten) as that makes the occasional conversation possible.