One month to go

A great opportunity to raise awareness and understanding. Also the month (and the associated awareness day/week) can be used for lobbying, fundraising, and other forms of activism.

#PwME #MyalgicEncephalomyelitis #MEcfs #CFS
@mecfs

Expert perspectives on Myalgic encephalomyelitis/chronic fatigue syndrome – Insights from the 3rd International Conference of the Charité Fatigue Center

https://www.sciencedirect.com/science/article/pii/S1568997226000571

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

ME Research UK:

A team of researchers have published a study investigating lived experiences of people with ME/CFS using data from posts made on social media.

Read more: https://tinyurl.com/mj2p8c24

#mecfs #cfs #pwme #severeme #severemecfs @mecfs

ME Research UK:

A recent study found differences in the extent of immune changes in ME/CFS following SARS-CoV-2 infection vs. idiopathic ME/CFS. Do different viral triggers produce variations in underlying pathophysiology?

Read more: https://tinyurl.com/543kcekm

#mecfs #pwme #cfs @mecfs
1/

BBC Wales covers ME/CFS with text and radio pieces

https://www.bbc.com/news/articles/cpv8e71p3evo

https://www.youtube.com/watch?v=r1S2NMf8-uY

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #SevereME #SevereMECFS @mecfs

The UK Department of Health and Social Care now expect that work will begin in April 2027 to start the process of commissioning a service for those with very severe ME/CFS

https://ugc.production.linktr.ee/8dd80874-c0a0-4b5b-8694-c68c15541ef0_ThereForME-Briefing-Delays-to-establishing-NHS-care-for-very-severe-ME-March-2026.pdf

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #SevereME @mecfs

Comprendre l’EM est une revue en ligne en 3 parties.

1 - Un site de référence

Des informations fiables, basées sur les consensus scientifiques et sur l’expérience des patients. Des savoirs accessibles, didactiques, faciles à lire et joliment illustrés.

2 - Des documents à emporter, en différents formats accessibles

Sur cette page, vous trouvez des documents pour le diagnostic et le quotidien. Vous pouvez choisir dans quel format les télécharger (PDF, texte), fond blanc ou fond gris, et imprimer les documents ou les remplir sur votre ordinateur.

#paEM #pwME #MECFS #EMSFC

"NIH/NIAID Highlight Post-Infectious Illness": Bateman Horne Center blog post

https://batemanhornecenter.org/nih_niaid_highlight_post-infectious_illness/

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid #PwME #ME #MyalgicE @mecfs @longcovid

A UK man with ME is fundraising for SequenceME, a deeper look at the DecodeME samples (whole-genome sequencing study).

https://www.justgiving.com/page/gregsandersmeresearch

Screenshot is extract from his story where he argues there has been a lack of investment in research

#MEcfs #PwME #ME #MyalgicE @mecfs