RE: https://mastodon.ie/@IrishMECFSAssociation/116431267742450459

Hope to see a few of you at this 👋.

#MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @longcovid @fedigroups.social

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Thursday, May 7

Hopefully we’ll see some of you there
https://irishmecfs.org/blog/thursday-may-7-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-association

Carers/parents/similar welcome.

#MEcfs #PwME @mecfs #LongCovid @longcovid

The Irish ME Trust organised a webinar on disability and carer payments in Ireland.

Recording: https://youtu.be/y0ST_NreH8I

Slides: https://1drv.ms/p/c/94454629db95df81/IQAr_iArcGVGRasX28RXs0neAcuhHj90wY4Sn_fXmQrbPvU?e=Ea5hLu

My notes (file also includes all slides)
https://1drv.ms/b/c/94454629db95df81/IQC6O8ZIzpiaQ6a-OSgEIJmCAYuOUAN7dDfsxhjzou5QFc0?e=ktErgx

Please let me know of any typos.

#MEcfs #PwME #ME #MyalgicE
@mecfs

One month to go to Blue Sunday.

We would love people’s support. We have a specific fundraising page for the event here
https://www.idonate.ie/fundraiser/BlueSunday2026fortheIrishMECFSAssociation or you can set up your own page at https://www.idonate.ie/

Lots of other worthy ME/CFS charities are taking part, see here:
https://the-slow-lane.com/donation-pages

#MEcfs #PwME #ME #MyalgicE
@mecfs

State of Illinois declares May 12, 2026 as ME Awareness Day.

Motions were passed in both the House and Senate.

https://legiscan.com/IL/text/HR0796/id/3416097/Illinois-2025-HR0796-Introduced.html

https://legiscan.com/IL/text/SR0667/id/3389981/Illinois-2025-SR0667-Introduced.html

#MEcfs #PwME #ME #MyalgicE
@mecfs

1/

Validation of the Wood Mental Fatigue Inventory in adolescents with myalgic encephalomyelitis/chronic fatigue syndrome

https://www.sciencedirect.com/science/article/pii/S2666354626000554

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

Pleased to be able to clear out these ME files over the last year or so (plus 35 more last year). 😀

Running the @IrishMECFSAssociation for 30 years, I built up a lot of info e.g. to help me deal with enquiries, but need it less now

Longer description in the next post

#MEcfs #PwME #ME #MyalgicE
@mecfs

1/

A well-written account of someone with #SevereME and some of the issues she has to deal with. #pwME #MyalgicEncephalomyelitis

https://virology.ws/2026/01/27/trial-by-error-an-essay-on-living-with-severe-me/

RE: https://mastodon.ie/@IrishMECFSAssociation/116054466731120376

One month to go to the start of this 5-venue series of events. Hope to see some of you there. #MEcfs #PwME @mecfs