10/
"’The substantial challenges faced by individuals with ME/CFS have been suggested to influence suicide risk, and our analysis supports this conclusion,’ Sirotiak and Amro write.”

#mecfs #cfs #pwme @mecfs

9/

“To illustrate the immense impact the disease can have on someone's life, Sirotiak and Amro end their review reflecting on one father's words:

"Her father … was quoted saying his daughter lived with 'intractable and unrelenting pain' and, though he certainly was not happy to see his only child die, 'There are things in this world worse than death.'"
#mecfs #pwme
@mecfs

2/
Dr Bansal is not that well-known in Ireland. Here is another comment on him from someone in the UK:

“Oh wow! He is the Dr who worked locally to me and helped all the parents and kids with ME (private) but a fantastic Dr and fully understood ME!”

#MEcfs #PwME @mecfs

6/

“Memorial narratives offer unique insight into lived experiences not captured in clinical records or epidemiological statistics, a gap that is particularly significant for a condition that has historically been poorly understood.”
#MyalgicEncephalomyelitis #MyalgicE #PwME
#mecfs
@mecfs

4/

“On the theme of personal burden and quality of life, another stated, ““She said, “My life has become an inhumane existence.” She left a husband and two teenaged children whom she referred to when she said, “I believe they have lost their mother to ME.””

@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing

3/
“For instance, on the theme of systemic neglect and institutional failure, memorials described a lack of research investment, and failures of healthcare, insurance, and disability systems to acknowledge ME/CFS. One stated, “[She] had found some help at the only hospital in [county] that treats CFIDS/ME but was denied funding by her local health authority for any further treatment and her health deteriorated dramatically.”

#mecfs #pwme @mecfs

2/
From News Release 22-Apr-2026

"Memorials of people who died with extreme fatigue condition [ME/CFS] show shared themes: New analysis of the unusual dataset highlights similar systemic, clinical, social, & personal experiences"

https://www.eurekalert.org/news-releases/1124268

#MEcfs #PwME
@mecfs