Comprendre l’EM est une revue en ligne en 3 parties.

1 - Un site de référence

Des informations fiables, basées sur les consensus scientifiques et sur l’expérience des patients. Des savoirs accessibles, didactiques, faciles à lire et joliment illustrés.

2 - Des documents à emporter, en différents formats accessibles

Sur cette page, vous trouvez des documents pour le diagnostic et le quotidien. Vous pouvez choisir dans quel format les télécharger (PDF, texte), fond blanc ou fond gris, et imprimer les documents ou les remplir sur votre ordinateur.

#paEM #pwME #MECFS #EMSFC

"NIH/NIAID Highlight Post-Infectious Illness": Bateman Horne Center blog post

https://batemanhornecenter.org/nih_niaid_highlight_post-infectious_illness/

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid #PwME #ME #MyalgicE @mecfs @longcovid

A UK man with ME is fundraising for SequenceME, a deeper look at the DecodeME samples (whole-genome sequencing study).

https://www.justgiving.com/page/gregsandersmeresearch

Screenshot is extract from his story where he argues there has been a lack of investment in research

#MEcfs #PwME #ME #MyalgicE @mecfs

A teenager with ME reflects on relapses that are unfortunately part of ME

Old but timeless

I came across it when doing a clear out. From the magazine of the Tymes Trust

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis @mecfs

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Mar. 23 - 29:

Topics:
News, advocacy and articles
Coming events
Research news and commentary
Published research

https://www.s4me.info/threads/news-in-brief-march-2026.49238/#post-683994

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC

UK research

Aberrant recruitment of the striatum and insula are associated with recalling and suppressing fatigue- and anger-related memories in people with chronic fatigue syndrome/myalgic encephalomyelitis

I don't know what or who will solve ME/CFS but I'm pretty sure it won't be Trudie Chalder & this type of research

Free:
https://academic.oup.com/braincomms/advance-article/doi/10.1093/braincomms/fcag101/8541763

#MEcfs #PwME @mecfs

UK research funded by ME Association

Testing a Personalised Dysautonomia Management Protocol in Patients with Orthostatic Intolerance and a Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or Long COVID

Free:
https://www.mdpi.com/2077-0383/15/7/2510

#MEcfs #LongCovid #PwME #ME #MyalgicE #POTS @mecfs @longcovid @pots

(Australia)

Researchers at Deakin University are testing a potential new treatment for ME/CFS and are looking for participants to join their clinical trial

COMPLETE THE EXPRESSION OF INTEREST
https://redcap.deakin.edu.au/surveys/?s=4TC9WCPFXETWHMN7

#MEcfs #PwME @mecfs