📢Die Betroffenen brauchen dringend Allys, die für sie demonstrieren, weil viele von ihnen selbst zu krank dafür sind

📢 Sa., 9.5., 15 Uhr Sendlinger Tor

▶️ ME/CFS ist eine schwere postvirale, neuroimmunologische Krankheit, die zu einem hohen Grad an Behinderung führt.⬇️

#MECFS #LongCovid #LiegendDemo #MillionsMissing #MyalgischeEnzephalomyelitis #ChronischeErkrankungen #InvisibleIllness #Lemonchallengemecfs #KraftSocken

2/

So when something feels harder to name or hold, it’s often not about the reality of the symptoms, but about the way we see them. #chronicillnesssupport #invisibleillness #advocacy #spooniesupport #occupationaltherapy

Tom: Doesn’t reference ME/CFS or Long Covid but does mention Fibromyalgia

#Fibromyalgia

From @onelife_livedwell on IG: Let’s talk about the disease prestige hierarchy, or the way some diagnoses are consistently seen as more legitimate and easier to recognize than others. Research shows this pattern holds over time, shaping what gets attention, funding, and clinical confidence. Layered into it is disability bias, the quiet pull to take conditions that aren’t easily fixed less seriously.

#chronicillness #invisibleillness #spooniesupport
1/

New:
"How visible and hidden disabilities are treated differently in clinical practice"

From:
Non-visible disability in the medical curriculum: what medicine overlooks, patients inherit

https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2026.1701393/full

#Hiddendisabilities #invisibleillness #Invisibledisability #hiddenillness #chronicillness #MEcfs #PwME #ME #MyalgicE
@mecfs

"Psychologizing kids with asthma, in the past and today: Attributing physical illness to a neurotic personality isn't new." by K. Johnstone (Apr 18, 2026)

https://mecfs.substack.com/p/psychologizing-kids-with-asthma-in

#chronicillness #invisibleillness

2/
From:
"How medical training promotes medical gaslighting" by K. Johnstone

https://mecfs.substack.com/p/how-medical-training-promotes-medical

#hiddenillness #invisibleillness
@longcovid @mecfs

Work is going to be very difficult tonight. It's only 5 hours but it'll feel like a full 8 with how bad my fatigue is today. Wish I could sit down at work when not helping customers. #pots #invisibleillness
“I’m not lazy. I’m managing a body that doesn’t cooperate.”
That’s the part people miss with chronic pain and invisible illness. Rest is often survival, not laziness.
What’s something people assume about you that couldn’t be more wrong?
#ChronicPain #ChronicIllness #InvisibleIllness #disability