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From:
"How medical training promotes medical gaslighting" by K. Johnstone

https://mecfs.substack.com/p/how-medical-training-promotes-medical

#hiddenillness #invisibleillness
@longcovid @mecfs

Work is going to be very difficult tonight. It's only 5 hours but it'll feel like a full 8 with how bad my fatigue is today. Wish I could sit down at work when not helping customers. #pots #invisibleillness
“I’m not lazy. I’m managing a body that doesn’t cooperate.”
That’s the part people miss with chronic pain and invisible illness. Rest is often survival, not laziness.
What’s something people assume about you that couldn’t be more wrong?
#ChronicPain #ChronicIllness #InvisibleIllness #disability

That’s what people say when they’ve never lived it.

What you don’t see:

The nights without sleep

The pain that doesn’t switch off

The energy it takes just to look “normal”

The breakdowns that happen in silence

You’re seeing 5% of the reality.

The other 95% ?

It’s hidden — because no one makes space for it.

Before you judge someone’s pain… understand that survival often looks like “fine.”

#InvisibleIllness #ChronicPain #Disability #InjuredWorkers

Some days, getting out of bed is the biggest thing I accomplish.

I’m trying to learn that it still counts.

For those of us living with chronic pain, fatigue, or invisible illness, surviving the day can take more strength than people realize.

Do you celebrate those days or beat yourself up for them? 😴

#ChronicPain #ChronicIllness #InvisibleIllness #Spoonie #Fatigue #Disability #selfcompassion

"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful

#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

I wanted to go.
My body said no.
Now I’m home fighting the guilt on top of the pain.

If you deal with chronic pain, do you push through… or stay home?

#ChronicPain #ChronicIllness #InvisibleIllness #Spoonie #SpoonieLife #ChronicPainAwareness #DisabilityAwareness

This YouTube video closes with a very catchy saying that surprisingly I've never heard said before: "Don't judge a disability by its visibility."

This is a great educational point for people with invisible illnesses like me to get behind and leverage!

https://www.youtube.com/watch?v=XoKmJA-onqg

#DIsability #InvisibleIllness

What is PoTS?

YouTube