datum (n=1)RE: https://mastodon.social/@patientled/116524073747246614
Folks with Long COVID in or near NY, NY - maybe this is of interest?
Science for ME ForumOur latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Apr. 27 - May 3:
Topics:
News, advocacy, articles
Coming events
Research news & commentary
Published research
https://www.s4me.info/threads/news-in-brief-april-2026.49767/#post-690568
Tom KindlonFrom the US
Interdisciplinary Pediatric Long-COVID Care: A Descriptive Study of Interventions and Health-Related Quality of Life
https://academic.oup.com/ofid/article/13/4/ofag155/8651135
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#LongCovidKids
The case for routine patient review in long COVID research
https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(26)00134-9/abstract
Screenshot from latest Science for ME weekly update
#LongCovid @longcovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
AhimsaA short video (3 minutes) on actions listed in the 2026 Millions Missing toolkit, starting with low energy items.
Short description: Animated cat, wearing a purple overcoat and black bowler hat, speaks directly to camera.
https://www.youtube.com/watch?v=cPb9wOkRxMM
Note: Video is from Instagram, can't tag MEActNet here (but you could ask #MEAction to get a Fediverse account😉)
Direct link to toolkit:
#MillionsMissing #MEcfs #Pwme #LongCovid #PwLC #Medicaid #FrailAndFurious
Join us this #MillionsMissing Thanks to @Corywysz 4 video! Toolkit at LINK IN BIO. #FrailAndFurious
RE: https://disabled.social/@ahimsa_pdx/116495749131742719
Update from #MEAction:
"How to Participate in #MillionsMissing 2026"
https://www.meaction.net/post/your-story-can-change-everything
Some actions listed:
- Share your story on social media from May 9 to 16
- Submit your story to #MEAction's Story Bank
- Help protect Medicaid by signing the letter sent to HHS Director
- Register to join the event in Washington D.C. on May 12
#MEcfs #PwME #LongCovid #PwLC #ChronicIllness #Disability #Medicaid #FrailAndFurious
Study from the UK 🇬🇧
Impaired peripheral oxygen delivery during submaximal exercise in adults with long COVID
https://physoc.onlinelibrary.wiley.com/doi/10.14814/phy2.70873
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
May 12 is coming soon! #MEAction has this request:
"Telling your story for Millions Missing this year is so important!
There are MANY ways to tell your story & it all helps! Be yourself & know that if sharing your story brings up big feelings, you are not alone!"
Tips for how to tell your story:
https://www.meaction.net/millionsmissing-storytelling
This has a link to the Millions Missing toolkit and two videos.
#MEcfs #PwME #LongCovid #PwLC #MillionsMissing #FrailAndFurious #ChronicIllness #Medicaid
From Canada 🇨🇦
Distinct plasma proteome signature at 3 months post-COVID-19 infection irrespective of post-COVID condition
https://www.nature.com/articles/s41598-026-46180-y
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
A group of patient representatives, physicians and researchers from (mainly) Belgium and France have published a statement on how psychologizing Long COVID can cause harm.
It includes this image.
Commentary: Internal medicine at the crossroads of long COVID diagnosis and management
https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2026.1798119/full
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
