A tragic cautionary tale that was posted on my Facebook page. 😢

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

Open Medicine Foundation: A new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count

https://www.omf.ngo/introducing-ctn-lite/

https://docs.google.com/forms/d/e/1FAIpQLSeTmvjcIAM9xWEIvJXuBx_L99wmBHqwYuJ2xOwjQOtGkZl8Zw/viewform

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

RE: https://mastodon.ie/@IrishMECFSAssociation/116431267742450459

Hope to see a few of you at this 👋.

#MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @longcovid @fedigroups.social

I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

(US)
Tell Congress: Fund ME/CFS Research Now

Deadline is April 15 I believe

https://solvecfs.quorum.us/campaign/157943/

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

"Professor Chalder Downgrades Definition of 'Recovery'" by David Tuller

https://www.sciencedirect.com/science/article/pii/S0965229926000506

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Sorry to hear that Former Never Mind The Buzzcocks host Mark Lamarr has chronic fatigue syndrome

"Mark Lamarr banned from driving despite claiming exceptional hardship"

https://www.corklive.ie/news/arts---entertainment/2046197/mark-lamarr-banned-from-driving-despite-claiming-exceptional-hardship.html

#MEcfs #CFS #ChronicFatigueSyndrome @mecfs

UK NHS England releases e-learning module “Supporting people with severe ME/CFS”

https://learninghub.nhs.uk/Resource/79376/Item

Screenshot from latest Science for ME weekly update

#SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs