RE: https://toot.wales/@alexisbushnell/116333926236639109

So I saw my GP to find out why rheumatology rejected me.

Turns out it's because they'd already rejected me before... They ignored the new information we sent in and my GPs comments.
GP is not happy.

He is re-referring me again.
He said to speak to the long COVID clinic physio on Friday and ask if he can write something to support the referral.
He's also going to speak to the pain practitioner I saw and see if she can get me in via the pain clinic.

1/2

#ChronicIllness #NHS

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Today, well, its been one.

Struggled to get up first thing.

Sunday, so chill day, no fucks given.

Oh, outing for ice cream.

Body says no pretty quickly.

Keep walking I say.

More spasms.

Harder.

Friend says enough.

I say no.

Keep going, eat ice cream.

Pains get worse.

20 minutes to walk a 2 minute walk.

Ouch, I can't do this.

Get fish and chips for the child.

Car and home.

Distractions, spasms, pain, too much, need home.

Home, safe, food, no pressure.

Spasms worse, floor is friend.

Nap for a while. Child has eaten my food (its cool).

Stare at screen.

Wonder how many other people have to plan energy and toilet trips.

Wonder if I can realistically manage a 5 mile walk.

Wonders just how small her world is now.

Wonders about.......yeah, big thoughts for a body that is insisting on limiting it.

I am so done with all this chronic illness thing.

I'll be fine in the morning.

For now, I am thinking hot water bottle, tea, ignoring the outside world. I have a safe cosy bubble right now.

#Disabled #ChronicIllness #FND