🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay 
take care people and good luck 
Hej, jeśli ktoś z Was ma możliwość, pomożecie młodej osobie z wieloma chorobami przewlekłymi?
Znam ją z Instagrama, jest cudowna, ale ma wyjątkowo ciężko ❤️🩹
Napisała dzisiaj, że nie chce być statystyką. Nie będziesz, Ash. Nie będziesz szła sama, nigdy.
#mutualaid #autisticsolidarity #pomocwzajemna #opór #spoonie #chorobaprzewlekla #niepełnosprawność #pots #eds #pandas #mecfs #zapaleniemózgu #stomia #pozajelitowe #spektrumautyzmu #solidarność #zrzutka #zbiórka #ozn
Ugh, but in a yay sense.
I'm trying to eat this store bought potato salad, which I just not meeting my expectations of bulk potato salad, even with handfuls of salt*.
I seem to have become One with my desired food habit, even when I'm not being vigilant. I have practiced only eating food that brings me Pleasure to eat. Which is not a high bar, I fuqing adore food!
My body Now has a habit of saying No to anything less than divine. 😁
*see also #POTS
This 2-part video series from the Bateman Horne Center about Orthostatic Intolerance in ME/CFS is very helpful:
"What is Orthostatic Intolerance in ME/CFS?"
Part 1 - Diagnostic Workup
https://www.youtube.com/watch?v=X3Ym8rnYk_4
Part 2 - Management
https://www.youtube.com/watch?v=GIkS4w3tIg8
11/n
#MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia #BatemanHorne
I'm back! 😁
Next I'll share some resources.
I'll start by talking about Orthostatic Intolerance (OI). This is when folks get symptoms when in an upright posture, most often from standing, but also when sitting upright. This condition is common in both ME/CFS and Long Covid.
Sadly, many doctors don't know about OI even though it's an optional diagnostic criteria for ME/CFS.
https://www.cdc.gov/me-cfs/pdfs/toolkit/What-are-MECFS-Symptoms_508.pdf
10/n
#MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia
Today is #MEAwarenessDay.
It is also the day I had a bilateral mastectomy to get rid of breast cancer.
As soon as I got the cancer diagnosis the health system suddenly knew how to help me.
With #MEcfs I am used to being told to take paracetamol and relax. Pain management post op has helped my ME pain. I had forgotten how it feels to be a 0 on the pain scale.
Crazy!
I had to explain ME to a lot of nurses.
They know about #POTS, though. I am impressed.
Is it because POTS can be measured?
May 12th is
International Awareness Day for
Chronic Immunological and Neurological Diseases ( #CIND - awareness colour added when known, otherwise: 🫶)
💙 #MECFS - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
#ES - Environmental Sensitivities or Intolerances
#MCS - Multiple Chemical Sensitivity
💜 #FM - Fibromyalgia
🫶 #GWI Gulf War illness
💚 #LYME Lyme disease
🧡 #MS multiple sclerosis
🩵 #POTS Postural Orthostatic Tachycardia Syndrome
(More details underneath this post)
Debacle
Eleanor Fielding
laen 🌿
Dobrochna
Lucaas ✍️👖🦄
Ahimsa
Johanna
Julia