🧵
Thoughtful blog post by somebody with long Covid and ME/CFS. Initially focuses on describing the post-exertional malaise effects of working 3 days in a row before discussing how the whole illness(es) and the effect it is having on his life is making him feel emotionally

https://centerleftstack.substack.com/p/the-debt-came-due

#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
#PostExertionalMalaise #PEM

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#PEM food cravings be like: "hey you're so exhausted, do you maybe need food?"

... dear my body, I fed you an hour ago with good breakfast, you can't be possibly be hungry...

In an international survey (n=1534) https://www.mdpi.com/2075-4418/9/1/26, 67% of those with ME/CFS reported they never recovered from a crash (that caused postexertional malaise).

Patients & professionals should be informed of this risk.

Exertion has ruined some people's health

#MEcfs #CFS #PwME #PEM @mecfs

I did all the things today
this is totally what pacing means, right?

oh gosh the #PEM will be bad.

War beim Optiker, neuen Sehtest machen und neue Brille bestellen.

War ein sehr guter Termin.
Beim Preis musste ich aber kurz in mich gehen.

Meine einzige Brille, die ich bisher vom Optiker hatte, war eine freiwillige Autofahrbrille, die ich 2014 gekauft habe.

Damals gab's die Aktion: Für jedes Tor, dass Deutschland bei der Fussball-WM gegen Brasilien schießt, gibt es 10% Rabatt. Das Spiel endete 7:1 und auf die Brille gab es 70% Rabatt. 😅

Jetzt neue Gläser + 2. Brille mit Gleitsicht - ein ganzes Stück preisintensiver. 🤪

80min Ausflug mit Konversation - 3 Tage Bettruhe und dunkles Zimmer. (Noch wirkt Adrenalin, bald nicht mehr).

#MEcfs
#PEM

"A 'Crash' Course on PEM (Post-Exertional Malaise)"

11-minute sympathetic video created by a patient. He has made some slides to help illustrate his points.

https://youtu.be/S6V-0tWwv8Q

#LongCovid #MEcfs #PEM @mecfs

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Who thought they could do a standing Beat Saber sesh on Sunday night as it's been almost a year of 'rest', surely must be a bit better by now? And is now finding out how wrong they were? Yup, this idiot 😩

#MyalgicEncephalomyelitis #ChronicIllness #PEM #Crash #Health #FFS #NotIdeal

Morning, Toots! Whoops, Day 2 of #PEM (Post Exertional Malaise, it's a thing with #MECFS) so I'm aching in muscles and joints that haven't hurt in a long time. Was it worth losing two days to help out at a cleaning bee? Yes. Next time I'll be a little bit more careful with myself, but yes.

I need to make cakes for Friday for drawing class - I need it to be gluten free, and if possible dairy free. I was going to make the fabulous Lemon, Almond, and Coconut cake from Recipe Tin Eats for the gluten free, but that's got soooo much delicious butter.

So maybe I'll do a Chocolate Olive Oil cake as well. Although I guess if I bought GF flour for that, it would do for both. Decisions.

Better check the pantry before shopping day, anyway.
The rest of today is going to be very slow, I think. Maybe a bit of drawing practice. Some reading and planning.

And you? What are you up to today?