Mastodawn

https://www.sciencedirect.com/science/article/pii/S1836955326000160
Excellent intro in this article: #LongCOVID affects 100s of millions, even after mild infection. Multisystem issues (fatigue, breathlessness, brain fog, dysautonomia/#POTS, pain) cause fluctuating, often prolonged disability. Multiple mechanisms and distinct phenotypes need personalised assessment. Many have reduced work capacity; vaccination helps. Physio must be cautious: ~25% have #PEM—use pacing and symptom‑titrated rehab; avoid graded exercise if severe. #Rehab

Lars 1d ago

"That life is gone. What replaced it has a name. Long COVID. ME/CFS. Post-exertional malaise. The clinical language is clean and distant, which is probably why it fails so completely to describe what it actually feels like to live inside this body right now."

https://centerleftstack.substack.com?utm_source=navbar&utm_medium=web

#PostCovid #PEM

Fred Rossi | Substack

What if your body ran like a failing economy? Shrinking reserves. Impossible trade-offs. I write about Long Covid and ME/CFS with brutal honesty and zero fluff. Also: Star Wars, comics, cats, and Penguins goals. 🚨. Click to read Fred Rossi, a Substack with hundreds of subscribers.

Tom Kindlon 2d ago

🧵
Thoughtful blog post by somebody with long Covid and ME/CFS. Initially focuses on describing the post-exertional malaise effects of working 3 days in a row before discussing how the whole illness(es) and the effect it is having on his life is making him feel emotionally

https://centerleftstack.substack.com/p/the-debt-came-due

#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
#PostExertionalMalaise #PEM

JennyFluff

💾3d ago

#PEM food cravings be like: "hey you're so exhausted, do you maybe need food?"

... dear my body, I fed you an hour ago with good breakfast, you can't be possibly be hungry...

Tom Kindlon 4d ago

In an international survey (n=1534) https://www.mdpi.com/2075-4418/9/1/26, 67% of those with ME/CFS reported they never recovered from a crash (that caused postexertional malaise).

Patients & professionals should be informed of this risk.

Exertion has ruined some people's health

#MEcfs #CFS #PwME #PEM @mecfs

JennyFluff

💾4d ago

I did all the things today
this is totally what pacing means, right?

oh gosh the #PEM will be bad.

dgspsoa 5d ago

War beim Optiker, neuen Sehtest machen und neue Brille bestellen.

War ein sehr guter Termin.
Beim Preis musste ich aber kurz in mich gehen.

Meine einzige Brille, die ich bisher vom Optiker hatte, war eine freiwillige Autofahrbrille, die ich 2014 gekauft habe.

Damals gab's die Aktion: Für jedes Tor, dass Deutschland bei der Fussball-WM gegen Brasilien schießt, gibt es 10% Rabatt. Das Spiel endete 7:1 und auf die Brille gab es 70% Rabatt. 😅

Jetzt neue Gläser + 2. Brille mit Gleitsicht - ein ganzes Stück preisintensiver. 🤪

80min Ausflug mit Konversation - 3 Tage Bettruhe und dunkles Zimmer. (Noch wirkt Adrenalin, bald nicht mehr).

#MEcfs
#PEM

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Dirk Paessler Mar 28

Ganzer Artikel: dirkpaessler.blog/2026/03/28/... #LongCOVID #PEM #Dysautonomia #Diving #HBOT #Research

Geräte-Tauchen im Meer lässt m...

Geräte-Tauchen im Meer lässt meine LongCOVID Symptome/PEM fast verschwinden. Zum dritten Mal.

Ich habe LongCOVID. Nicht ME/CFS — das muss ich vorweg klarstellen, weil der Unterschied wichtig ist. Mein Fall ist moderat: PEM, Dysautonomie, eingeschränkte Belastbarkeit. Ich bin größtenteils fu…

Dirk Paessler's Personal Blog

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dgspsoa Mar 27

Eine Bildgeschichte um Post-Exertionelle Malaise kurz #PEM zu erklären, das Hauptmerkmal von #MEcfs.