Geräte-Tauchen im Meer lässt meine LongCOVID Symptome/PEM fast verschwinden. Zum dritten Mal.

Ich habe LongCOVID. Nicht ME/CFS — das muss ich vorweg klarstellen, weil der Unterschied wichtig ist. Mein Fall ist moderat: PEM, Dysautonomie, eingeschränkte Belastbarkeit. Ich bin größtenteils fu…

Dirk Paessler's Personal Blog
Eine Bildgeschichte um Post-Exertionelle Malaise kurz #PEM zu erklären, das Hauptmerkmal von #MEcfs.

"A 'Crash' Course on PEM (Post-Exertional Malaise)"

11-minute sympathetic video created by a patient. He has made some slides to help illustrate his points.

https://youtu.be/S6V-0tWwv8Q

#LongCovid #MEcfs #PEM @mecfs

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Who thought they could do a standing Beat Saber sesh on Sunday night as it's been almost a year of 'rest', surely must be a bit better by now? And is now finding out how wrong they were? Yup, this idiot 😩

#MyalgicEncephalomyelitis #ChronicIllness #PEM #Crash #Health #FFS #NotIdeal

Morning, Toots! Whoops, Day 2 of #PEM (Post Exertional Malaise, it's a thing with #MECFS) so I'm aching in muscles and joints that haven't hurt in a long time. Was it worth losing two days to help out at a cleaning bee? Yes. Next time I'll be a little bit more careful with myself, but yes.

I need to make cakes for Friday for drawing class - I need it to be gluten free, and if possible dairy free. I was going to make the fabulous Lemon, Almond, and Coconut cake from Recipe Tin Eats for the gluten free, but that's got soooo much delicious butter.

So maybe I'll do a Chocolate Olive Oil cake as well. Although I guess if I bought GF flour for that, it would do for both. Decisions.

Better check the pantry before shopping day, anyway.
The rest of today is going to be very slow, I think. Maybe a bit of drawing practice. Some reading and planning.

And you? What are you up to today?

By the time the gummy kicked in, I'd already forgotten that I took it and why. I'm like, oh I just want to lie here with my eyes closed, wonder why. Oh yeah. I woke up and chose indica, because I've been overdoing it and needed some chemical restraint to keep me from doing more damage. That's the ticket. So it's not a worse state of PEM. It's a deliberate choice that I made in the cold light of sobriety. Cool. #mecfs #pem #memory #thcpainkiller #gummy #chronicillness #chronicpain
Wie umgehen mit #PEM bei #LongCovid und #MECFS? Was sollten Betroffene beachten, wie Angehörige oder Kollegen reagieren? Was passiert bei PEM eigentlich im Körper, was ist über die Mechanismen bekannt und was gilt es bei #Reha oder Diagnosetests z(wie sie z.B. von der Unfallversicherung gefordert sein können) zu beachten? Im großen
@riffreporter -Interview klärt Prof. Christian Puta auf: https://riffreporter.de/de/wissen/post-exertionelle-malaise-pem-mecfs-pacing-symptome-get-reha-christian-puta-interview
Ich schreibe was hier rein und dann bin ich manchmal so aufgeregt, dass ich #PEM bekomme. Kann ich das nicht Mal entspannt sehen - oder noch besser, es einfach lassen? Orrrrrrr! 🤬 #LernkurveNull

This image from ME/CFS South Australia refers to this useful webpage on Post-Exertional Malaise (PEM) on the ME/CFS Australia site:
https://mecfs.org.au/resources/post-exertional-malaise-pem
(the URL redirects here)

#MEcfs #PEM #PostExertionalMalaise #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

Mijn dochter, ze zal sterven. Als het goed is. Als het mag. Want elke dag en elke nacht is te lang. Misschien mag het niet, want het groene licht moet komen van mensen die leven van CGT en GET en een circuit waarin alles als SOLK of ALK wordt weggewuifd – met schijt aan wat we inmiddels wel weten over #ME, #PAIS, #PEM en ik ben moe. Heel erg moe.

#me #PostCovid #longcovidawarenessday #LongCovid #pais