"Despite having similar pre-pandemic health profiles, participants with eye symptoms reported significantly worse overall health than those without such symptoms. Participants with symptoms also had higher rates of postural orthostatic tachycardia syndrome (rapid heart rate upon standing) and autonomic nervous system disorders such as dizziness, tremors, and difficulty regulating body temperature (38% vs 15%); gastrointestinal issues (21% vs 11%); and migraines (15% vs 4%)."
Sounds like Sjogrens and/or small fiber neuropathy.
Feeling exhausted this morning, despite a good sleep.
Begining to realise how exhausting it is to live with #dysautonomia (which developed following #shingles vaccine) and that I need to allow myself to just sit and let my muscles fully relax. Of course, the 3 levels of #tinnitus (one of which is pulsatile) is adding to the exhaustion.
Not looking for sympathy, just needing to say it out loud (well, type it out loud...😂)
A couple more short quotes from the paper:
"Long COVID (LC) is a mass disabling event of significant public health concern ..."
"The clinical characteristics of Long COVID overlap with those of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and dysautonomia ... risk of both these conditions increases by up to 60% and 80%, respectively, after COVID infection."
#LongCovid #PostCovid #PASC #CovdIsNotOver #MEcfs #Dysautonomia #PublicHealth #Disability
Hey medical side of fedi, can I get some advice?
Has anyone heard of two people coming down with the same exact sudden onset #POTS and/or #dysautonomia symptoms at the same exact time?
Ich habe LongCOVID. Nicht ME/CFS — das muss ich vorweg klarstellen, weil der Unterschied wichtig ist. Mein Fall ist moderat: PEM, Dysautonomie, eingeschränkte Belastbarkeit. Ich bin größtenteils fu…
If you have #SevereME, like me, you are valuable however and whenever you can show up
I’ve hosted monthly support group meetings for Iowa #dysautonomia and #EDS patients for years, it takes a lot, can’t always do it, but everyone is grateful for these spaces no one else provides
I've had enough. Time to be that bitch!
For folks with chronic conditions that lead to having problems with being cold in bed at night (chills, difficulty with temp regulation, etc), something that has really been helping me is sleeping inside my sleeping bag liner. It's a thin fabric tube that one would normally put inside their sleeping bag to stay extra toasty.
Mine is twenty years old and from the brand Sea to Summit. It's stretchy, so it's not binding. But it's very warm. I use it in bed, just crawl in and sleep normally. It's been a big help recently with the winter temps kicking in.
Rhyothemis
kaffando
Ahimsa
✨️dingus-mo-bingus✨️🐈⬛
Dirk Paessler
Heidi
Emily Johnson
Rook 🏳️⚧️
Hollie
Tracy Horton