Kymberly1d ago

The ickyest description of how Jardiance works …

“A medication that lets people pee put sugar, but puts them at risk of UTIs as sugar grows bacteria between their legs.”
— Chubbyemu - a no nonsense doc/researcher on YT

This diabetes med has been a miracle for me even though I don’t have diabetes or even a hint of pre-diabetes. For me, off label, it’s slowing the fall of kidneys into final-stage failure (autoimmune - systemic sclerosis), and holding the high blood pressure that results from that down more reliably than several classes of blood pressure meds.

Thankfully, no UTIs as yet, but I’m well trained at prevention and mitigation from a childhood riddled with those.

#ChronicIllness #KidneyDisease #autoimmune #SystemicSclerosis

Show threadSchiffskatze1d ago
Wir lieben es #autoimmune
Jon4d ago

Tiptoeing out here to say in a whisper that May was #Lupus Awareness Month and so I [lowers voice] started a TikTok about my journey, here: https://www.tiktok.com/@potterdc

#autoimmune

TikTok - Make Your Day

Fearless Potato5d ago

Day # Forever

Some days are better than others, but today is not one of those days.

#Autoimmune
#Pain
#neurological

KillBait UK 🇬🇧May 21

Sjogren’s Disease: Recognising Early Signs and Recommended Tests for Women

📰 Original title: My dry eyes and gut symptoms were signs of a little-known disease that mainly strikes women

🤖 IA: It's clickbait ⚠️
👥 Users: It's clickbait ⚠️

View full AI summary: https://en.killbait.com/sjogren-s-disease-recognising-early-signs-and-recommended-tests-for-women.html?utm_source=mastodon_world&utm_medium=social&utm_campaign=killbait_uk.mastodon_world

#health #sjogrens #autoimmune #women

Sjogren’s Disease: Recognising Early Signs and Recommended Tests for Women

Louise Mountford, 66, experienced severe and unexplained gut symptoms for over four years, including diarrhoea, constipation, bloating, and difficulty swallowing dry food. Despite multiple hospital visits, scans, gastroscopy, and colonoscopy, doctors initially found no cause, attributing her pain to constipation. Over time, she also developed dry eyes, dry mouth, vaginal dryness, jaw pain, and dental problems. After consulting a private gastroenterologist and undergoing blood tests for autoimmune antibodies, Louise was diagnosed with Sjögren’s disease, an autoimmune condition where the body attacks moisture-producing tissues. The disease, which predominantly affects women aged 40-60, can also involve digestive symptoms, respiratory issues, fatigue, and, in severe cases, damage to organs such as kidneys, liver, and lungs. Early diagnosis is critical as it may reduce the risk of complications like lymphoma and improve quality of life. Treatments focus on symptom relief, including preservative-free eye drops, artificial saliva, vaginal pessaries, and medications such as hydroxychloroquine or pilocarpine. New therapies, such as the monoclonal antibody drug ianalumab, show promise in clinical trials. Experts stress greater awareness of Sjögren’s symptoms among patients and healthcare professionals to avoid delayed diagnosis and prolonged suffering.

KillBait
Show threadL, friend of lizardsMay 20

Is this medication *checks list price* $7,624.59 per dose? Yes.

Am I going to stop needing it anytime soon? I hope not, because that means I'm dead.

#autoimmune #ChronicIllness #NEISVoid

L, friend of lizardsMay 20

My health insurance company requires re-authorization for one of my prescriptions every year.

It is a prescription for my autoimmune disorders.

You know, the chronic, incurable, lifelong illnesses? The ones I have to stay on medication for for the rest of my life?

I'm not sure if they think I'm just gonna wake up one year and not have an autoimmune disease, or...

#autoimmune #ChronicIllness #NEISVoid

JonMay 19

Yesterday the temperature went from the 70s straight to the upper 90s. Summer showed up like a dramatic diva — hot, humid, and very proud of itself. "Ta-dahhh!"

My lupus, never one to be upstaged: "Hold my beer."

Struggle bus weather has officially arrived.

#lupus #autoimmune #ClimateChange

Glyn MoodyMay 17
A revolutionary cancer treatment could transform #autoimmune disease - https://arstechnica.com/science/2026/05/a-revolutionary-cancer-treatment-could-transform-autoimmune-disease/ " Researchers are testing CAR T cell therapy as a way to reset the immune system. "
A revolutionary cancer treatment could transform autoimmune disease

Researchers are testing CAR T cell therapy as a way to reset the immune system.

Ars Technica
(❍ᴥ❍ʋ)May 16
I've been doing some research on inflammation triggered by eating animal products and found the neu5gc sugar molecule.
Of course, there seems to be no available antibody tests as it's still in the research stage. I'm still going to ask my doctors about it.
Has anyone heard of this?
#autoimmune #inflammation