BowieRE: https://mastodon.social/@BowieSpace/116156602611013598
Today it only took me an hour! Progress!
(I take my wins where I can get 'em😉)
#disabled #disability #disabledlife
My brain fog is so heavy today I forgot the word "amnesia". Some days you just have to laugh at it all😅🤣
#disability #disabled #disabledlife #brainfog #fibromyalgia #chronicfatigue #disabledsocial #DisabledMastodon
LanieOn a completely different note: I finally started the process of getting new prosthetic eyes.
I've been wearing poorly fitting ones since I was 16. They became too painful and uncomfortable to tolerate, so I'd mostly stopped wearing them.
This week I got new molds made. They might need to be slightly larger next time, though. My ocularist wants me to wear the current shells and see if my eyelids open up more.
I could only manage a few hours before needing a break, so I'm definitely readjusting.
It's uncomfortable. It's tiring. But it also feels like progress after a long time.
Kimberlee PleziaSome days the emotional weight hurts more than the physical pain.
This space is for naming what actually hurt today.
#InvisiblePain #ChronicPainAwareness #MentalHealthMatters #SpoonieCommunity #ChronicIllnessSupport #NightThoughts #DisabledLife
If I'm going to enter my goth era at 46, as disabled guy I needed new compression socks, of course!🤪💀
#disabled #gothlife #gothic #skulls #disability #compressionsocks #disabilityaids #disabledlife
PEM is definitely some bullshit-one of the most frustrating parts of disability.
#postexertionalmalaise #disability #fatigue #cptsd #fibromyalgia #chronic #chronicillness #disabled #chronicfatigue #DID #BPD #disabledlife
Well, seeing as I'm currently on bed rest after illness(thanks, disabilities, for giving me a New Year's challenge😅😂), I am now here with my own account. Now to find the rest of you to follow😁
#fibromyalgia #cfs #cptsd #disabled #disabledlife #goth #creative #writer #poet #pluralgang #ptsd #AuDHD #autism #ADHD
Cosmic Collective🏳️⚧️🏳️🌈It's a gentle day here today, as PEM is making itself known again. Journalling, YouTube, bed rest.
#disabled #fibromyalgia #chronicfatigue #brainfog #disabledlife
For those of us who are disabled, the struggle is so often between "Do I do these tasks/errands now, even though my pain and fatigue is high and I don't know if I'll be able to complete them, or do I put it all off until tomorrow but risk the distinct possibility that I will feel even worse, still not be capable, then wish I'd attempted the things today."
#disabledlife #disabled #disability #disabilityawareness #fibromyalgia #cptsd #fibrowarrior #chronicillness #chronicpain #chroniclife