So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.

Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.

Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.

Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.

I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !

In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)

#disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright

Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

#MEcfs #POTS #MCAS #CCI

Ich hätte jetzt gerne einen Kaffee mit Milch, ohne Globuli.
Funktioniert leider nicht, da Kaffee ein Histaminliberator ist.

#MCAS
#Mastzellaktivierungssyndrom
#Histaminintoleranz
#Globukalypse

I think salting my food increases my reactivity. It's disappointing, since I don't have a lot of variety in my food or options for seasoning it. However, I went salt-free last night at dinner and I enjoyed it - the onions were still quite good.

Though the focus is often on the sodium in table salt, in this case I think the issue might be chloride, so switching to KCl salt substitute would not help - but perhaps I should try it as a test.

#MCAS #MastCells #allergies

Ich habe mir in letzter Zeit 4 Videos zum Thema GLP-1 RA bei ME/CFS angehört und die Kurzfassung ist, dass diese Mittel wohl tatsächlich, zumindest für einen großen Teil der Betroffenen, zu Verbesserungen führen können.

Es wird vermutet, dass das einerseits an der mastzellstabilisierenden und antiinflamatorischen Wirkung dieser Medikamente und an einer Verbesserung des Glukosestoffwechsels liegen könnte.

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#MCAS #MECFS #GIP #GLP1 #Ozempic #Semaglutide #Tirzepatide #Wegovy