Emily Johnson1d ago

Y’all know that mast cells are immune cells?

And mast cell disorders like #MCAS #Mastocytosis (via Long Covid, other chronic infections and immune events, EDS etc) are *immune cell disorders*

“Covid doesn’t cause immune damage” people, we can’t spell it out more easily for you

Emily Johnson2d ago

#MCAS #POTS #Mito people: my body keeps rejecting sources of (dairy-free lactose-free gluten-free) protein and calcium as so many of them have histamine, and in general my body just doesn’t like metabolizing some things

Give me your best high absorption options, please thank you

lez-anya3d ago

Previously safe foods are, tinight, being proven otherwise.

Exhausted, feel like trash.

Can anxietyy/stress/etc make MCAS reactions worse?

#MCAS #NEISvoid

Michelle4d ago
Over 9 years since I went to my doc complaining of reactions to scented products postpartum. 8 years to get a MCS diagnosis (& Sjogrens as a side quest), and another year to get MCAS. It feels validating but anticlimactic. I am already doing all the stuff. Many of my questions were answered with "we don't know." I was hoping that a diagnosis would open up a knowledge bank. I was also hoping for treatment options that I haven't tried. No luck but at least I'm on the right path.
#MCAS
Rhyothemis4d ago

Use of baking soda (sodium bicarbonate) to suppress allergic hypersensitivity reactions -
https://www.youtube.com/watch?v=LOnsjfECvr4&t=1984s

One of my main reactions is painful swallowing. I had an upper endoscopy to check for eosinophilic esophagitis but biopsies were normal - but I have the same symptoms as EoE. Pain is greatly reduced by drinking a baking soda solution.

I first tried baking soda after I noticed that my symptoms were worse if drinking something acidic (lemon water), and improved if I drank something basic (Oatly oatmilk). I had not seen the video or heard of the Japanese case report.

#MCAS #Allergies #CornAllergy

Mast Cell Activation Syndrome - Making the Difficult Diagnosis with Dr. Tania Dempsey

YouTube
Show threadclarkiestar4d ago

Now I feel I can be more committed to learning more about living with ADHD. The clinician strongly advised that I try meds. But I’ll need to be careful with that, as it could be really bad with MCAS.

#chronicillness #mcas #adhd

Emily Johnson6d ago
#MCAS: unfortunately you did the unacceptable thing of having a body! Please refrain thank you
Julia6d ago

This is my favourite podcast on complex chronic conditions so far:

🎙️Make Visible: Chronic Illness Explored

Homepage:
https://madevisible.podbean.com/

Themes included:

ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more.

#mecfs
#postcovid
#LongCovid
#postvac
#podcast
#makevisible

Make Visible: Chronic Illness Explored | Visible with Emily Kate Stephens

Shining a light on invisible illness.<br /><br />Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals.  Including ME/CFS, Long Covid, E...

lez-anyaMar 21

"Pain whenever I eat anything that isn't chicken or rice" is up there with "insomnia, but always fatigued" and "allergic to water and sunlight" as some of the worst symptoms I experience with my disabilities, NGL.

#NEISvoid #pwME #MECFS #MCAS

StarSlothMar 17

#MCAS people: can you tolerate the following foods? Yes, partial/small amounts/when not in a flare, not at all, whatever details that you want to share.

Potatoes
Soybeans
Soy derivatives (sauce and other soy products)
Red beets