From the Galway Bay FM website
Not an exciting piece but any free coverage highlights the event to more people.
Hopefully it means that they read something out on the station itself.
Note that the heading of our press release was:
“UK ME Expert to give five free talks in May (ME Awareness Month) as part of a national tour (in Cork, Dublin, Galway, Limerick & Sligo)”
A recording of the 20-minute interview we arranged on Live95 is now available here:
https://shows.acast.com/live-95-limerick-today-podcasts/episodes/limerick-people-talk-about-support-for-me
Thanks very much to Amolak, Sarah & Liz for talking on the programme and to the show's team. 👍
Umfrage - Perspektive von Post-viralen Syndromen (PVS) bei Kindern:
Welche Symptome beeinträchtigen den Alltag?
Welche Angebote nutzen Betroffene?
Was hilft?
Was fehlt?
- Umfrage: https://limesurvey.ovgu.de/index.php/931722?lang=de
- Umfrage ausfüllen (Betroffene/Eltern); ca. 45-60 Minuten
- Weitere Online-Fragebögen (nach 6, 12 und 18 Monaten)
- 30 € für Teilnahme
Kontakt:
[email protected]
https://mcfc.mri.tum.de/de/kidscarepvs
(Sieht noch aktuell aus)
I just posted a new blog entry, "A New Home for Griffins": https://www.stephanieburgis.com/2026/05/a-new-home-for-griffins/
Hooray! My short story “Mail-Order Magic,” which was originally published online in The Sunday Morning Transport (and beautifully edited by Fran Wilde), has now been republished as an audio podcast, fabulously narrated by Tina Connolly. This is the most personal of any of my short stories; it was the first time I ever dared write…
#MeCfs #ME_CFS #Burnout #ActuallyAutistic #actuallyAuDHD #ActuallyADHD gals, maybe you know important techniques I don't. I have Audhd. I got burned out trying to study in places that didn't accomodate me for 3 years. Now, I'm going to study somewhere smaller, nearer, and I think I'll be able to handle it. I live with my parents, I am 19, I do not have me/CFS, but the rest is diagnosed. Parents know about it. But they still can't accept how bad I got with the recent burnout. I don't work, I don't do anything really. Still I have days I just cannot get out of bed at all.
How does one survive somewhat happy, even with extremely limited energy ? For me, spoons are the shortage. How do I preserve the spoons I still get ? I've been trying to make my parents understand but it's slow. Even vague answers help, I have no idea what to do.
RE: https://troet.cafe/@woz/116612270497752664
Es ist extrem erfreulich, endlich mal wieder einen guten Artikel zum Thema #mecfs #chronicfatique #longCovid zu lesen, indem sowohl Studien ausgewertet, als auch Betroffene ernst genommen werden
Es ist unglaublich, dass Betroffene immer noch beschuldigt werden, sich die #Krankheit einzubilden
Es gibt eine #Goldengirls Folge aus den 1980ern zu #cfs in der sich Dorothy all das anhören muss, was Menschen auch noch heute durchmachen müssen
Danke @woz @errrferrr & Noëmi Landolt 
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day 21
Ich möchte nicht behaupten, frei von internalisiertem Ableismus oder Klassismus zu sein, aber zumindest bei mir begründen sich viele Verhaltensweisen nicht damit, dass ich denke, dass mir etwas nicht zusteht, oder dass ich etwas "(auch so) schaffen sollte", sondern auf einem Bewusstsein dafür, wie schnell andere Menschen sich eine feste Meinung bilden und mit Feindseligkeit reagieren.
Es ist keine "Selbstdiskriminierung" es ist Selbstschutz.
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May is ME/CFS Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this 30-second video from the US Disease Control and Prevention
(CDC)
https://www.woz.ch/2621/long-covid-und-me-cfs/heilung-in-drei-tagen/!4C332NV50EHR (German link)
This explains why Unispital Basel was so extra shitty in their "treatment" of my me/cfs. I never went back.
Irish ME/CFS Association
Julia
Stephanie Burgis
/usr/lib128/konstruct/*
Katika Kühnreich
hauch
Azure is tired of lying in bed