Thinking of everyone with #LongCovid #MECFS #pwLC today. It’s Easter and many people are celebrating with their families and friends today. Not me though.
I was quite active the past two days. On Good Friday I went to church and later baked a cake for us. We also cooked dinner together.
Yesterday we met up with family in a pub nearby. That was nice, but I could already feel that the general noise and music were really tiring me out.
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Tagging @hello for a question:
I got a request to spell out ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) in the group description. (image shows current description)
I don't know who to contact in order to request a change to the description.
Can you tell me who owns the mecfs group? If not, can you pass on this request?
Thanks!
PS. I realize ME/CFS is easily searchable online but it wouldn't hurt to update the group description.
RE: https://infosec.exchange/@rebootdeluxe/116351115033512803
Hab mir meine Garmin Fitnessuhr auch nur geholt, weil sie mir beim Pacen/Erholung dient.
Die Vitalparameter helfen mir, nicht zu Crashen.
#MEcfs
Ansonsten bräuchte ich sie auch nicht, hatte Jahrzehnte keine Armbanduhr und war glücklich.
Agomelatin ist das einzige für #MEcfs ohne #PostCovid auf dieser Liste, hat Rote - Hand - Brief:
bfarm.de/SharedDocs/Risikoinfo…
Man hat sich auf diese zweifelhafte Studie berufen:
Bei mit Agomelatin behandelten Patienten sollen regelmäßig Leberfunktionstests durchgeführt werden. Das Arzneimittel sollte sofort abgesetzt werden, wenn der Anstieg der Transaminasen das 3-fache des oberen Normbereichs überschreitet oder bei Auftreten typischer Anzeichen einer möglichen Leberschädigung.
6/
“I was in bed. Screens were making my symptoms worse. Staying upright was not possible. The writing I would have done, the posts I would have shared, the community I would have engaged, all of it was behind a wall I could not climb over.
There is a particular cruelty in being too sick from a disease to advocate for awareness of that disease on the day set aside for exactly that purpose”
Envie de Comprendre l'EM ?
Découvrez nos pages sur "Energie, effort et récupération"
et leurs nouvelles illustrations ⬇️
https://comprendrelem.fr/em-cest-quoi/energie-effort-recuperation/
#paEM #pwME #MECFS #EMSFC #CovidLong #EncéphalomyéliteMyalgique
Till-o-mat
Ahimsa
TaruAmhran
dgspsoa
Kevy B 🇵🇸
Violet
Tom Kindlon
Comprendre l'EM
gretebrug