Mastodawn

I came across a new BPSM term today - 'neuroplastic' (as in 'MCAS is neuroplastic') - not really a new term, but new in this context. Another way of saying you can think yourself better.

#NEISVoid #MECFS #MCAS #POTS

Emily Johnson 17h ago

If you have #POTS and/or other types of dysautonomia and you take Corlanor aka Ivabradine, there’s a recall, check your pills: https://www.eatingwell.com/heart-kidney-medication-recalled-nationwide-12007424

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Ahimsa 21h ago

@thegardendude
My orthostatic intolerance (OI) is part of ME/CFS. I do get increased heart rate but more nausea, short of breath, & other pre-syncope (pre-fainting) symptoms. Fainted on tilt test.

2 videos on OI in ME/CFS (not sure if OI is same for other illnesses)

"What is Orthostatic Intolerance in ME/CFS?"

Part 1 - Diagnostic Workup
https://www.youtube.com/watch?v=X3Ym8rnYk_4

Part 2 - Management
https://www.youtube.com/watch?v=GIkS4w3tIg8

#OrthostaticIntolerance #ME/CFS #POTS

What is Orthostatic Intolerance? Part 1- Diagnostic Workup

YouTube

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A’ chailleach 👵🏻21h ago

@thegardendude same here, standing still is worst and heart rate goes berserk. I just sit or lie down until it calms down usually. Have you tried the #pots tag? 🤓

Tom Kindlon 1d ago

Bateman Horne Center:

New provider education video

Learn how to perform the 10-Minute NASA Lean Test, an accessible office-based tool used to help identify orthostatic intolerance in ME/CFS, Long COVID & related conditions. (aka Passive Stand Test)

Watch video: https://youtu.be/96GCnYWX8D4

#mecfs #longcovid #pots @mecfs @longcovid @pots

10-Minute NASA Lean Test (Passive Standing)

YouTube

Tom Kindlon 1d ago

Bateman Horne Center:

Orthostatic intolerance is common in ME/CFS & Long COVID, yet many patients go undiagnosed for years.

Our latest blog explains:
• Tilt Table Tests
• Active Stand Tests
• NASA Lean Tests

…and why accessible testing matters.

Orthostatic Intolerance Testing Made Clear: Tilt Table, Active Stand, and the Passive Stand

A new NIH/NIAID strategic vision signals increased attention to post-infectious conditions like ME/CFS and Long COVID.

Bateman Horne Center

WearyBonnie 2d ago

Effects of auricular vagal neuromodulation therapy combined with slow-paced diaphragmatic breathing in individuals with postural tachycardia syndrome: a randomised controlled trial protocol. - Abstract - Europe PMC

https://europepmc.org/article/MED/42342403

#POTS

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Tom Kindlon 2d ago

6/
“The medical impairment(s) must be shown to exist by means of medically acceptable clinical and laboratory findings.

Under the law, symptoms alone cannot be the basis for a finding of disability, although the effects of symptoms may be an important factor in deciding whether an individual is disabled.” — Long COVID, a Guide For Health Professionals

#mecfs #longcovid #pots #chronicillness
@pots @mecfs @longcovid

May 🌸 ~美~ 🌸2d ago

Morning fedi! did You know~
That It's OK To Rest ^-^
(Especially in this heat 🥵)

I'm also showing off some more of my Girlfriend's artwork ;) You can get the poster from Her Etsy store!! https://www.etsy.com/shop/HaleAndHopeful

#selfie #maypics #HaleAndHopeful #indieart #disability #chronicfatigue #POTS #smile

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Tom Kindlon 2d ago

“Social Security evaluates whether your condition limits activities like sitting, standing, concentrating, lifting, walking, or sustaining cognitive effort throughout a workday.”

Barbara points out most physicians don’t document these limitations unless patients actively describe them. (contd)”

#mecfs #longcovid #pots
@pots @mecfs @longcovid