From the US ๐บ๐ธ
Dysautonomia in Long COVID is Prevalent and Could Explain the Frequency of Symptoms
https://www.clinmedres.org/content/clinmedres/24/1/28
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#dysautonomia #POTS @pots #OI #OrthostaticIntolerance
If you'd rather call your U.S. senators instead of sending them email here's an automated tool for that:
https://win.newmode.net/longcovidcampaign/signonsenatorsfundlongcovidinfy27
You can always do both - send email and call - if you have the time and energy!
Thank you for whatever action(s) you're able to do to get this research funding approved! โค๏ธ
#FundLongCovid #LongCovid #MEcfs #POTS #Dysautonomia #CovidIsNotOver #MedMastodon #USPol
๐จUrgent!
You can help get more research funding for Long Covid, ME/CFS, and related illnesses!
Use the link below to email your senators and ask them to sign on to a "Dear Colleague" letter for FY27 (fiscal year 2027) which calls for "$210 million in Long COVID research funding at NIH, ARPA-H, and AHRQ"
The deadline for this action has been extended to Monday, April 20!
https://win.newmode.net/longcovidcampaign/signonsenatorsfundlongcovidinfy27-1
#LongCovid #MEcfs #POTS #Dysautonomia #FundLongCovid #MedMastodon #USPol #NIH
#dysautonomia struggle rant
I've been dealing with #POTS for quite a while now. Now, for whatever reason, in addition to hr spikes when standing, my heart decides to be very calm out of nowhere. Like, to the point I can't take a beta blocker for the tachycardia, because when it calms down, I'll be dizzy. But ALSO when I'm 'normal,' I'm getting spontaneous body-driven waves of panic, which a beta blocker would help. But I can't. So?
๐ ๐
WHAT GIVES
I'M LOSING IT ๐ญ
1. Day out with the family, lots of smiles and cute pictures of the kids.
2. Saved myself from passing out today! Close one ๐ซ
(The trick was a caffeinated soda, salt, and sitting today) #POTS #Dysautonomia
3. Got some fun fidget-ey items at a shop. Apparently that's a thing for me. 3D printed critters and some rubix-style cube thing brought me a surprising amount of joy. #AuDHD
From a Nancy Klimas team:
Elevated blood viscosity is associated with dysautonomia in long COVID symptoms
https://www.sciencedirect.com/science/article/pii/S2666602226000649
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#dysautonomia #PASC
"Despite having similar pre-pandemic health profiles, participants with eye symptoms reported significantly worse overall health than those without such symptoms. Participants with symptoms also had higher rates of postural orthostatic tachycardia syndrome (rapid heart rate upon standing) and autonomic nervous system disorders such as dizziness, tremors, and difficulty regulating body temperature (38% vs 15%); gastrointestinal issues (21% vs 11%); and migraines (15% vs 4%)."
Sounds like Sjogrens and/or small fiber neuropathy.
Feeling exhausted this morning, despite a good sleep.
Begining to realise how exhausting it is to live with #dysautonomia (which developed following #shingles vaccine) and that I need to allow myself to just sit and let my muscles fully relax. Of course, the 3 levels of #tinnitus (one of which is pulsatile) is adding to the exhaustion.
Not looking for sympathy, just needing to say it out loud (well, type it out loud...๐)
A couple more short quotes from the paper:
"Long COVID (LC) is a mass disabling event of significant public health concern ..."
"The clinical characteristics of Long COVID overlap with those of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and dysautonomia ... risk of both these conditions increases by up to 60% and 80%, respectively, after COVID infection."
#LongCovid #PostCovid #PASC #CovdIsNotOver #MEcfs #Dysautonomia #PublicHealth #Disability
Hey medical side of fedi, can I get some advice?
Has anyone heard of two people coming down with the same exact sudden onset #POTS and/or #dysautonomia symptoms at the same exact time?
Tom Kindlon
Ahimsa
Fylgja
Rhyothemis
kaffando
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