Tom Kindlon1d ago

"Professor Chalder Downgrades Definition of 'Recovery'" by David Tuller

https://www.sciencedirect.com/science/article/pii/S0965229926000506

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Tom Kindlon3d ago

ME Advocates Ireland - advice for Occupational Therapists

https://meadvocatesireland.blogspot.com/2026/01/occupational-therapy-care-working.html

Screenshot from latest Chronic Living Therapy newsletter

#MyalgicEncephalomyelitis #MEcfs #PwME #ME #MyalgicE
@mecfs

Show threadTom Kindlon6d ago

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How to Cite:

Things I’m Missing Out On (A Few Words About Myalgic Encephalomyelitis And Loss). (2026). PhysiOdyssey: Exploring Human Physiology, 2(1), 34-36. https://doi.org/10.36399/t61j1h47

#MyalgicEncephalomyelitis #ME @mecfs

Things I’m Missing Out On (A Few Words About Myalgic Encephalomyelitis And Loss) | PhysiOdyssey: Exploring Human Physiology

Tom KindlonApr 1

One month to go

A great opportunity to raise awareness and understanding. Also the month (and the associated awareness day/week) can be used for lobbying, fundraising, and other forms of activism.

#PwME #MyalgicEncephalomyelitis #MEcfs #CFS
@mecfs

Show threadbananamangodogApr 1
@dariana If its anything like my #MyalgicEncephalomyelitis the barrage of fickle emotions is likely caused or exacerbated by neuro inflammation (which may not show up on tests). Acknowledging that you are not in fact insane, but it is a result of inflammation allows you the opportunity to watch it and let it pass without affecting your underlying psyche. It will continue to affect your energy levels but knowing it's not your fault, and out of your control is some peace of mind (but still frustrating).
Show threadbananamangodogMar 30

@kimcrawley As someone permanently disabled with #MyalgicEncephalomyelitis thanks to a virus (it wasn't COVID) I did everything possible to avoid, I cannot encourage this initiative enough.

If you have any doubts, I can tell you that you absolutely do not want this disease, but risk developing it every time you catch a viral infection. Make it popular to respect yourself and others by dating safely.

Tom KindlonMar 29

A teenager with ME reflects on relapses that are unfortunately part of ME

Old but timeless

I came across it when doing a clear out. From the magazine of the Tymes Trust

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis @mecfs

BjörnMar 26

Watching Sailor Moon

https://swg-empire.de/post/6603377

ColleenSteckelMar 24

Latest View from the Trenches of #MyalgicEncephalomyelitis discusses muscle fatigability.

Understanding the science helps protect against snake oil salesmen.

All my Substack articles are free. Please like and share to help educate more people...

https://open.substack.com/pub/colleensteckelmeiccinfo/p/muscle-fatigability-in-myalgic-encephalomyelitis?utm_source=share&utm_medium=android&r=deavh

Muscle Fatigability in Myalgic Encephalomyelitis (ME)

“Diagnosis should not be made without it”

View from the Trenches of Myalgic Encephalomyelitis
Cara SutraMar 24

Who thought they could do a standing Beat Saber sesh on Sunday night as it's been almost a year of 'rest', surely must be a bit better by now? And is now finding out how wrong they were? Yup, this idiot 😩

#MyalgicEncephalomyelitis #ChronicIllness #PEM #Crash #Health #FFS #NotIdeal