Many of you have probably made the experience, that it is easier to think while lying down.
I've made this experience even early, when I barely had any symptoms of orthostatic intolerance and wouldn't even notice it most of the time, unless I was upside down.
But until recently, I haven't paid attention to this also affecting executive functions more, that I would have expected.
Making decisions, making plans and starting a task "mentally" is easier from bed.
From Japan:
" #COVID19 infection shows significant association with increased autonomic dysfunction pharmacotherapy initiation, with a 36% rise in prescriptions over 8 months."
https://www.tandfonline.com/doi/abs/10.1080/07853890.2026.2618323
Screenshot from Science for ME update
#LongCovid #PASC #dysautonomia #POTS @pots #OI #OrthostaticIntolerance @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus #COVID #COVID_19 #COVIDー19 #SARSCoV2
Some tips on showering and washing from a sympathetic & knowledgeable occupational therapist who specialises in ME/CFS, Long Covid & other energy-limiting chronic conditions
https://onelifelivedwell.substack.com/p/showers-shouldnt-cost-your-energy
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance #Spoonies #Spoonie
The Relation Between Cardiac Output and Cerebral Blood Flow in ME/CFS Patients with a POTS Response During a Tilt Test
https://www.mdpi.com/2077-0383/14/11/3648
Screenshot from the January 2026 AMMES newsletter
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #POTS #OrthostaticIntolerance @mecfs @pots
"When I Don't Feel 'Disabled Enough' as Someone With a Chronic Illness"
https://themighty.com/topic/fibromyalgia/feeling-not-disabled-enough-chronic-illness
"How many of you who have fibromyalgia or similar #chronicillness sometimes feel like you’re judged for not being 'disabled enough?'”
#invisibleillness #Spoonie #hiddenillness #Spoonielife #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @longcovid
#LongCovid #MEcfs #
@mecfs
Symptom: Neurogenic Inflammation and POTS Blood Pooling
https://www.illmarks.com/symptom-neurogenic-inflammation-and-pots-blood-pooling/
#art #autonomicDysfunction #AutonomicFailure #autonomicNervousSystem #bloodpooling #BloodPressure #bodyHorror #bodyMapping #bodyart #bodyhorror #cardiology #chronicIllness #dinet #dystautonomia #hypotension #longCovid #medart #medicalArt #medicalart #MillionsMissing #neurogenicInflammation #neurogenicInflammation #neurology #orthostaticHypotension #orthostaticIntolerance #posturalOrthostaticTachycardiaSyndrome #POTS #potsie #pwLC #pwme #SciArt #SciComms #SymptomMap #SymptomArt #SymptomMap #tinitus #tinnitus
PEM (post exertional malaise) can be difficult to explain. But I think orthostatic intolerance is even harder to explain.
People wonder how just standing still - or even sitting upright but I can do that longer - can be a problem. I have a lot more trouble standing still for a few minutes than walking for a few minutes. I must sit down to shower or brush my teeth.
Two helpful videos:
https://www.youtube.com/watch?v=X3Ym8rnYk_4
See post #2 for a vaguely related comment from me on orthostatic intolerance
#POTS @pots #OI #OrthostaticIntolerance #chronicillness #chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid
1/
"Systematic literature review: treatment of postural orthostatic tachycardia syndrome (POTS)" ["with a special focus on POTS therapy in children and people with ME/CFS."]
Free fulltext:
https://link.springer.com/article/10.1007/s10286-025-01172-2
#PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Heads-Up! Are You Missing an Easy Way to Improve Your Sleep and Health?
Interesting to read the rationale behind this approach (tilting the head of your bed) but still seems speculative for ME/CFS where "the normal rules often don't apply"
#MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance
hauch
Tom Kindlon
illmarks
Ahimsa