Daisee (she/her)6d ago

#3GoodThings

1. Shoes
2. Crutches
3. Walking

#Walking #Mobility #Hypermobility

StrfnurfnMar 10
ok but in this bold new age of biometric logins, no one's talking about accessibility for those of us with weak-ass fingerprints. #hypermobility #teamWonkyCollagen #mostlyKidding
Show threadKirstyMar 2

They have responded to public outcry 👍

Health New Zealand has removed controversial recommendations that people suffering from a rare connective tissue disorder not be given certain treatments.
It follows criticism from patients and advocacy groups.

https://www.rnz.co.nz/news/national/588410/health-new-zealand-removes-some-new-advice-about-ehlers-danlos-syndromes-and-hypermobility-spectrum-disorder

#EDS #POTS #MCAS #Hypermobility #Hypermobileehlersdanlossyndrome #ChronicIllness
see above post

Health New Zealand removes some new advice about Ehlers-Danlos syndromes and hypermobility spectrum disorder

The new guidance published last week, and described as a review of current evidence, has been criticised by patients and advocacy groups.

RNZ
KirstyMar 2

I have many friends who live with #EDS #POTS #MCAS #Hypermobility #Hypermobileehlersdanlossyndrome and related #ChronicIllness conditions.
The conditions are not easy to live with.

News like this does not help 😣
https://www.rnz.co.nz/news/in-depth/588334/official-advice-about-ehlers-danlos-syndromes-and-hypermobility-spectrum-disorder-labelled-incredibly-damaging

Official advice about Ehlers-Danlos syndromes and hypermobility spectrum disorder labelled ‘incredibly damaging’

Doctors are divided over treatment for a rare disorder, but some living with it say the official advice is misleading.

RNZ
Oh Joy Sex ToyFeb 17

https://www.ohjoysextoy.com/wrestling-with-my-body-inam
Inam discovers Play Flighting in their explorations with their disability and desires.

Become our Friend With Benefits on https://patreon.com/OhJoySexToy Your support directly pays the artists we commission to create these original comics just for our site.
#Webcomic #Hypermobility #EhlersDanlosSyndrome

Gussy05 🏳️‍⚧️Feb 10

"Let me open up my diagnosis box and see if I have something that explains why this situation went this way."

#Autism #ADHD #audhd #neurodivergent #CFS #lupus #hypermobility

W_Dräger 🦉Jan 19

I feel like my joint #hypermobility would thank me if I could just stand KT tape on my skin    

#HEDS

illmarksJan 9

Symptom: Chronic Diarrhea

https://www.illmarks.com/symptom-chronic-diarrhea/

#anxiety #art #autism #bodilyFunction #bodilyFunction #bodyHorror #bodyMapping #cfs #chronicIllness #depression #diarrhea #eds #ehlersdanlossyndrome #FunctionalGastrointestinalDisorder #gastroenterology #gastrointestinal #GI #gutBrainAxis #gutbrainAxis #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #ibs #longCovid #longcovid #mecfs #MECFSBuy #medart #medicalArt #MillionsMissing #MyalgicEncephalomyelitis #neurodivergence #PIIBS #postInfectiousIrritableBowelSyndrome #postIfectiousIrritibleBowelSyndrome #pwLC #pwme #rritableBowelSyndrome #SciArt #SciComms

W_Dräger 🦉Jan 9

The packaging on my mouthwash was so frustrating for my #hEDS that I just gave up and used an old travel bottle  

#hypermobility #disabled

Show threadDr Zoyander StreetJan 3
Following up with tags: I'm trying to learn more about intimacy with #heds, #hypermobility, and #disability more broadly. Any and all resources appreciated!