C1-esterase Inhibitor [RUCONEST] Treatment is Associated with Immune and Vascular Pathway Modulation in PASC with Neurological Symptoms: Longitudinal Plasma Proteomics
https://link.springer.com/article/10.1007/s10571-026-01736-4
Screenshot from science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
Shared autonomous HERV loci transcription identifies a unique circulating CD14+-xCR1+ mononuclear cell phenotype in a patient group with post-acute sequelae of COVID-19
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0349350
Screenshot from science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
Three Ways to Learn About Pacing and PEM
https://emerge.org.au/learn-with-emerge-australia-lea/
Screenshot from June 2026 Emerge Australia email bulletin
Dr Nilihan Sanal-Hayes:
In recognition of ME Awareness Month, I wrote a blog to honour and raise awareness of everyone living with this debilitating health condition
Dr Nilihan Sanal-Hayes 14th May 2026 The COVID-19 pandemic has reshaped how we understand infectious disease, but one of its most important legacies is the renewed attention on what happens after the acute infection ends. For many individuals, recovery is not linear. Instead, it is marked by persistent and often debilitating symptoms lasting months or […]
"Deadline: July 13.
You don't need to be an expert, just honest and in this case, not hyperbolic.
Please share. Most people have no idea this is happening but it will impact so many of us."
5/5
#USPol #MEcfs #Science #Research #SolveME #LongCovid #ProtectScience
🚨 Action item from Solve ME 🚨
"Two things you can do right now from home:
1. Call & email Congress:
https://solvecfs.quorum.us/campaign/164430/
2. Submit a public comment (10 min, we wrote a guide):
https://solvecfs.org/how-to-submit-a-public-comment-on-the-proposed-federal-grant-rule/"
4/5
Thread with a message from Solve ME:
"A proposed federal rule could let the government cancel active ME/CFS research mid-study when political priorities change.
The public comment window closes July 13.
Here's what you can do."
1/5
Gibt es in NRW (am besten Ruhrgebiet) Ärzt*innen/Ambulanzen, die #LongCovid/ #MECFS bei Kindern ohne Psychologisierung abklären?
Geht erstmal nur um Diagnostik.
Psychotherapeut*in d. Kindes fände Abklärung sinnvoll.
Tipps willkommen.
Tom Kindlon
Ahimsa
Fledertier
Erica Taylor
FunkisHen