Another example of end-stage capitalism griding you down.

Forbes has removed their leaky API I relied on to stay informed of the realtime billionaires list.

I need to know why they are on there. What transactions lead up to this? Then I can follow that back through the trail of destruction.

It saves me time.

I have #MECFS via #LongCovid, and so I have very little energy. I also live in a covid-denying society where I have no choice but work my body to death in order to survive. They seem to have made their markup nearly unscrapable, and I just don't have the #spoons right now to figure out a workaround.

If anyone is hip to a daily data source of the billionaires I am all ears! Just one small pull a day from a single user.

That's like... asking for the tip of a hotdog from a Manhattan-sized butcher.*

*Like, the location is literally the size of Manhattan. Probably thousands of actual mutalators would be butchers, there.

#capitalism

Es gibt von der Charité Berlin Empfehlungen für den Off-Label Use von #Medikamenten bei #mecfs und #longcovid

Voraussetzung ist das der Hausarzt Engagement zeigt, weil die Kostenübernahme zwischen HA und #Krankenkasse geregelt wird. Diagnostik und mit der KK reen.

https://cfc.charite.de/en/for_physicians

Die TK ermöglicht das auch: https://www.tk.de/techniker/versicherung/tk-leistungen/weitere-leistungen/arzneimittel/arzneimittel-ausserhalb-der-zulassung/kostenuebernahme-off-label-use-2002548

Und der G-BA hat auch einen Beschluss zu Off-Labe gemacht:

https://www.aerzteblatt.de/news/longpost-covid-vier-wirkstoffe-bald-im-off-label-use-erstattungsfahig-c250def6-580b-4807-814b-0535002daee7

#POTS #PEM #Ivabadrin #Naltrexon

C1-esterase Inhibitor [RUCONEST] Treatment is Associated with Immune and Vascular Pathway Modulation in PASC with Neurological Symptoms: Longitudinal Plasma Proteomics

https://link.springer.com/article/10.1007/s10571-026-01736-4

Screenshot from science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Shared autonomous HERV loci transcription identifies a unique circulating CD14+-xCR1+ mononuclear cell phenotype in a patient group with post-acute sequelae of COVID-19

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0349350

Screenshot from science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers

Three Ways to Learn About Pacing and PEM

https://emerge.org.au/learn-with-emerge-australia-lea/

Screenshot from June 2026 Emerge Australia email bulletin

#LongCovid #MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid

Dr Nilihan Sanal-Hayes:

In recognition of ME Awareness Month, I wrote a blog to honour and raise awareness of everyone living with this debilitating health condition

https://hub.salford.ac.uk/inclusive-society/long-covid-and-me-cfs-rethinking-post-viral-illness-in-the-wake-of-a-pandemic/

#MEcfs #LongCovid @mecfs @longcovid

Thread with a message from Solve ME:

"A proposed federal rule could let the government cancel active ME/CFS research mid-study when political priorities change.

The public comment window closes July 13.

Here's what you can do."

1/5

@mecfs
@longcovid

#USPol #MEcfs #LongCovid #Science #Research #SolveME

Gibt es in NRW (am besten Ruhrgebiet) Ärzt*innen/Ambulanzen, die #LongCovid/ #MECFS bei Kindern ohne Psychologisierung abklären?
Geht erstmal nur um Diagnostik.

Psychotherapeut*in d. Kindes fände Abklärung sinnvoll.
Tipps willkommen.

#LongCovidKids