Day 5 I knew it was going to happen I am completely wiped out & have zero spoons. Fatigue level 10, pain is a shitty steady 8 & 10 every time I wake up The only good thing is that Buddy is doing well after his seizure #cats #ChronicIllnessesSuck #LongCovid #ME/CFS #ChronicPain #ChronicFatigue #POTS

RE: https://bsky.app/profile/did:plc:evzmobrnzmf6d6bn7m25obr4/post/3mjnuxgcgis2d
def paying for yesterday, it's hitting me hard today, completely knackered.
something new though: my eyes started hurting. like, my eyeballs, as if they were strained? no idea what the heck that's about, since I barely looked at a screen. today still really uncomfy, even with eyes closed.
not happy about this development, nor the sometimes blurry vision. /
grumbles β€‹β€‹

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences
one of the (many) downsides of having a chronic illness and in particular experiencing post-exertion malaise, is that you need to decide which activities are worth it or not.
I'd purposefully kept myself on mostly bed rest the last few days, to avoid a potential flare-up since I was having somewhat not good days, in preparation of going out to see my friend today.
now, my pain and fatigue levels are approaching critical, and I feel like shite, and I expect to be paying for it for at least the next week.
but mental health wise, it was so fucking worth it. I had a great time.
but fuck if I don't hate the conses of my quences.

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences

After 2 years working to be able to walk properly again and getting myself off double forearm crutches, and then 4 years being essentially bedridden except for absolute minimal basics of daily life(and some days not even that), yesterday I moved the tv back into the lounge room. Finally feeling like I'm at the stage where I can sit and watch tv without expending too much energy, and still have ability to do other things. It's a big deal. Please clap.

#fibromyalgia #chronicpain #chronicfatigue

back from my afternoon out with D!
D and I always have lunch at the garden centre
(they do really good gf food for my coeliac arse), and also: plants!
I got a spider plant, a Moroccan mint
(for mint tea!) and string of pearls.
It also means Floki got his favourite treats: doggy mini cupcakes. He hounded me for them, as soon as I came through the door. Look at this cuties!
(also got myself a treat, the best gf brownie I know that I can only ever get there)
the rollator was also a success, if somewhat cumbersome to get in and out of the boot. I am now gonna not move at all and rest while cuddling with the pup to try and avoid a flare-up since this is the 1st time I've been out since November and I'd rather play it safe.
​​

#TheFlokiPup #DogsOfMastodon #DogsOfSharkey #DogsOfFedi #DogsOfFediverse #DailyDoggo #AdoptDontShop #FediDogs #Doggos #MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser
@[email protected] Thanks. One of the things I hate about the combination of #chronicfatigue brain fog and #adhd impulsivity is that I know there's a huge danger of my brain just randomly starting sealioning and mansplaining across the people I follow as my brain just starts spewing random responses to stimuli. At least on this occasion I noticed...
Maikel πŸ‡ͺπŸ‡Ί πŸ‡ͺπŸ‡Έ (@[email protected])

425 Posts, 242 Following, 493 Followers · A 92 kilograms bundle of joy powered by lisdexamphetamine, cis gay mixed race male (he/they), Spain/UK based, adopted Brit, passionate against Brexit. Into: minimalism, decretionism, mutualism, left-wing politics, decent public services, Elixir, Kotlin, Nixos, German language, FOSS, EU products, dark sense of humour, fitness, healthcare and impailed-billionaire cooking recipes. Diagnosed: ☒️, ADHD-I, Hidradenitis Stage 2 and counting. #nobots #ADHD #Elixir #Spain #Minimalism

vmstΒ·io
and having cuddles with the pup before I start getting ready. I'm also going to give the rollator a spin instead of using my cane. It'll be much easier on me re pain if I can sit instead of stand still. also, balance, can't forget better balance!

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser

bonfire.mavnn.eu/pub/objects...

Using #krita practice to avoid vitamin D deficiency part 2.

Turns out that when you're suffering from #chronicfatigue and don't have the energy to walk anywhere, it's really easy to get vitamin D deficiency because of the lack of sunlight. Last year I ended up needing to inject myself with extra vitamin D to get back to workable levels, this year I'm trying to be deliberate not repeating that experience.

Public service announcement over, tl;dr get some sunlight, don't give yourself skin cancer either

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bonfire.mavnn.eu
Absolutely wrecked from taking one my cats to the emergency vet last night. The #PEM crash is going to be fucking brutal. I’m gonna head out now. ✌️ #ChronicIllnessesSuck #LongCovid #ME/CFS #ChronicPain #ChronicFatigue #POTS

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