Golden Girls S05E05 talking about Chronic Fatigue Syndrome in 1989 explains me in the 2010s before getting an Ehlers Danlos and POTS diagnosis. Hell, it still explains how I feel now sometimes. I was lucky to have received the diagnosis before health care became so prohibitive in the US.

But here's the big thing... That was 1989 and little has changed with doctors not expanding their knowledge. Ehlers Danlos is most often misdiagnosed as Hypochondria or CFS and many doctors who understand EDS think CFS is the same thing.

Technology may be advancing but compassion is not. We are going backwards when it comes to compassion and access and people will remain sick and never understand why.

#ChronicIllness #EhlersDanlos #POTS #ChronicFatigue #HealthCare

@theaardvark I know it can be quite frustrating. It took me very long to be accepting about the fact that I won't get better. I am working on my energy management, but stopped all physical training/physical exertion.

And now I can feel my ability to regenerate getting better, little by little. It's still very little, but after all it's progress.
#ChronicFatigue

There's never a good time to find yourself forced to spend more time than you'd like in bed due to chronic fatigue.
But if it has to happen, there are worse times than when there's a snooker tournament on the telly.
Perfect TV for snoozy partial attention.
#LongCovid #ChronicFatigue #Snooker

Had several attempts at getting up and tackling work, only to have to give up after an hour or so each time. Tonight's plans are a write off too. It's depressing to see the day go by without achieving a single thing.

It's been a while since my fatigue has been this bad without having exerted myself much.

#LongCovid #ChronicFatigue