I haven't forgotten about these but I've hit a spot of ill health. Hope to be back to writing more soon.

#Victorianseaside #chronicfatigue

night not very restful, still. but didn't wake up with a flare up, so it's a win.
pain levels, however, are higher than I'd like, thanks to yesterday's shenanigans. today will be a strictly minimum activity day.
ah well. we can't win them all.

#CFSME #MECFS #ChronicFatigue #ChronicPain

Things I’ve managed to do in the past week:

- get my ancient printer to work and print out things that have been waiting for months
- sort out the photos on my overloaded phone, download the keepers and create and order a printed photo book covering the past 2 years
- mend some clothes and take up the hems on 3 pairs of pants I bought at the school fair
- do a little weeding in the veg patch
- sort out some recipes and knitting patterns

In other words, my energy levels have improved a lot from what they were! 🎉 Having a 6-week break from the medication presumed responsible for my serious fatigue has made a big difference. However I’ve been back on it for 2 weeks and wait somewhat nervously to see what happens - if things get bad again I might need to switch meds.

#ChronicFatigue

"The proper way to talk about what I’m doing is to say that I use fitness trackers to “pace.” #Pacing is an energy management technique that involves balancing periods of activity with periods of rest to avoid physical and mental overexertion. The idea behind the practice is that by carefully planning and prioritizing the tasks and activities you do throughout your day, people with energy-limiting conditions like mine can avoid falling into a cycle of repeated crashes or worsening symptoms. Pacing isn’t a cure or even a way to improve your overall condition, at least not inherently. But for many people with these conditions — folks with #MECFs (#LongCovid or formerly referred to as “#chronicfatigue”), #POTS, #fibromyalgia, or even #Parkinson’s, for example — pacing can make life a little more predictable."

https://www.theverge.com/features/889835/fitness-trackers-chronic-illness-visible-whoop

My fitness tracker is a secret weapon against my chronic illness

Disabled folks are using their devices to manage long Covid, POTS, and more — and it’s working

The Verge
Embracing Love #quotes #love #spiritual #innerpeace #spiritualpath #motivation #goodvibe #mindful

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#ChronicFatigue #BrainFog #SleepBetter #MigraineRelief #ChronicPain #Inflammation #DigitalDetox #MentalLoad

((images created with ai tools))

beige.party/users/Anomnomnom...

Having #adhd and currently suffering from #chronicfatigue, this is what I believe the cool kids call a 'current mood'. Assuming current can be measured in years...

A-nom-nom-nom-aly BSC SSC (@[email protected])

I've been getting into writing a lot of short fiction. I call them 'to do lists'

beige.party

Here is your Mastodon version reduced by about 61 characters:

In the disability community, pacing is more than a strategy—it’s essential for long-term health.

Jimmy Mulzet shares a thoughtful piece on coping with Cerebral Palsy fatigue and finding a sustainable daily balance.

Full article:
https://www.jimmymulzetstory.com/coping-cerebral-palsy-fatigue-energy-balance/

#PublicHealth #CerebralPalsy #DisabilityRights #ChronicFatigue #Accessibility

My brain fog is so heavy today I forgot the word "amnesia". Some days you just have to laugh at it all😅🤣

#disability #disabled #disabledlife #brainfog #fibromyalgia #chronicfatigue #disabledsocial #DisabledMastodon