Mastodawn

def paying for yesterday, it's hitting me hard today, completely knackered.
something new though: my eyes started hurting. like, my eyeballs, as if they were strained? no idea what the heck that's about, since I barely looked at a screen. today still really uncomfy, even with eyes closed.
not happy about this development, nor the sometimes blurry vision. /grumbles

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences

kit lecter 🦇👹4d ago

one of the (many) downsides of having a chronic illness and in particular experiencing post-exertion malaise, is that you need to decide which activities are worth it or not.
I'd purposefully kept myself on mostly bed rest the last few days, to avoid a potential flare-up since I was having somewhat not good days, in preparation of going out to see my friend today.
now, my pain and fatigue levels are approaching critical, and I feel like shite, and I expect to be paying for it for at least the next week.
but mental health wise, it was so fucking worth it. I had a great time.
but fuck if I don't hate the conses of my quences.

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #ChronicIllness #PostExertionMalaise #PostExertionalMalaise #TheConsesOfMyQuences

Bowie 4d ago

After 2 years working to be able to walk properly again and getting myself off double forearm crutches, and then 4 years being essentially bedridden except for absolute minimal basics of daily life(and some days not even that), yesterday I moved the tv back into the lounge room. Finally feeling like I'm at the stage where I can sit and watch tv without expending too much energy, and still have ability to do other things. It's a big deal. Please clap.

#fibromyalgia #chronicpain #chronicfatigue

kit lecter 🦇👹4d ago

back from my afternoon out with D!
D and I always have lunch at the garden centre (they do really good gf food for my coeliac arse), and also: plants!
I got a spider plant, a Moroccan mint (for mint tea!) and string of pearls.
It also means Floki got his favourite treats: doggy mini cupcakes. He hounded me for them, as soon as I came through the door. Look at this cuties! (also got myself a treat, the best gf brownie I know that I can only ever get there)
the rollator was also a success, if somewhat cumbersome to get in and out of the boot. I am now gonna not move at all and rest while cuddling with the pup to try and avoid a flare-up since this is the 1st time I've been out since November and I'd rather play it safe.

#TheFlokiPup #DogsOfMastodon #DogsOfSharkey #DogsOfFedi #DogsOfFediverse #DailyDoggo #AdoptDontShop #FediDogs #Doggos #MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser

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Michael Newton 4d ago

@[email protected] Thanks. One of the things I hate about the combination of #chronicfatigue brain fog and #adhd impulsivity is that I know there's a huge danger of my brain just randomly starting sealioning and mansplaining across the people I follow as my brain just starts spewing random responses to stimuli. At least on this occasion I noticed...

Maikel 🇪🇺 🇪🇸 (@[email protected])

425 Posts, 242 Following, 493 Followers · A 92 kilograms bundle of joy powered by lisdexamphetamine, cis gay mixed race male (he/they), Spain/UK based, adopted Brit, passionate against Brexit. Into: minimalism, decretionism, mutualism, left-wing politics, decent public services, Elixir, Kotlin, Nixos, German language, FOSS, EU products, dark sense of humour, fitness, healthcare and impailed-billionaire cooking recipes. Diagnosed: ☢️, ADHD-I, Hidradenitis Stage 2 and counting. #nobots #ADHD #Elixir #Spain #Minimalism

vmst·io

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kit lecter 🦇👹4d ago

and having cuddles with the pup before I start getting ready. I'm also going to give the rollator a spin instead of using my cane. It'll be much easier on me re pain if I can sit instead of stand still. also, balance, can't forget better balance!

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #MobilityAid #Rollator #MobilityAidUser

Michael Newton 5d ago

bonfire.mavnn.eu/pub/objects...

Using #krita practice to avoid vitamin D deficiency part 2.

Turns out that when you're suffering from #chronicfatigue and don't have the energy to walk anywhere, it's really easy to get vitamin D deficiency because of the lack of sunlight. Last year I ended up needing to inject myself with extra vitamin D to get back to workable levels, this year I'm trying to be deliberate not repeating that experience.

Public service announcement over, tl;dr get some sunlight, don't give yourself skin cancer either

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Kool Badges Apr 15

Invisible Illness Club Badges! 75p each https://www.koolbadges.co.uk/invisible-illness-club-p-11069.html #invisibleillnessclub #invisibleillness #badges #koolbadges #25mm #youarestrong #kindness #smallbiz #ChronicIllness #SpoonieLife #HiddenDisability #ChronicPain #Fibromyalgia #ChronicFatigue #Endometriosis

Dave Underwood Apr 15

I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

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kit lecter 🦇👹Apr 15

not a good day today. not yet a really bad one, but fatigue and pain are higher than 'comfortable'. I shouldn't be surprised. I've had nearly a full week of good day streak, my body was bound to say “well, enough of thaf, can't have you forgetting,” sooner or later. no appetite and extra brain fog doesn't help matters. at least floki is keeping me company while I rest. here's hoping it doesn't devolve into a full blown flare-up and I'm well enough to socialise outside Saturday.

#MECFS #CFSME #ChronicPain #ChronicFatigue #Spoonie #SpoonieLife #BrainFog #BrainFogSucks #FlareUps