The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal

https://www.youtube.com/watch?v=pgqi2W9dmLc

From February 2026 Massachusetts ME/CFS & FM Association newsletter

https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253

Comment: I haven't watched it myself so far

#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM

"I have long Covid. Don’t call my chronic disease a ‘journey’: I would sooner call the experience a bad trip"

Screenshot from February 2026 AMMES newsletter

https://www.statnews.com/2025/11/25/chronic-disease-journey-long-covid/

#chronicillness #LongCovid #hiddenillness #invisibleillness
#Spoonies #Spoonie #ChronicallyIll #MEcfs @mecfs @longcovid

A topic of interest to some in #chronicillness community who could benefit from home visits

News Release
Primary care home visits for older adults declined after payment policy changes & COVID-19 in Ontario
https://www.eurekalert.org/news-releases/1114111

https://www.annfammed.org/content/24/1/44

#Homebound #Housebound #SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disabled
#Disability

"Creativity and chronic illness" (from the Chronic Living Therapy newsletter)
https://chroniclivingtherapy.com/creativity-chronic-illness/

Features:

- Ballet dancer, @anilvanderzee

- Red Tree and ME – international collaborative art project

- Jeremy Jeffs, Photography project

#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs #TheRedTreeandME

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I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.

https://www.aarp.org/livable-communities/housing/info-2020/homefit-guide-download.html

Not sure whether it is mainly of use to those in the US or whether it is pretty international?

#Disabled #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disability

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How Invisible Chronic Illness Adds an Extra Burden to Life

https://www.psychologytoday.com/us/blog/turning-straw-into-gold/202511/how-invisible-chronic-illness-adds-an-extra-burden-to-life

She has ME/CFS herself but the article is not specific to any illness

#invisibleillness #chronicillness #ChronicPain #Spoonielife
#hiddenillness #Spoonies #Spoonie #ChronicallyIll #MEcfs
@mecfs @longcovid
#LongCovid #POTS @pots

Image is from an email from Institute for Neuro-Immune Medicine Center for Collaborative Research

Links from image:
https://www.cards2warriors.org/
https://www.cards2warriors.org/happy-mail

#chronicillness #illness #Illhealth #ChronicIllnesses #Spoonies #Spoonie #ChronicallyIll