BookMy body is being an asshole, and my tummy is worse.
I've exercised, done an 8km power-walk, and it's still not enough, so I'm back home, diapered up, munching on roast veggies, and reading a cute queer manga.
Fuck this curse!
Arend (they/them)The hardest thing with my chronic illness these last couple days is the major self-esteem hit. It's so depressing to want to be able to create and do and enjoy when I'm too afflicted with muscle and joint pain, fatigue, and brain fog to do so. And it's so hard not to internalize that all to mean I'm defective or something. Fuck this ableist system that has made me think like that.
I gotta find more ways to enjoy myself on days like these.
Tom Kindlon(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision
RaeynI had a realisation today, and I'm not that impressed. I realised I've had brain fog for so long that I... sort of forgot it was there? I mean, I guess it means I've done my best at making do within my means, but still, like. How do you *forget* your brain is impaired? Or did I just answer my own question there, ha ha.
((sometimes, you've got to laugh so you don't cry. this might well be one of those times.))
Still, I got through work in a reasonable time, and have been able to return to resting. Well, trying to complete all the deeds in Pokopia, ha ha. I've almost completed everything I can in Withered Wasteland, and then it's on to Bleak Beach for the same treatment. I've got a note up on my computer next to the Serebii database of items, so I can try to make all the Pokemon have awesome lives (and of course, use as much furniture up as possible).
So yeah.
Brain StewGood news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
Just a Stray Fish#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ?
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ?
Irish ME/CFS Association
Today's level of existence is 'painfully exhausted'. Like, again, edge of a fibro flare, but a further step into it. Baby flare? Could be. But at least I've done the things I need to do, so that's something.
I'm incredibly amused by my youngest right now. While they are in the SEND (special educational needs and disabilities) program due to their stutter, the head of SEND at their school was surprised to find out that their autism hadn't been diagnosed. Like, child is clearly autistic, water is wet. *laughs* They've sent a referral so she can get properly diagnosed, but in the meantime, she straight-up invited herself into the autism centre in the school -- and today, we got an email inviting her to go on an out of school trip with them later this year. She herself has said that they are happy to have her because she's befriended several children in that part of the school, but it just gets me in the heart that she gets included with her people even without the official label.
What else... ordered another loom last night -- third time lucky? I ordered it from the website of a craft shop in Buxton, so probably hopefully will be good. Watch this space or something, ha ha.
Alexis Bushnellit is very difficult to do my job when the pain in my shoulders is so intense and my arms are too heavy for my body to hold up.
Large Dutch study:
Who receives a diagnostic label for fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome? A study in the lifelines cohort
https://www.sciencedirect.com/science/article/pii/S0022399926000930
Only 25% with FM, 14% with CFS [Fukuda], and 48% with IBS received a formal diagnosis.
I need to read full paper to check their interpretations
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#IrritableBowelSyndrome #IBS
#Fibromyalgia #Fibro #FMS #FM
@mecfs