The Canadian ME/CFS research network, ICanCME, is organizing a free and online conference from Tuesday November 4 to Thursday November 6
Link:
https://icancme.ca/research/2025-me-conference/
Screenshot from Massachusetts ME/CFS & FM Association October newsletter
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Comparative risk of post-acute sequelae among adults following SARS-CoV-2 or influenza virus infection: A retrospective cohort study among United States adults
https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004777
Screenshot from the Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
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"And on the other hand I find it difficult to really show others how little I can do. That’s an unimaginably vulnerable feeling."
#MEcfs #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS
@mecfs
its Indigenous Peoples Day!
Aldercone is Native led + majority and we are really needing support
https://comradery.co/aldercone
https://ko-fi.com/aldercone/
https://liberapay.com/heckinTech/
do check out other folks like @mahtheyzhawey, @bvlbanchacollective, & @silverspookgames too
and these hashtags
#settlerSaturday #IndigenousMutualAid #KeepANativeHoused
🤎
#CreativeNatives #disabledArtist #MEcfs #autistic #indieDev #mutualAid #chronicIllness #queer #IndigenousPeoplesDay
📰 Hier findest Du täglich Informationen zu #Klima & #Wissenschaft auf Deutsch. Mit Deiner Unterstützung kann ich das weiterhin kostenlose tun. Ich möchte helfen, #Sprachbarrieren zu überbrücken und möglichst viele Meldungen mit Bezug zur #Forschung bereitstellen.
Werde Unterstützer-Mitglied: https://steady.page/klimacrew 👥
oder hilf' mit einer Einzelspende: https://ko-fi.com/tinoeberl 💶
#Klimawandel #Klimaschutz #Science #Klimakommunikation #Infektionsschutz #LongCovid #PostCovid #MECFS #Endometriose
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"With other people around, my body generates more adrenaline and I become more lively than I really am. Also because I want a visit to be a nice experience, for the other person. But it invariably results in a crash."
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
BERLIN! MITTWOCH IST DEMO!
Vor dem Bundesforschungsminsterium wIrd protestiert. Für mehr Forschungsförderung bei #MEcfs #LongCovid #PostVac.
11-15 Uhr. Seid ihr dabei? Für uns? Für alle, die nicht mehr können?
Bitte BOOSTEN! #BERLIN
On Oct. 17, Renegade Research is hosting a zoom roundtable on clinicians using micro doses of the GLP-1 agonist drugs (Ozempic etc) for ME/CFS.
First I've heard of this but docs and patients are always trying everything they can to help patients.
https://us06web.zoom.us/webinar/register/8017600381475/WN_yLHOdU7vTuq_11xTRA2D9w#/registration
Presenters Ilene Ruhoy, MD, PhD, David Kaufman, MD Tania Dempsey, MD Drs Ruhoy, Dempsey and Kauffman will be discussing how they are using this medication off label in their respective practices and how clinical results have varied across single vs dual agents at micro, ultra low vs the average therapeutic doses (as approved). Q&A/discussion session follows.
🧵
"How I’m really doing"
https://meglobalchronicle.wordpress.com/2024/12/08/how-im-really-doing/
How appearances can be deceiving in terms of what people with ME can do consistently.
"So what people see when I post pictures of an outing are really exceptions based on adrenaline."
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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Tom Kindlon
5 🌳 walk into a bar… & say ow
Tino Eberl
Christina Koch
Brian Vastag
Ö. Ges. für ME/CFS