Tom KindlonME Research UK:
Could diagnostic history act as an indicator for ME/CFS? A team of researchers in Germany have investigated.
Find out more: https://bit.ly/406n84n
ME Research UK:
Prof. Dr Wirth and Prof. Dr Steinacker propose that a dysfunctional sodium-potassium pump could represent a central mechanism underlying muscle symptoms, such as weakness and fasciculations (twitches) in severe ME/CFS. https://tinyurl.com/2neeawah
ME Research UK:
As part of Germany's National Decade Against Post-Infectious Diseases, their 200,000 strong NAKO Health study is being harnessed to allow an invaluable before-and-after view of post infectious diseases to be formed - https://tinyurl.com/5bp88fst
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“I’ve watched this pattern long enough that it’s hard to unsee. In work with people living with energy-limiting conditions, the moves that restore a sense of life aren’t dramatic. They’re precise. They’re humble. They tend to slip under the radar because they don’t look like progress the way we’ve been taught to recognize it.”
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““We know there are many actions the Federal Government could take to improve the lives of people with ME/CFS, including investing in research, better resourcing advocacy groups, and supporting healthcare providers to have a better understanding of the condition, its severity, and its impact”
@mecfs #mecfs
““We know there are many actions the Federal Government could take to improve the lives of people with ME/CFS, including investing in research, better resourcing advocacy groups, and supporting healthcare providers to have a better understanding of the condition, its severity, and its impact”
@mecfs #mecfs
Press release:
(Australia) "Parliament Friends of ME/CFS Launching Today!"
https://greens.org.au/news/media-release/parliament-friends-mecfs-launching-today
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
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Science4ME News Bot‘What Do People With Long Covid Want From Healthcare Services?’ A Qualitative Exploration From Lived Experience — Clare Rayner et al.
"Patients emphasised the importance of being heard and the value of receiving timely care that reflects the latest scientific understanding and recognises their condition as real, treatable and deserving of ongoing clinical attention."
The impact of testing positive versus negative for COVID-19 on health-related quality of life: cross-sectional evidence from the Alberta post-COVID-19 follow-up survey — Kirwin et al.
"The study found that people who tested positive for COVID-19 reported a bigger drop in their health-related quality of life than those who tested negative."
https://link.springer.com/article/10.1007/s11136-026-04174-3
The impact of testing positive versus negative for COVID-19 on health-related quality of life: cross-sectional evidence from the Alberta post-COVID-19 follow-up survey - Quality of Life Research
The novel Coronavirus Disease 2019 (COVID-19) can have lasting physical and psychological outcomes, though little is known about the long-term impact of CO
Work ability and associated factors among individuals with Post COVID-19 condition- a cross-sectional study — Stigmar et al.
"we found that more than half of the participants experienced poor work ability." "Despite this, the majority (70%) were working." "The most prevalent symptoms in our cohort were mental and physical fatigue together with dizziness."
https://link.springer.com/article/10.1186/s12889-026-26771-0
