Tom Kindlon23m ago

New Australian (NCNED) ME Research UK-funded research:

Distinct functional connectivity patterns in Myalgic Encephalomyelitis and long COVID patients during cognitive fatigue

https://link.springer.com/article/10.1186/s12967-026-07708-y

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs

Tom Kindlon36m ago

New webpage from Germany:

Official webpage on National Decade Against Post-Infectious Diseases (€500,000,000 into research!)

Google translation:
https://www-bmftr-bund-de.translate.goog/DE/Forschung/Gesundheit/MedizinischeForschung/Postinfekti%C3%B6seErkrankungen/postinfekti%C3%B6seerkrankungen.html?_x_tr_sl=de&_x_tr_tl=en&_x_tr_hl=en

Auf Deutsch:
https://www.bmftr.bund.de/DE/Forschung/Gesundheit/MedizinischeForschung/Postinfekti%C3%B6seErkrankungen/postinfekti%C3%B6seerkrankungen.html

#MEcfs @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

Ronja @ Real Scientists DE2h ago
Gruß aus der Mittagspause, ich habe gerade unter dem Post zur Psychologisierung und Stigmatisierung noch Infos zu #ME/CFS und #LongCOVID ergänzt 🔎 schnell, guckts euch an!! 🏇🏃‍♀️

RE: https://bsky.app/profile/did:plc:eu6urrd67yaoywvt6nzcl6ou/post/3mcwm57kkak2z
Show threadRonja @ Real Scientists DE2h ago
Definiert werden sollten nun wohl auch mal #ME/CFS und #LongCOVID ME/CFS ist eine schwere Multisystem-Erkrankung, deren Kernsymptom die Post-Exertionelle Malaise (PEM) ist. Diagnostiziert wird sie nach den Kanadischen Konsens Kriterien. Es gibt bisher keine kurative Therapie.
Julia3h ago

# SaveAnna (Part 2)

➡️URGENT

Please HELP & SHARE!💙

THANK YOU!!

📣https://chuffed.org/project/161937-help-anna-escape

📰https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

🌸Anna: https://aus.social/@halcionandon

#MECFS
#SevereME
#domesticviolence
#LongCovid
#MutualAidRequest

Julia3h ago

#SaveAnna (Part 1)

➡️URGENT

Do you know anyone able to help in Australia or even in Melbourne?

Anna is severely affected by ME/CFS & other illnesses & URGENTLY needs help to escape domestic violence.
⚠️Her doctor fears for her life!

The support systems are not made for ME/CFS & have all turned her away!😞 (Shame on them!)

Please HELP & SHARE!!💙

📣https://chuffed.org/project/161937-help-anna-escape

📰https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

🌸Anna: https://aus.social/@halcionandon

#MECFS
#SevereME
#domesticviolence
#LongCovid
#MutualAidRequest

### Urgent Appeal: Help Anna Escape Abuse – Time is Running Out!

🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from Abuse and Neglect! 

Chuffed
Show threadAnti. 🐘8h ago

· A new study in eBioMedicine found neurological #LongCOVID symptoms were associated with increased pTau-181 levels, a marker of brain inflammation tied to Alzheimer’s disease
· A new “state-of-the-art” review on #POTS highlighted that the multisystemic condition is disabling, causes societal & economic withdrawal
· A phase II clinical trial testing efficacy & safety Uplizna (Inebilizumab) in LC & #MECFS recently announced by German Ministry of Research

https://thesicktimes.org/2026/01/20/research-updates-january-20/

#ResearchUpdates

Research updates, January 20 - The Sick Times

A new study in eBioMedicine found neurological Long COVID symptoms were associated with increased pTau-181 levels, a marker of brain inflammation that has been tied to Alzheimer's disease.

The Sick Times - Chronicling the Long Covid crisis
Tom Kindlon12h ago

Book review by Dr Elke Hausmann: Psychology's Quiet Conservatism: How a Supposedly Woke Science Promotes Capitalism and Protect Privilege

https://bjgplife.com/book-review-psychologys-quiet-conservatism-how-a-supposedly-woke-science-promotes-capitalism-and-protects-privilege/

Screenshot from latest Science for ME weekly update

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19

Tom Kindlon12h ago

A nursing journal has interviewed the new general secretary of the Norwegian ME Association, Grethe Reinhardtsen.

Google translation:
https://sykepleien-no.translate.goog/2026/01/hun-er-sykepleier-og-ny-generalsekretaer-na-vil-grethe-reinhardtsen-fa-me-anerkjent-og?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp

Screenshot from Science for ME weekly update

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

Tom Kindlon15h ago

ME/CFS Impact Statement template resource:

"You can use this template to communicate how ME impacts you & what adjustments you need to access the services & support you are entitled to"

https://www.actionforme.org.uk/resource/impact-statement-template/

Designed for UK but anyone could use it

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#SevereME