gosh i love occupational therapists. i'm at a webinar about pacing through summertime, and this OT just shared a "success story" from a client who got a banner for a party they hosted. instead of saying "happy birthday" the banner said "please leave by 9pm"

#ChronicIllness #LongCovid #MECFS

Trying out #Habitica again, this time for #MEcfs pacing! I've added things like "5-10m radical rest" as habits, and things like "go on a 5-10m walk" as rewards. I think gamified pacing might work well for us.

Crash may be easing up? I really dislike how hard it can be to tell.

At any rate, it's a gorgeous day. Am plotting how to both rest and do things, simultaneously. This is the alchemy of chronic illness.

#fibromyalgia #MECFS

RE: https://mastodon.social/@why_not/116528667161336751

Kommt stattdessen zur Liegenddemo am Sendlinger Tor für diejenigen, die durchs Raster des Gesundheitssystem fallen.

https://troet.cafe/@Sexabled/116477565293336893

#LongCovid #MECFS

6/‬
‪May is #MyalgicEncephalomyelitis (ME) Awareness Month.‬

‪You can help by reposting +/or liking this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called The Forgotten Plague) (3 mins 5 secs)‬

https://youtu.be/y69PqwZoUws

‪Day 6 #MEcfs #CFS

@mecfs

The Blue Ribbon: Sneak Peek

YouTube

6/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by reposting and/or liking

Day 6

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #mecfs @mecfs

Jeg har et, forhåbentligt, afgørende møde med kommunen i morgen.
Kan ikke lade være med at tænke på den skade de seneste års kamp for at få hjælp har gjort.
Det kommer til at tage tid at komme ovenpå.
Så har fået en tanke; at hvis kommunerne var forpligtiget til at yde økonomisk støtte til at rette op på de psykiske skader, de forvolder. Så ville de faktisk have et økonomisk incitament til at behandle deres borgere ordentligt. For som tingene kører i dag, ville det blive dyrt.
#dkpol #mecfs
#shorts #mecfs Fortbildung

YouTube
Ich drücke mich jetzt mal ganz plakativ und vulgär aus, damit es auch jeder versteht: Ich scheiße auf interdisziplinäre Zentren für #ME/CFS, solange noch nicht einmal eine flächendeckende Basisversorgung gesichert ist! 1/2

RE: https://bsky.app/profile/did:plc:shmtd76ykcmmw2a5ioc7giq6/post/3ml6jvnolzc2m

#WordWeavers 6 May: What writing-related challenges have you encountered recently?

Sorry to be boring, but the biggest challenges that I face continue to be my physical and mental health.

But you know what? It's ME/CFS Awareness Month. You can support the search for medical treatment for ME/CFS by donating to Action for ME https://www.actionforme.org.uk/

Check out the BBC Lifeline appeal https://www.bbc.co.uk/iplayer/episode/m002vqbh/lifeline-action-for-me

I'm one of the #MissingMillions unable to partake in society and do what I love. #mecfs

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Action for ME provides care and support for everyone affected by ME/CFS, whilst securing future change through research and campaigning.

Action for ME