What it’s like living in a household of spoonies. Pills, pills and more pills. 💊
#Ramblings #video #spoonie #meds #medication #chronic-illness #chronic-pain #disabled #mental-illness #invisible-illness #invisible-disability #out-of-spoons
What it’s like living in a household of spoonies. Pills, pills and more pills. 💊
RE: https://mastodon.social/@Bubotomy/116298161908114314
Note that people who work VERY hard may still need to hear this message. You can still be a #spoonie even if you have a seemingly generous supply of spoons, especially if you routinely use them up at a furious pace. I work 12-hour night shifts on a 7-on-7-off schedule, and my #kaleidotropic neurotype can easily overload me with ambitious self-assigned tasks on the off weeks, since I can easily develop a "special interest" level of focus on just about anything, if I let myself. I have to remind myself that it’s OK just to relax with my wife and my cats.
Not a rant. Not a report. A check-in.
Luna says sit down. M&M says ER. I say… I’m trying.
How are you, really? 🖤🐾
#ChronicIllness #Disability #Spoonie
linktr.ee/skylanarissa
#Disability #ChronicIllness #CheckIn #CheckingIn #MentalHealth
https://dreamingofdragonscom.wordpress.com/2026/03/26/cryptid-check-in-come-sit-in-the-den-a-while/
PIP review stuff. Forgot I had a charity appt to help me fill out the form today.
1. https://www.benefitsandwork.co.uk/news/beware-latest-pip-review-form
2. https://mentalhealthandmoneyadvice.org/welfare-benefits/pip-mental-health-guide/help-with-your-pip-claim/how-to-fill-in-the-pip-form/
3. https://mentalhealthandmoneyadvice.org/welfare-benefits/pip-mental-health-guide/help-with-your-pip-claim/supporting-evidence-for-a-pip-claim/
4. https://assets.publishing.service.gov.uk/media/67446cf2ece939d55ce92fa1/AR1_Personal_Independence_Payment_Review_Form.pdf
#unitedKingdom #UK #UK_politics #Benefits #SocialSecurity #disability #disabled #spoonie #ChronicIllness #SpoonTheory #MentalIllness #MentalHealth #Wellbeing #Government #Support #Help #Tip #Tips #England #Scotland #Wales #NorthernIreland #British #Scottish #Welsh #NorthernIrish
As a disabled person I’m so tired of visiting doctors/etc. so much. I don’t even go to them as much as some folks but I feel drained just thinking about it. I don’t have a fear of the setting or needles. Still I do get anxious even when it’s with someone that I’ve seen several times. Anyway. I have to go to get looked at because I still have bronchitis symptoms. (Bloody mucus being coughed up, real fun /s) I don’t care for that or for driving to go get prescriptions afterward.
Gestern habe ich nicht nur alle Löffel aufgebraucht, sondern gleich auch noch die Löffelkiste mit ins Feuer geworfen.
Leider werde ich morgen auch wieder einen anstrengenden Tag haben. Aber danach ist Ruhe angesagt.
From FitBit to Visible: Learning to Live with M.E.
https://carasutra.com/2026/01/living-with-me-daily-life/
#ChronicIllness #MECFS #Disability #Spoonie
https://carasutra.com/2026/01/living-with-me-daily-life/
"Oh, I'm in (a lot of) pain! That's why I want to puke and curl up."
#medMastodon #medicine #autistic #asperger #disabled #spoonie #chronicPain #ExecDysfunk #ExecutiveFunction #ExecutiveDysfunction
I'm really struggling with chronic pain due to my genetic disorders, am not able to afford meds, & I'm *not* okay.
If anyone can help, that would be so appreciated, but no one has to! I'm sorry I'm even asking. I need $70. I hate asking for help, I feel like a jerk, but I don't have another option.
PayPal paypal.me/motleychick
Cashapp $izzi6
Venmo @egdirbretla
#NEISvoid #hEDS #EDS #MECFS #chronicpain #chronicillness #spoonie #spooniechat #longcovid #marfansyndrome #POTS #disabled