Stephanie BurgisThis is a really powerful piece from Sabrina Nordqvist that also makes me really want to read her new novel: https://lithub.com/the-power-of-giving-your-disabled-characters-a-happily-ever-after/
Fjord In Progress@jerzone I wonder if people film their rides like this and then watch the recordings while exercising on a stationary bike when unable to bike outside as a way to relive their own personal adventures.
#BikeTooter #SpoonieBikers #spoonie #disability #DisabledArtist
LillilumAs an avid reader, the chronic fatigue part of my #fibromyalgia stunted one of my favourite things in the world. When thinking consumes too much energy, reading literature is basically impossible. But! I found a solution! It’s not perfect but since the structure is so predictable i found that listening to YA romantic novels doesn’t require any spoons from me!
#spoonie #disability
#spoonie #disability
JAK und WilliFrage bezüglich meines Sauerstoffkonzentrators: Wäre es möglich, meinen Sauerstoffkonzentrator über eine smarte Steckdose ein und auszuschalten, anstelle des Netzschalter oder könnte das Gerät dadurch Schaden nehmen? Eine smarte Steckdose wäre für mich hilfreich, wenn ich nicht aus dem Bett rauskomme.
Scott Ninneman/SpeakingBipolarMy battery drains faster than yours.
That doesn't make me broken.
It just means I need to charge more often.
Resting is survival, not laziness. 🔋
#Spoonie #BipolarRecovery #RestIsProductive
Daily mindset inspiration for #BipolarLife: https://open.substack.com/pub/speakingbipolar/p/reframing-lazy-vs-recovering?r=y4fp9&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true
Tate BasildonChef + writer + lifelong bookworm with chronic illness: my Kindle isn’t a gadget, it’s freedom. I carry a whole library in my pocket. #ChronicIllness #Kindle #Reading #BookSky #Writers #DisabledReaders #Spoonie #Sarcoidosis #HeartFailure #AmReading
Why My Kindle Will Always Win Over Physical Books - Thoughts While Surviving Chronic Illness: Navigating Life With Sarcoidosis
As a chef, writer, and lifelong bookworm living with chronic illness, I’ve discovered that my Kindle isn’t just a gadget—it’s freedom. Between hospital visits, late-night writing sessions, and lazy Sundays with my pets, it lets me carry an entire ...
lez-anyaAfter the Chronic Migraines, Light Sensitivity was the next big symptom to develop for me.
Much in the same way that I've always suffered with migraines, I've always been very sensitive to light...but when all of this started with my body, it all kind of ramped up to an unmanageable, intolerable, chronic level.
I have my curtains and blinds closed most of the day, if not permanently. I removed the bulb from the "Big Light" in my room, to ensure nobody could ever turn it on unexpectedly. When I settle down for sleep, I have to cover even the smallest source of light to stpp it from peneterating my eyelids.
Bunlight, my bunny shaped nightlight, is set to the darkest red I can get her so she still illuminates the bad corner, but the light isn't as disturbing as it could be.
And I have only just come to the realisation (that sparked my need to write this post) that the brighter the light I am exposed to, the quicker my limited energy drains.
I keep my phone screen quite dark most of the time, occasionally having to increase brightness to make out detail in images, etc, and I noticed a little while ago that I was really starting to crash with it turned up just a little bit.
Brightness turned back down and, while obviously I'm still drained, I can feel myself more capable of...like, a little bit of life.
Tom KindlonThe Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal
https://www.youtube.com/watch?v=pgqi2W9dmLc
From February 2026 Massachusetts ME/CFS & FM Association newsletter
https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253
Comment: I haven't watched it myself so far
#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM
Anthony ArblasterIf you have #migraine and cold or cool can help, may I recommend a migraine beanie. Discovered this two days ago and it’s incredible. Already bought a second one to keep at work.
Available from your local international monopoly. https://amzn.eu/d/0hF2WHSe
#spoonie #chronicPain
Available from your local international monopoly. https://amzn.eu/d/0hF2WHSe
#spoonie #chronicPain
IceBeanie Migraine Relief Cap, As Seen on Shark Tank, Soft & Stretchy Gel Tension Headache Relief Cap, Extended Cooling Hangover Ice Hat, Odorless Cold Head Ice Pack Wrap, Headache Hat Migraine Mask : Amazon.co.uk: Health & Personal Care
IceBeanie Migraine Relief Cap, As Seen on Shark Tank, Soft & Stretchy Gel Tension Headache Relief Cap, Extended Cooling Hangover Ice Hat, Odorless Cold Head Ice Pack Wrap, Headache Hat Migraine Mask : Amazon.co.uk: Health & Personal Care
"I have long Covid. Don’t call my chronic disease a ‘journey’: I would sooner call the experience a bad trip"
Screenshot from February 2026 AMMES newsletter
https://www.statnews.com/2025/11/25/chronic-disease-journey-long-covid/
#chronicillness #LongCovid #hiddenillness #invisibleillness
#Spoonies #Spoonie #ChronicallyIll #MEcfs @mecfs @longcovid
