CPAP fact: You can have need of a CPAP without snoring! I had a good doc who was trying to diagnose my then-mysterious fatigue. When the usual tests showed nothing, they wanted me to do a sleep test.

I protested. I didn't perceive myself to have a sleep problem, and my husband never heard me snore. Finally I gave in and went, and sure enough I had sleep apnea. It was just quiet.

This wasn't the whole answer to my fatigue but it helped a great deal, and had that doc not pushed, I don't think I'd ever know this. Sleep tests are very easy now! No more nights at labs, covered in wires. You can take one at home with light monitoring. If you even suspect you could benefit, try it. They help a lot if you need them.

#ChronicFatigue #Fibromyalgia #MECFS #ChronicIllness #CPAP

A half-sized gluten-free loaf now tops £4.

https://www.theguardian.com/business/2026/may/30/gluten-free-basics-luxury-bread-prices-coeliac-diseasae

#GlutenFree #IBS #ChronicIllness #fibromyalgia #Bread

Embracing the nap life 🫩💤🛌🛌

#Fibromyalgia

RE: https://zeroes.ca/@datum/116642339052620266

I’ve had #fibromyalgia for 20 years. I can pinpoint when it started (I was taking 6.170 and thought it was RSI. I think I got a B in that class because I just couldn’t spend enough time at the computer to do all of the work).

This is the first time that I’ve tried to dedicate any significant time to trying to improve my quality of life since I was diagnosed 12 years ago. Because my concerns were dismissed as me being overworked, stressed or depressed. Even now it’s hard for me to explain to people what is going on. But the long COVID symptoms sound very similar and I’ve just been masking them for the last 20 years. It’s hard for everyone to believe because I’ve been reasonably “successful” in my life but I wake up and go to sleep in pain every day and have for 20 years. And doctors still don’t know how to do anything about it. There are only 5 medications that are FDA approved for fibromyalgia and and mostly they manage the symptoms because no one knows the cause.

RE: https://disabled.social/@ahimsa_pdx/116641683206006955

if there is one thing i’ve learned from the pandemic is that #LongCOVID isn't unique; that other viral infections ―especially #influenza― can leave us with long-term chronic illnesses after we’ve “gotten over” the infection.

got me thinking when did i start feeling achy all the time? am almost certain i developed #fibromyalgia after a bad #flu infection, turned into “walking” #pneumonia in the 1990s.

can we correlate the explosion of chronic diseases with the normalization of #flu infections?

Great to see this eletter in the Canadian Family Physician journal

"Exercise May Cause Harm in a Subset of Fibromyalgia Patients"

https://www.cfp.ca/content/exercise-may-cause-harm-subset-fibromyalgia-patients

[I have not included the full text in the screenshot]

#Fibromyalgia #MEcfs #PwME @mecfs