I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

(US)
Tell Congress: Fund ME/CFS Research Now

Deadline is April 15 I believe

https://solvecfs.quorum.us/campaign/157943/

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

"Professor Chalder Downgrades Definition of 'Recovery'" by David Tuller

https://www.sciencedirect.com/science/article/pii/S0965229926000506

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Sorry to hear that Former Never Mind The Buzzcocks host Mark Lamarr has chronic fatigue syndrome

"Mark Lamarr banned from driving despite claiming exceptional hardship"

https://www.corklive.ie/news/arts---entertainment/2046197/mark-lamarr-banned-from-driving-despite-claiming-exceptional-hardship.html

#MEcfs #CFS #ChronicFatigueSyndrome @mecfs

UK NHS England releases e-learning module “Supporting people with severe ME/CFS”

https://learninghub.nhs.uk/Resource/79376/Item

Screenshot from latest Science for ME weekly update

#SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

"What is ME?" by Dr. Anne Macintyre (January 2001)

I came across this when doing a clear out.

Descriptions are pretty timeless and unfortunately research progress has been slow.

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

1 of 2

ME Research UK:

As well as Mother’s Day, yesterday was long COVID Awareness Day.

A recent study found that COVID-19 related ICD codes were strongly associated with later ME/CFS diagnosis. Read more: https://tinyurl.com/yc74r732

Newer post: https://www.meresearch.org.uk/long-covid-awareness-day-2026/

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME