Mastodawn

Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid:

Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome

Also shows all the range of ME/#CFS symptoms

From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team
https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf

#MECFS @mecfs @longcovid

Tom Kindlon 1d ago

Something I shared elsewhere today

#MEcfs #PwME #ME #MyalgicE
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Adrian 1d ago

Do you see ME? Painting by Mascha Delana in exhibition "Unbroken", featuring artists suffering from ME. Treehouse Amsterdam, May 2026.
https://www.maschadelena.nl/
#amsterdam #unbroken #meCFS #chronicFatigueSyndrome #chronicFatigue #ongebroken #meCVS #MaschaDelena #ndsm #amsterdamNoord

Tom Kindlon Apr 24

(Florida, USA)

A research study that has been trying to reach its recruitment target for a long time.

Requires 2 in-person visits.

https://clinicaltrials.gov/study/NCT06211062
https://redcap.nova.edu/redcap/surveys/?s=9NP434FLJXAFLY8Y

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #ME #MyalgicE
@mecfs

Show thread

Tom Kindlon Apr 23

8/
This article goes beyond the press release:
“500 People Who Died With Chronic Fatigue Syndrome Shared 4 Major Life Themes”

https://www.sciencealert.com/500-people-who-died-with-chronic-fatigue-syndrome-shared-4-major-life-themes

#mecfs
#CFS #ChronicFatigueSyndrome

@mecfs

500 People Who Died With Chronic Fatigue Syndrome Shared 4 Major Life Themes

A disease like chronic fatigue syndrome, also known as myalgic encephalomyelitis (CFS/ME), can fundamentally change a person's life.

ScienceAlert

Show thread

Tom Kindlon Apr 23

“On the theme of personal burden and quality of life, another stated, ““She said, “My life has become an inhumane existence.” She left a husband and two teenaged children whom she referred to when she said, “I believe they have lost their mother to ME.””

@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing

Tom Kindlon Apr 20

A tragic cautionary tale that was posted on my Facebook page. 😢

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

Tom Kindlon Apr 20

Open Medicine Foundation: A new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count

https://www.omf.ngo/introducing-ctn-lite/

https://docs.google.com/forms/d/e/1FAIpQLSeTmvjcIAM9xWEIvJXuBx_L99wmBHqwYuJ2xOwjQOtGkZl8Zw/viewform

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Tom Kindlon Apr 19

RE: https://mastodon.ie/@IrishMECFSAssociation/116431267742450459

Hope to see a few of you at this 👋.

#MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @longcovid @fedigroups.social

Dave Underwood Apr 15

I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband