A post on my dinner party yesterday for what it is worth

#MEcfs #PwME @mecfs

RE: https://disabled.social/@ahimsa_pdx/116360323389513800

🚨 Reminder: Two online storytelling workshops, to help prepare for the 2026 Millions Missing campaign, are scheduled for this week!

Two sessions with the same information - pick the one that fits your schedule.

First one is tomorrow, Tuesday, April 14.

Second one is Thursday, April 16.

Registration links in quoted post, lots more details about the campaign can be found in the rest of that thread.

(fixed day of week error!)

@mecfs

#MEcfs #PwME #LongCovid #PwLC #MillionsMissing #MEAction

Hope for ME and Fibro Northern Ireland:

Videos are now available from the Newry conference 'Collaboration for Change' held on 27th March. Speakers include Professors Chris Ponting and Tom Trinick and Dr William Weir.

https://www.youtube.com/@hope4mefibroni566

#mecfs #pwme @mecfs

Hope4MEFibroNI

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

YouTube

ME Action: Join Us for #MillionsMissing 2026!

https://www.meaction.net/millionsmissing26

Also discusses there are plans for the UK for May

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs

New from Germany

3D Virtual Reality Performance Metrics as a Future Fatigue Biomarker in Myalgic Encephalomyelitis/Chronic Fatigue
Syndrome (ME/CFS)

https://www.mdpi.com/2227-9059/14/4/855

#MEcfs #PwME #ME #MyalgicE
@mecfs

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of April 6 - 12:

Topics:
News, advocacy and articles
Coming events
Research news and commentary
Published research

https://www.s4me.info/threads/news-in-brief-april-2026.49767/#post-686420

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC

News in Brief - April 2026

This thread has a Science for ME 'News in Brief' post for each week in April 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Science for ME

One month to go to May 12, International ME (or ME/CFS) Awareness Day.

A great opportunity to raise awareness and understanding. Also the day (and the associated awareness week/month) can be used for lobbying, fundraising, and other forms of activism.

#MEcfs #PwME #ME #MyalgicE
@mecfs

ME Research UK:

Researchers have looked at survey data from over 9,000 people across 10 European countries and observed two peaks in ME/CFS onset.

Read more: https://tinyurl.com/3utbebt5

#MEcfs #PwME #CFS @mecfs

Massive pain in my left shoulder and arm woke me from my siesta. I've lived for 30+ years with constant pain, manage it with drugs and willpower, fuck it and get on with it. But every now and then it explodes like a day-changing kick in the balls. Drugs. Too late but still necked them. Lying here in massive fucking bastard pain. Life with #ChronicIllness #Arthritis #pwME

(US)
Tell Congress: Fund ME/CFS Research Now

Deadline is April 15 I believe

https://solvecfs.quorum.us/campaign/157943/

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome