RE: https://disabled.social/@ahimsa_pdx/116360323389513800
🚨 Reminder: Two online storytelling workshops, to help prepare for the 2026 Millions Missing campaign, are scheduled for this week!
Two sessions with the same information - pick the one that fits your schedule.
First one is tomorrow, Tuesday, April 14.
Second one is Thursday, April 16.
Registration links in quoted post, lots more details about the campaign can be found in the rest of that thread.
(fixed day of week error!)
Hope for ME and Fibro Northern Ireland:
Videos are now available from the Newry conference 'Collaboration for Change' held on 27th March. Speakers include Professors Chris Ponting and Tom Trinick and Dr William Weir.
ME Action: Join Us for #MillionsMissing 2026!
https://www.meaction.net/millionsmissing26
Also discusses there are plans for the UK for May
Image is from the AMMES April 2026 newsletter
New from Germany
3D Virtual Reality Performance Metrics as a Future Fatigue Biomarker in Myalgic Encephalomyelitis/Chronic Fatigue
Syndrome (ME/CFS)
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of April 6 - 12:
Topics:
News, advocacy and articles
Coming events
Research news and commentary
Published research
https://www.s4me.info/threads/news-in-brief-april-2026.49767/#post-686420
One month to go to May 12, International ME (or ME/CFS) Awareness Day.
A great opportunity to raise awareness and understanding. Also the day (and the associated awareness week/month) can be used for lobbying, fundraising, and other forms of activism.
ME Research UK:
Researchers have looked at survey data from over 9,000 people across 10 European countries and observed two peaks in ME/CFS onset.
Read more: https://tinyurl.com/3utbebt5
(US)
Tell Congress: Fund ME/CFS Research Now
Deadline is April 15 I believe
https://solvecfs.quorum.us/campaign/157943/
Image is from the AMMES April 2026 newsletter
#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Tom Kindlon
Ahimsa
Science for ME Forum
David Bridger