Irish ME/CFS AssociationThanks very much again to Dr Bansal for his tour of Ireland.
The feedback we have seen has been collated here
https://1drv.ms/b/c/94454629db95df81/IQDfQF4_xBEgQaBe3iO-Mn7OAQNAVB2TAcLL153EBZd5lJI?e=redtcP
Feel free to give further feedback.
Alex 
It's surprising just how many healthcare providers (at least in my part of the USA) don't know what ME/CFS is, but have heard of the old term chronic fatigue syndrome without knowing more. Since chronic fatigue is just one part of the condition, they are doing a disservice to patients by not being better educated.
TG4’s Moving West on 7:30 pm, June 9 may mention ME.
Jackie Bonass (with ME) has said she "talked a fair amount about being ill with ME so hopefully that will make it into the final edit a bit"
It includes English on-screen subtitles.
Tone 🦋Har innteke horisontalen dei siste vekene. 🛏️
Høyrer på lydbøker, radio, retrogamar dei enklaste spela på handholdten, kosar med pusen og ventar på å kunne hekle _alle_ prosjekta om x antal veker/månadar.
Over eit halvt år i strekk med å kunne sitje oppreist heile dagen alle dagane frå i fjor haust til medio mai i år gjev godt håp for framtida.
Tom KindlonFrom @MayaLongCovid on X/ @mayabee24 on IG
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Leading to Assisted Suicide in a Patient in Her Late 30s: A Case Report
A case report detailing the failure of medical care in a young Swiss woman, that resulted in the patient deteriorating to an extremely severe level of ME/CFS.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Leading to Assisted Suicide in a Patient in Her Late 30s: A Case Report
A patient in her late 30s developed severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) following an Epstein-Barr virus infection. No distinct autoimmune or autoinflammatory disorder could be identified as the underlying cause of her symptoms, as the observed constellation of cytokine elevations (IL-2, IL-6, and IFN-γ) was not consistent with any known or established disease entity. Despite comprehensive multidisciplinary treatment over two years, including medical, psychological, and rehabilitative approaches, her condition deteriorated, and treatment-related hypersensitivities emerged. The severity and progressive nature of her symptoms, compounded by the absence of effective therapeutic options, ultimately led the patient to pursue assisted suicide.
There are a lot of rainy days in Ireland so I use our little porch for shelter and hot water bottles to give warmth, or otherwise I would have to spend all day stuck inside for most days of the year.
Haven’t been well enough to go for a walk in nearly 32 years.
[The hot water bottles will be going under the blankets when I lie down]
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #spoonie #chronicillness
Colin-Roy HunterInternational #MEAwarenessMonth has just ended and, with the first day of June, I, a #pwME #SevereME, washed myself at my basin for the first time this year. Lovely hot water! #MECFS #MyalgicEncephalomyelitis
New 3-minute video in English from the Norwegian ME Association
PEM [Post Exertional Malaise] and "energy coins" - a short explanation of PEM
PEM and "energy coins" - a short explanation of PEM
Science for ME ForumOur latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 25 - 31.
https://s4me.info/threads/news-in-brief-may-2026.50158/#post-696601
Become a forum member if you'd like to join the discussion!