Bei Fragen meldet euch gerne unter dem Stichwort ANE-PROTECT per Mail bei den Studienorganisatoren: [email protected]

Link zum Screeningfragebogen: https://redcap.link/ANE-ERW

#MECFS #pwME #Medizin #Studie #MedicalResearch #PublicHealth #CallForParticipants #PostViral #Regensburg

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ME-ANE-PROTECT - Studie zu Auswirkungen von Operationen und Anästhesie bei ME/CFS

ME Association:

Euro News: Long Covid could cost up to €115.3bn per year over the next decade, study shows

"Long Covid could cost between €58.54 billion ($68 billion) and €115.3 billion ($135 billion) annually across OECD countries, including 21 EU member states, in the next decade, according to recent findings."

https://www.euronews.com/my-europe/2026/04/13/long-covid-costs-could-cost-up-to-1153bn-per-year-over-the-next-decade-study-shows

Information on OECD countries here: https://www.oecd.org/en/about/members-partners.html

#MECFS #LongCovid #PostCovidMECFS #EconomicCost

How is long COVID impacting the EU’s economy?

Six years after the COVID-19 pandemic began, its economic impact lingers, with long COVID disrupting the employment of around one in five workers. #EuropeInMotion

euronews

Many of you have probably made the experience, that it is easier to think while lying down.
I've made this experience even early, when I barely had any symptoms of orthostatic intolerance and wouldn't even notice it most of the time, unless I was upside down.

But until recently, I haven't paid attention to this also affecting executive functions more, that I would have expected.
Making decisions, making plans and starting a task "mentally" is easier from bed.

#MECFS #OrthostaticIntolerance

In the summer, past me dried a bunch of herbs. Late fall me made them into a container of herbal tea. Spring me is really grateful for this cup of tea. I can still do things. MECFS sucks, but I still can make nice things. Very slowly.

#mecfs #ouchThatsTasty

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Perioperative outcomes in myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://www.medrxiv.org/content/10.64898/2026.04.06.26348924v1

Screenshot from latest Science for ME weekly update

#MEcfs #PwME 
@mecfs

(Not a recommendation)
The Canadian Pain Society's 2026 conference presented two posters from the McMaster group.

https://www.s4me.info/threads/physical-activity-for-myalgic-encephalomyelitis-chronic-fatigue-syndrome-a-clinical-practice-guideline-2026-kirsh-et-al.49684/

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

“Trial By Error: Some Things I’ve Read Recently…” By David Tuller  / 9 April 2026 

https://virology.ws/2026/04/09/trial-by-error-some-things-ive-read-recently-4/

#MEcfs #LongCovid @mecfs @longcovid

Trial By Error: Some Things I've Read Recently... | Virology Blog

By David Tuller, DrPH *This is a crowdfunding month at UC Berkeley. If you’d like to support my work, the link is here. ********** Julie Rehmeyer explores a ...

Professionell mit #PostCOVID & #MECFS umzugehen, bedeutet nicht nur, sie als Multisystemerkrankungen ernst zu nehmen, neue Inhalte zu lernen,an Verständnis und Empathie zu appellieren, sondern auch, die eigenen Beobachtungs-, Bewertungs- und Interventionsbedingungen zu reflektieren und zu verändern.
Eine dem Krankheitsbild gerechte therapeutische Begleitung bei #Post-COVID und #MECFS zeigt sich nicht primär in interdisziplinärer „Intervention“, sondern in der Qualität professioneller Beobachtung, Risikoabwägung, Grenzachtung und teilhabeorientierter Unterstützung unter realen Belastungsgrenzen.
War heute mal wieder bei einer neuen Physio und es war soooo gut hat mich mit me/cfs Voll ernst genommen und ist auch trauma aware
Wies mit trans aussieht weiß ich nicht da ich mich nicht getraut habe zu sagen dass ich andere heiße als aufm Perso steht
Warum kann nicht jede Physio so sein
#mecfs