Mastodawn

After playing telephone tag with a nurse from my POTS drs office I was told to double up on my antidepressant over the weekend and that she would call me on Monday morning to see how I am feeling. Glad I have the weekend to acclimate. Hopefully I feel back to baseline by Monday. #pots #dysautonomia

Andreas Sikkema 16h ago

Got a call from a UK number from a person who was either phishing or really calling wrong number. But I can’t find the call in any of the “recent calls” lists (Phone app, Signal, WhatsApp, etc). How? Are these people playing weird protocol games so their calls don’t show up afterwards? As a calling party?

A called number has a little bit of leeway here, but the calling party doesn’t AFAIK.

#telephony #pots #mobile #sip

quagga 🦆1d ago

lol i literally got a high HR alert from … putting on one (1) compression sock #POTS

Emily Johnson 1d ago

#MCAS #POTS #Mito people: my body keeps rejecting sources of (dairy-free lactose-free gluten-free) protein and calcium as so many of them have histamine, and in general my body just doesn’t like metabolizing some things

Give me your best high absorption options, please thank you

Amy Maybe 1d ago

Ugh, that was the worst commute in a while. I had my #bike and had to stand the whole 40 minutes, which is really hard with #POTS. Someone trapped me in the corner, so I couldn't really move at all. And I was wearing my coat and got overheated (another #POTS thing.) Was feeling quite wretched by the time I got to work. Time to chug ice water. 😑 #BikeTooter #BikeDC

Things David Likes 3d ago

The Restaurant by Roberto Pazzi

https://tmblr.co/Z7VXvxj4lXhx8a00

#village #travel #group #people #young #girl #photography #night #food #pots #place #street #restaurant #africa #madagascar #portrait #culture #outdoors #reportage #sony #horizontal #looking #camera #flickr #thingsdavidlikes

quagga 🦆5d ago

would be amazing if eating breakfast wasn’t cardio exercise ugh #POTS

Julia 5d ago

This is my favourite podcast on complex chronic conditions so far:

🎙️Make Visible: Chronic Illness Explored

Homepage:
https://madevisible.podbean.com/

Themes included:

ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more.

#mecfs
#postcovid
#LongCovid
#postvac
#podcast
#makevisible

Make Visible: Chronic Illness Explored | Visible with Emily Kate Stephens

Shining a light on invisible illness.<br /><br />Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, E...

Domando Al Lobo 🐺6d ago

⚠️ Update: si un enlace no funcione o hay algún error en el texto avisadme, por favor. Ya está arreglado y podéis leerlo.
✩₊˚.⋆☾𓃦☽⋆⁺₊✧ ✩
Y de noche recuerdo esta #poesia sobre la luz, los colores y el sol. Mis ex.

#203 Oculta entre las sombras, la luz sigue ahí 🐺https://domandoallobo.blogspot.com/2016/08/203-oculta-entre-las-sombras-la-luz.html #blog

#DiaDeLaPoesia #WorldPoetryDay #poema #Lupus #Sjögren #EncefalomielitisMiálgica #pwME #Fibromialgia #Migraña #POTS #fotofobia #fotosensibilidad #mastoblog #mastobloggers #mastobloggers

starryeyes Mar 19

I'm really struggling with chronic pain due to my genetic disorders, am not able to afford meds, & I'm *not* okay.

If anyone can help, that would be so appreciated, but no one has to! I'm sorry I'm even asking. I need $70. I hate asking for help, I feel like a jerk, but I don't have another option.

PayPal paypal.me/motleychick
Cashapp $izzi6
Venmo @egdirbretla

#NEISvoid #hEDS #EDS #MECFS #chronicpain #chronicillness #spoonie #spooniechat #longcovid #marfansyndrome #POTS #disabled