Great to see this eletter in the Canadian Family Physician journal
"Exercise May Cause Harm in a Subset of Fibromyalgia Patients"
https://www.cfp.ca/content/exercise-may-cause-harm-subset-fibromyalgia-patients
[I have not included the full text in the screenshot]
Very interesting talk. A novel idea for me is that 'sickness behaviour' neural circuits being involved in Post Acute Infection Syndromes (PAIS).
https://youtube.com/watch?v=7TFjcOIshxA
It would explain how non infectious injuries or toxins could cause MECFS.
He also explains really well how pairs of processes can get stuck in positive feedback loops, leading to pathological outcomes.
eg. Inflammation damaging mitochondria, which leads to more inflammation, etc.
Today is International Awareness Day for Chronic Immunological and Neurological Diseases such as ME/CFS and Fibromyalgia.
Whether you are affected by one of these diseases, or know someone who is (Alzheimer's, Autism and Epilepsy also belong in this category, as well as many others), hopefully these conditions will be given more research and funding in the future.
It is held on Florence Nightingale's birthday as it is believed she had MECFS.
RE: https://kolektiva.social/@aredridel/116552279213533823
This is helpful, I’ll be telling my doc about it.
By this metric I’m at a 7 about 90% of the time (an 8 the rest of the tine). A really good day is a 6. I haven’t been at a 4 since 2015 or so. My last time at a 0 was 2007.
Crash may be easing up? I really dislike how hard it can be to tell.
At any rate, it's a gorgeous day. Am plotting how to both rest and do things, simultaneously. This is the alchemy of chronic illness.
Shout out to Opera Mariposa's #mecfs fundraising campaign in the month of May:
Opera Mariposa's annual Benefit + Awareness Month is From May 1 - June 1 2026. Their digital charity extravaganza is at
https://operamariposa.com/benefit-awareness/#programming
It features an online arts showcase, a digital tea party social on May 17th, exclusive merch illustrated by a chronically ill artist, some sweet prizes, and more!
100% of proceeds support the ME | FM Society of #BC and the rising number of people affected by ME/CFS, #LongCovid, and #Fibromyalgia. There are free and by-donation ways to take part. Contributions up to $3,000 will be tripled.
I know the #OperaMariposa leaders personally. They are wonderful people. They have been raising funds for ME/CFS research for years. They make opera while being chronically ill, and provide access to disabled performers excluded from other arts companies.
I encourage you to check out the digital extravaganza at that URL.
Demo tape to get back into making music in spite of my chronic pain.
sickhurtfuck.bandcamp.com/album/affliction
#alternative #experimental #fusion #jazz #metal #trap #unitedkingdom #fibromyalgia #bandcamp
Si vous voyez des monuments ou des bâtiments illuminés en bleu le 12 mai c'est pour sensibiliser à la fibromyalgie.
C'est potentiellement partout en France.
La ville de Mérignac participe à l'opération sans , hélas, beaucoup plus de communication que ce petit encart dans le journal de la ville.
#fibromyalgie #fibromyalgia
La France En Bleu - Journée Mondiale de la Fibromyalgie - Infos pratiques Angers - Angers.maville.com
https://angers.maville.com/pratique/infos_details_-vie-quotidienne-operation-solidarite-la-france-en-bleu-journee-mondiale-de-la-fibromyalgie_8503877-44_agendaDetail.Htm
Tom Kindlon
Pinchy63 🇨🇦
robloblaw
chestas
Hollie
(❍ᴥ❍ʋ)
Jim DeLaHunt
SICKHURTFUCK
optimistique33