𖥔.ཐི༑ Alexa ༑ཋྀ.𖥔What it’s like living in a household of spoonies. Pills, pills and more pills. 💊
#Ramblings #video #spoonie #meds #medication #chronic-illness #chronic-pain #disabled #mental-illness #invisible-illness #invisible-disability #out-of-spoons
#Ramblings #video #spoonie #meds #medication #chronic-illness #chronic-pain #disabled #mental-illness #invisible-illness #invisible-disability #out-of-spoons
Tom KindlonFrom @onelife_livedwell on IG:
The PACE trial shaped an entire research paradigm, but the methodology tells a more complicated story. This is what happens when lived experience and research conclusions don’t align and why how we define things matters so much. #invisibleillness #invisibleillness #spooniesupport #mecfs #longcovid @mecfs @longcovid
The PACE trial shaped an entire research paradigm, but the methodology tells a more complicated story. This is what happens when lived experience and research conclusions don’t align and why how we define things matters so much. #invisibleillness #invisibleillness #spooniesupport #mecfs #longcovid @mecfs @longcovid
CamI just saw that and darn it’s right. So many times I’ve been told I’m exaggerating and its variations. I’ve not been accused of looking happy in a long time, though.
#chronicPain #disability #humor #invisibleIllness #meme #rareDisease
#chronicPain #disability #humor #invisibleIllness #meme #rareDisease
Youth Mental Health CanadaBut you don't look sick. Well, tell me what "sick" looks like and I'll try to get it right next time.
By Lisa
#mentalhealthhumor #funnymemes #copingwithhumor #humorheals #ymhc #mentalhealthawareness #mentalhealthmatters #invisibleillness
T.W.S.C.I.We remember diagnoses, heartbreak, miracles… but what about the quiet days between them? Living with sarcoidosis taught me the moments we forget may matter most. #ChronicIllness #Sarcoidosis #InvisibleIllness https://www.buzzsprout.com/2548730/episodes/18812441
The Forgotten Days: What Living With Sarcoidosis Taught Me About the Ordinary Moments Between the Milestones - Thoughts While Surviving Chronic Illness: Ramblings From a Chef Whose Body Constantly Rebels
We remember diagnoses, heartbreaks, and miracles—but what about the quiet days that carry us between them? Living with sarcoidosis has made me realize the most important parts of life might be the ones our memory quietly skips over.
Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds
Note: blue badge = UK name for disabled parking permit
Screenshot from AMMES March 2026 Newsletter
#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots
chestasA beautifully framed certificate acknowledging my amazing wife @CarolineG has been accepted by OBOD as a fully fledged Druid. It took her seven years while she was battling with fibromyalgia and other health issues.
With Emily-KateWhen Pain Becomes Routine
Living at a constant “5” makes emergencies harder to see. A neglected splinter for 3 months became infected—all because pain felt normal. Don’t dismiss your symptoms. #ChronicPain #HealthAwareness #InvisibleIllness #SelfAdvocacy #CareForYourself
Living at a constant “5” makes emergencies harder to see. A neglected splinter for 3 months became infected—all because pain felt normal. Don’t dismiss your symptoms. #ChronicPain #HealthAwareness #InvisibleIllness #SelfAdvocacy #CareForYourself
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"The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"
https://onelifelivedwell.substack.com/p/the-quiet-art-of-extending-a-life
Another thoughtful post from this OT who specialises in ME/CFS & long Covid
She calls such devices "capacity extenders".
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots
#Disabled
#Disability
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Another thoughtful blog post from this blogger:
"Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong). It’s complicated!" by K. Johnstone
https://mecfs.substack.com/p/some-people-feel-validated-by-an
#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
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