That’s what people say when they’ve never lived it.

What you don’t see:

The nights without sleep

The pain that doesn’t switch off

The energy it takes just to look “normal”

The breakdowns that happen in silence

You’re seeing 5% of the reality.

The other 95% ?

It’s hidden — because no one makes space for it.

Before you judge someone’s pain… understand that survival often looks like “fine.”

#InvisibleIllness #ChronicPain #Disability #InjuredWorkers

Some days, getting out of bed is the biggest thing I accomplish.

I’m trying to learn that it still counts.

For those of us living with chronic pain, fatigue, or invisible illness, surviving the day can take more strength than people realize.

Do you celebrate those days or beat yourself up for them? 😴

#ChronicPain #ChronicIllness #InvisibleIllness #Spoonie #Fatigue #Disability #selfcompassion

"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful

#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

I wanted to go.
My body said no.
Now I’m home fighting the guilt on top of the pain.

If you deal with chronic pain, do you push through… or stay home?

#ChronicPain #ChronicIllness #InvisibleIllness #Spoonie #SpoonieLife #ChronicPainAwareness #DisabilityAwareness

This YouTube video closes with a very catchy saying that surprisingly I've never heard said before: "Don't judge a disability by its visibility."

This is a great educational point for people with invisible illnesses like me to get behind and leverage!

https://www.youtube.com/watch?v=XoKmJA-onqg

#DIsability #InvisibleIllness

What is PoTS?

YouTube

1/2

They think it’s a vacation..

They picture beach chairs, easy money, no worries....

Reality?

It’s denial letters !

It’s endless paperwork !

The non-stop advocating for yourself while TRYING to manage health- no easy feat!

It’s appointments you can’t miss and pain you can’t escape !

It’s being treated like you’re lying just to survive !

NOBODY is “living it up” on benefits !

Full Stop !

#Disability #InvisibleIllness #SystemFailure

From @onelife_livedwell on IG:
The PACE trial shaped an entire research paradigm, but the methodology tells a more complicated story. This is what happens when lived experience and research conclusions don’t align and why how we define things matters so much. #invisibleillness #invisibleillness #spooniesupport #mecfs #longcovid @mecfs @longcovid
I just saw that and darn it’s right. So many times I’ve been told I’m exaggerating and its variations. I’ve not been accused of looking happy in a long time, though.
#chronicPain #disability #humor #invisibleIllness #meme #rareDisease

But you don't look sick. Well, tell me what "sick" looks like and I'll try to get it right next time.

By Lisa

#mentalhealthhumor #funnymemes #copingwithhumor #humorheals #ymhc #mentalhealthawareness #mentalhealthmatters #invisibleillness