Show threadTom Kindlon4d ago

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So when something feels harder to name or hold, it’s often not about the reality of the symptoms, but about the way we see them. #chronicillnesssupport #invisibleillness #advocacy #spooniesupport #occupationaltherapy

Tom: Doesn’t reference ME/CFS or Long Covid but does mention Fibromyalgia

#Fibromyalgia

Tom Kindlon4d ago

From @onelife_livedwell on IG: Let’s talk about the disease prestige hierarchy, or the way some diagnoses are consistently seen as more legitimate and easier to recognize than others. Research shows this pattern holds over time, shaping what gets attention, funding, and clinical confidence. Layered into it is disability bias, the quiet pull to take conditions that aren’t easily fixed less seriously.

#chronicillness #invisibleillness #spooniesupport
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Tom Kindlon4d ago

New:
"How visible and hidden disabilities are treated differently in clinical practice"

From:
Non-visible disability in the medical curriculum: what medicine overlooks, patients inherit

https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2026.1701393/full

#Hiddendisabilities #invisibleillness #Invisibledisability #hiddenillness #chronicillness #MEcfs #PwME #ME #MyalgicE
@mecfs

Tom Kindlon6d ago

"Psychologizing kids with asthma, in the past and today: Attributing physical illness to a neurotic personality isn't new." by K. Johnstone (Apr 18, 2026)

https://mecfs.substack.com/p/psychologizing-kids-with-asthma-in

#chronicillness #invisibleillness

Kool BadgesApr 15
Invisible Illness Club Badges! 75p each https://www.koolbadges.co.uk/invisible-illness-club-p-11069.html #invisibleillnessclub #invisibleillness #badges #koolbadges #25mm #youarestrong #kindness #smallbiz #ChronicIllness #SpoonieLife #HiddenDisability #ChronicPain #Fibromyalgia #ChronicFatigue #Endometriosis
Show threadTom KindlonApr 11

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From:
"How medical training promotes medical gaslighting" by K. Johnstone

https://mecfs.substack.com/p/how-medical-training-promotes-medical

#hiddenillness #invisibleillness
@longcovid @mecfs

Tom KindlonApr 11

🧵
"How medical training promotes medical gaslighting" by K. Johnstone

https://mecfs.substack.com/p/how-medical-training-promotes-medical

This is not illness specific.

#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

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DrizzleApr 10
Work is going to be very difficult tonight. It's only 5 hours but it'll feel like a full 8 with how bad my fatigue is today. Wish I could sit down at work when not helping customers. #pots #invisibleillness
Kimberlee PleziaApr 9
“I’m not lazy. I’m managing a body that doesn’t cooperate.”
That’s the part people miss with chronic pain and invisible illness. Rest is often survival, not laziness.
What’s something people assume about you that couldn’t be more wrong?
#ChronicPain #ChronicIllness #InvisibleIllness #disability
LissaApr 5

That’s what people say when they’ve never lived it.

What you don’t see:

The nights without sleep

The pain that doesn’t switch off

The energy it takes just to look “normal”

The breakdowns that happen in silence

You’re seeing 5% of the reality.

The other 95% ?

It’s hidden — because no one makes space for it.

Before you judge someone’s pain… understand that survival often looks like “fine.”

#InvisibleIllness #ChronicPain #Disability #InjuredWorkers