Mastodawn

Great to see basic research leading on to drug repurposing studies like this, funded by philanthropy

"Global clinical trial to test existing drugs as long COVID treatments"

https://www.eurekalert.org/news-releases/1081519

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

Global clinical trial to test existing drugs as long COVID treatments

Spanning four continents and enrolling hundreds of people, a new clinical trial led by scientists from Western and the Schmidt Initiative for Long Covid will test the effectiveness of two anti-inflammatory medicines as potential treatments for long COVID.

EurekAlert!

Tino Eberl 12h ago

In #Deutschland wurden bislang knapp 600 #Corona-Impfschäden offiziell anerkannt. Insgesamt wurden über 14.000 Anträge gestellt.

Das entspricht einer Quote von rund 6,2 %. Voraussetzung für die Anerkennung ist ein mindestens sechs Monate anhaltender Schaden. Insgesamt wurden zwischen 2020 und 2023 über 192 Millionen #Impfdosen verabreicht.

https://www.tagesschau.de/wissen/gesundheit/impfschaeden-anerkennung-100.html

#COVID19 #Impfschaden #Gesundheitspolitik #RKI #Impfung #Langzeitfolgen #Corona #LongCovid #PostCovid #MECFS #POTS #Impfstoff

Knapp 600 Fälle von Corona-Impfschäden anerkannt

Millionen Menschen haben sich gegen das Coronavirus impfen lassen und nur leichte Nebenwirkungen verspürt. Doch einige Patienten trugen bleibende Schäden davon. In knapp 600 Fällen wurden diese einem Bericht zufolge anerkannt.

tagesschau.de

Tom Kindlon 17h ago

From Spain:

SARS-CoV-2 post-acute sequelae linked to inflammation via extracellular vesicles

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2025.1501666/full

Screenshot is from the latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

Frontiers | SARS-CoV-2 post-acute sequelae linked to inflammation via extracellular vesicles

Frontiers

Tom Kindlon 18h ago

Reporting on ME, ME/CFS, Long Covid, & so on... crowdfund campaign via Berkeley University to secure David Tuller's important work and position for further 6 months @david

https://crowdfund.berkeley.edu/project/46120

Screenshot is from the latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

David Tuller's Trial by Error Spring 2025

Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Spring 2025. Your gift will make a difference!

UC Berkeley

Show thread

Tom Kindlon 18h ago

2/
"What we saw in people with #longCOVID is they were burning 20, 30 percent more energy than someone that we would expect for their height, weight, gender and age," he said. "So even though we were asking them to sit very still and not use any energy at all, their bodies were working really, really hard to maintain that."

@longcovid
#PASC #PwLC #postcovid
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 @novid #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19

Tom Kindlon 18h ago

"Leading long COVID researcher fears it could become a national epidemic"

https://ny1.com/nyc/all-boroughs/news/2025/04/16/leading-long-covid-researcher-fears-it-could-become-national-epidemic

Screenshot is from the latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

Leading long COVID researcher fears it could become a national epidemic

CDC data shows 5% of the adult population has long COVID right now.

Show thread

stilllearning 1d ago

Zurücksetzen auf Werkseinstellungen, löschen aus der App und völlig neu wieder einrichten hat die Funktionsfähigkeit wieder hergestellt. Leider unter komplettem Datenverlust - schade, weil die inzwischen riesengroße Verbesserung der Post-COVID-Symptomatik in den Daten erkennbar war. Das hatte Bedeutung für mich, weil es mir, als ich die Uhr vor 2 Jahren gekauft habe, noch sehr schlecht ging. Aber was soll’s 🤷‍♀️, häng dein Herz nicht an Kleinelektronik …
#Garmin #PostCovid

Tom Kindlon 1d ago

"I'm 18 and bed bound with long Covid [and ME/CFS]. This is what it's like to be held hostage by your own body"

https://www.bigissue.com/opinion/long-covid-bed-bound-health-emily-may-stephenson/

Screenshot is from the latest Science for ME weekly update

I’m 18 and bed bound with long Covid. This is what it’s like to be held hostage by your own body

After contracting Covid Emily-May, unlike her friends, did not recover and was left with several debilitating conditions.

Big Issue

Tom Kindlon 1d ago

Workshop on Post-COVID ethics: Video recordings and short summaries are now available

https://www.ru.nl/en/about-us/news/postviral-ethics-rcps-pcnn

Screenshot is from the latest Science for ME weekly update

Postviral Ethics - RCPS & PCNN | Radboud University

Read the workshop report and check out the presentations.

Tom Kindlon 1d ago

‘We Don't Have to Prove to People How We're Feeling’: Understanding the Role of Peer Support Groups in Countering Epistemic Injustices in Long COVID at a US Centre

Free full text:
https://onlinelibrary.wiley.com/doi/10.1111/hex.70266

@longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain