FriekeHoort zegt het voort...
Protestactie om een heel grote groep chronisch zieke mensen te ondersteunen.
Sibylle Dahrendorf🎥 #Documentary #ChronicallyIgnored
Only a few days left until June 20th. I would be very grateful for sharing, so that as many people as possible can be reached! Thank you so much for your support!
A Wake-Up Call To Politics, Medicine & Research
#POTS #SmallFiber #SIBO #Autoimmunity #MCAS #FQAD #FQToxicity #FlagylToxicity #EDS #hEDS #Marfan #CCI #LongCovid #LongLyme #VacInjury #LongList #LongTragedy
Film Link here:
🎥https://vimeo.com/ondemand/chronicallyignored
Sliding further down into PEM today 🫨
P.s. If you're on Instagram, I recommend me_in_a_comic (fennine) who makes great cartoons showing chronic illness life.
When a picture says more than a thousand words...
#LongCovid #pwME #longlyme #QVS #SEID
Tom KindlonFrom the Massachusetts #MECFS & FM Association e-newsletter:
(#Boston, #Massachusetts)
MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls
Links in image
https://talresearchgroup.mit.edu/mitmaestro
https://intake.mit.edu/surveys/?s=WLPFP8M9YD73WXY9
Wes Ely MD 
3/fin
This study by @maayanLevy_lab is a marvel of dozens of avenues of science that all point to a greater understanding of the realities of #LongCOVID as a chronic disease state.
Through work like this, we legitimize not only LC, but also #MECFS #LongLyme etc & take one step closer to finding medical solutions for past & future post-infectious states + syndromes like #PICS
bit.ly/3Fjx3Jp
ahimsaThe PolyBio Fall 2023 Symposium is scheduled for October 20, 1 to 5 pm, EST
A speaker list, with links to their projects, has been posted on the Science for ME forum:
https://www.s4me.info/threads/polybio-fall-2023-symposium.35177/
PolyBio is "a 501(c)3 transforming how infection-associated chronic conditions like LongCovid, ME/CFS & Long Lyme Disease are studied, diagnosed and treated"
Description from their website -
https://polybio.org/
#LongCovid #PASC #MEcfs #LongLyme #ChronicIllness
#MedMastodon
Yale School of Medicine Post-Acute Infection Syndromes Will Be the Focus of New YSM Center
On the newly launched Center for Infection & Immunity (CII) at Yale created by Akiko Iwasaki, PhD, which will investigate ME together with #LongCOVID and #posttreatmentLymedisease
@mecfs #MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #postcovid #longlyme #lyme
1/
LymeDisease.orgA new way of thinking about persistent infections, such as long COVID and chronic Lyme disease
“Infection-associated chronic illness” sounds like a mouthful.
But using that name has sparked a paradigm shift in how researchers and others view ailments that can keep people sick for years—with few or no options for getting better.
READ MORE: https://www.lymedisease.org/new-way-of-thinking-long-haul/
#longcovid #longlyme #chronicillness #chronicfatigue #chronicdisease #mecfs #ms #pots #dysautonomia
Erin C. Sanders, NP This is what hope looks like ♥️ h/t @microbeminded2 and all the teams involved
#pwME #pwLC #LongCOVID #LongLyme #SARSCoV2
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RT @polybioRF
PolyBio is excited to be leading the LongCovid Research Consortium (LCRC): a global scientific collaboration to rapidly & comprehensively study #LongCovid disease mechanisms, with a focus on SARS-CoV-2 reservoir (https://polybio.org/longcovid). LCRC projects we are supporting include:
https://twitter.com/polybioRF/status/1645800172084158469
Tired of the infighting.
It is *NOT* a productive use of our collective limited energy and spoons.
We will either rise together by demanding and inspiring revolutionary change or be left for dead as a lot.
Listen to disabled people. Please. #pwME #pwLC #longCOVID #longLyme
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RT @ErinSandersNP
@IppokratisAnge1 So ME/CFS is an umbrella that you may fall under if you have long COVID, but you may not. And either is ok. Because we a…
https://twitter.com/ErinSandersNP/status/1574971761841827840
Erin C. Sanders, MSN, WHNP-BC (She/Her) on Twitter
“@IppokratisAnge1 So ME/CFS is an umbrella that you may fall under if you have long COVID, but you may not. And either is ok. Because we are still learning about both. And both cause tremendous unnecessary suffering. And it’s past time we allocate resources to figure out why and to help them all.”