"Intersectionality, healthcare and myalgic encephalomyelitis: Reflections from experience" by Joanne Hunt

https://journals.sagepub.com/doi/10.1177/09593535261421588

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

ME Research UK is delighted to have awarded funding to Dr Andrea Polli and Prof. Lode Godderis. Together with PhD student Yanthe Buntinx, the team will explore whether the immune system in people with ME/CFS is exhausted by prolonged activation. https://bit.ly/polli071

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE

It's 9-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe.

https://journals.sagepub.com/doi/full/10.1177/1359105317697323

#MEcfs #CFS #MyalgicE #CBT #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

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Longer message regarding the €3000 core funding grant that we were delighted to receive this week from the Hospital Saturday Fund

#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME #MyE
@tomkindlon @mecfs

Delighted to receive a €3000 core funding grant from the Hospital Saturday Fund this week.

Will be very useful as there has been relatively little fundraising for us in recent times

In photo: Vera Kindlon & @tomkindlon

Longer message in next post

#MEcfs #CFS #MyalgicE #PwME @mecfs

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Remembering ME activist (& my friend) Robert "Bob" Courtney, who passed away on March 7, 2018

This is from the @MEAssociation magazine

One can read about some of the specifics of Bob's work here: http://me-pedia.org/wiki/Robert_Courtney

#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME #ME @mecfs

Still here. Still housebound.
Marginally better than 2022... passing out less often but omg the sensory overload is ... overloading...
#myalgicEncephalomyelitis #myalgicE #severeME

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“When the people in your life don’t understand PEM [post-exertional malaise], they’re not just failing to understand a symptom. They’re failing to understand the central mechanism that governs your entire existence. They’re missing why you can’t just meet them for a meal, why you can’t work full-time, why you can’t be the person you used to be”
@mecfs @longcovid #longcovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team pmc.ncbi.nlm.nih.gov/articles/PMC...

#MyalgicE #PwME #MEeps #CFSME #CFIDS #PwLC
#PostCovidSyndrome #postcovid
https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf
pmc.ncbi.nlm.nih.gov

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From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team https://pmc.ncbi.nlm.nih.gov/articles/PMC6468435/pdf/diagnostics-09-00026.pdf

#MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #PwLC
#PostCovidSyndrome #postcovid
@mecfs

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