Insights into Pathophysiological Pathways in ME/CFS Through Genetic Correlation and Mendelian Randomization

https://www.researchsquare.com/article/rs-9363637/v1

Uses data from DecodeME

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(UK press release by Stripy Lightbulb CIC)

"Access to Work Is Missing the Point for People With M.E./C.F.S."

https://pressat.co.uk/releases/access-to-work-is-missing-the-point-for-people-with-me-cfs-49233d3b6b29ac9f3e1e8555212a59a2/

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Open Medicine Foundation: A new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count

https://www.omf.ngo/introducing-ctn-lite/

https://docs.google.com/forms/d/e/1FAIpQLSeTmvjcIAM9xWEIvJXuBx_L99wmBHqwYuJ2xOwjQOtGkZl8Zw/viewform

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The Irish ME Trust organised a webinar on disability and carer payments in Ireland.

Recording: https://youtu.be/y0ST_NreH8I

Slides: https://1drv.ms/p/c/94454629db95df81/IQAr_iArcGVGRasX28RXs0neAcuhHj90wY4Sn_fXmQrbPvU?e=Ea5hLu

My notes (file also includes all slides)
https://1drv.ms/b/c/94454629db95df81/IQC6O8ZIzpiaQ6a-OSgEIJmCAYuOUAN7dDfsxhjzou5QFc0?e=ktErgx

Please let me know of any typos.

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One month to go to Blue Sunday.

We would love people’s support. We have a specific fundraising page for the event here
https://www.idonate.ie/fundraiser/BlueSunday2026fortheIrishMECFSAssociation or you can set up your own page at https://www.idonate.ie/

Lots of other worthy ME/CFS charities are taking part, see here:
https://the-slow-lane.com/donation-pages

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State of Illinois declares May 12, 2026 as ME Awareness Day.

Motions were passed in both the House and Senate.

https://legiscan.com/IL/text/HR0796/id/3416097/Illinois-2025-HR0796-Introduced.html

https://legiscan.com/IL/text/SR0667/id/3389981/Illinois-2025-SR0667-Introduced.html

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1/

Validation of the Wood Mental Fatigue Inventory in adolescents with myalgic encephalomyelitis/chronic fatigue syndrome

https://www.sciencedirect.com/science/article/pii/S2666354626000554

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Pleased to be able to clear out these ME files over the last year or so (plus 35 more last year). 😀

Running the @IrishMECFSAssociation for 30 years, I built up a lot of info e.g. to help me deal with enquiries, but need it less now

Longer description in the next post

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1/

(Not a recommendation)
The Canadian Pain Society's 2026 conference presented two posters from the McMaster group.

https://www.s4me.info/threads/physical-activity-for-myalgic-encephalomyelitis-chronic-fatigue-syndrome-a-clinical-practice-guideline-2026-kirsh-et-al.49684/

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