"NIH/NIAID Highlight Post-Infectious Illness": Bateman Horne Center blog post

https://batemanhornecenter.org/nih_niaid_highlight_post-infectious_illness/

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid #PwME #ME #MyalgicE @mecfs @longcovid

A UK man with ME is fundraising for SequenceME, a deeper look at the DecodeME samples (whole-genome sequencing study).

https://www.justgiving.com/page/gregsandersmeresearch

Screenshot is extract from his story where he argues there has been a lack of investment in research

#MEcfs #PwME #ME #MyalgicE @mecfs

UK research funded by ME Association

Testing a Personalised Dysautonomia Management Protocol in Patients with Orthostatic Intolerance and a Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or Long COVID

Free:
https://www.mdpi.com/2077-0383/15/7/2510

#MEcfs #LongCovid #PwME #ME #MyalgicE #POTS @mecfs @longcovid @pots

"Intersectionality, healthcare and myalgic encephalomyelitis: Reflections from experience" by Joanne Hunt

https://journals.sagepub.com/doi/10.1177/09593535261421588

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

ME Research UK is delighted to have awarded funding to Dr Andrea Polli and Prof. Lode Godderis. Together with PhD student Yanthe Buntinx, the team will explore whether the immune system in people with ME/CFS is exhausted by prolonged activation. https://bit.ly/polli071

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE

It's 9-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe.

https://journals.sagepub.com/doi/full/10.1177/1359105317697323

#MEcfs #CFS #MyalgicE #CBT #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

Delighted to receive a €3000 core funding grant from the Hospital Saturday Fund this week.

Will be very useful as there has been relatively little fundraising for us in recent times

In photo: Vera Kindlon & @tomkindlon

Longer message in next post

#MEcfs #CFS #MyalgicE #PwME @mecfs

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Remembering ME activist (& my friend) Robert "Bob" Courtney, who passed away on March 7, 2018

This is from the @MEAssociation magazine

One can read about some of the specifics of Bob's work here: http://me-pedia.org/wiki/Robert_Courtney

#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME #ME @mecfs