Tom KindlonNew from Serbia:
Long-Term Follow-Up of Women with Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A 16-Year Longitudinal Study
(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"
https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty
Screenshot from AMMES June 2026 newsletter
It would be wonderful if similar facilities were available in other countries
Specialised care for severely affected ME/CFS patients
https://www.tandfonline.com/doi/full/10.1080/21641846.2025.2565101
Screenshot from AMMES June 2026 newsletter
From New Zealand
Precision Medicine Study of Post-Exertional Malaise Epigenetic Changes in Myalgic Encephalomyelitis/Chronic Fatigue Patients During Exercise
https://www.mdpi.com/1422-0067/26/17/8563
Screenshot from AMMES June 2026 newsletter
An Essay on Living with Severe ME
https://virology.ws/2026/01/27/trial-by-error-an-essay-on-living-with-severe-me/
Screenshot from AMMES June 2026 newsletter
"Those Who Were Already Here"
Another blog post by Fred Rossi that has been well received
https://darthfoo.substack.com/p/those-who-were-already-here
Screenshot from AMMES June 2026 newsletter
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #MEcfs #PwME #ME #MyalgicE
@mecfs
Chronic fatigue syndrome in nursing practice: a concept analysis
https://link.springer.com/article/10.1186/s12912-026-04749-y
Screenshot from Science for ME weekly update
Inga Williams: "I am actively recruiting for my observational study to help us understand what causes PEM, so we can improve care for those who experience it. My email address is :
I am extremely grateful to my supervisors, mentors and donors."
(Copied from another social media platform)
From France
Sleep in myalgic encephalomyelitis/chronic fatigue syndrome shows marked night-to-night fluctuation under free-living conditions—results from a matched case-control study
https://link.springer.com/article/10.1007/s44470-026-00079-7
Screenshot from Science for ME weekly update
Imbalance of Excitatory and Inhibitory Neurotransmitter Systems in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
https://www.mdpi.com/1422-0067/27/9/4041
Screenshot from Science for ME weekly update
