Funny how everyone thinks Covid is totally over, yet we constantly see cancelled shows, events with celebs and athletes admitting to long term serious health issues
https://www.hellomagazine.com/celebrities/899223/leann-rimes-health-update-cancelled-shows/
✅ One concrete action you can do to help patients is to sign on to the letter that #MEAction has sent to RFK Jr, Secretary of HHS, urging him to recognize people with ME/CFS and Long COVID as “medically frail” so that access to Medicaid is protected.
"Protect Medicaid Access"
https://actionnetwork.org/petitions/freakin-frail?mc_cid=c993407feb
#USPol #Medicaid #MEcfs #LongCovid #Disability #ChronicIllness #FrailAndFurious
If you want to learn more about Medicaid issues there's an "Ask Me Anything" session on #MEAction's instagram tomorrow, May 5, at 3 PM EDT
I'm not on Instagram myself so I can't help with details about how to watch but here's the link to their instagram account:
https://www.instagram.com/meactnet/
#USPol #Medicaid #MECFS #LongCovid #Disability #ChronicIllness #FrailAndFurious
"There is a list of conditions for people on Medicaid that qualify for people with exemptions, but understandably, not every serious health issue is on there.
Notably absent is Long Covid, a post-infectious disease caused by a Covid infection that can very much impact someone’s ability to work."
#USPol #Healthcare #Medicaid #LongCovid #MEcfs #ChronicIllness
Request for #LongCovid subjects for a research study
🙋🏻♀️💪🏼💉🩸
- Women aged 18+
- In #Melbourne #Victoria Australia
- 1️⃣ blood sample & questionnaire
Looking for a signature in platelet microRNAs
La Trobe University team headed by:
Dr Sarah Annesley
Dr Daniel Missailidis
Prof Stephanie Gras
Entry survey
https://redcap.latrobe.edu.au/redcap/surveys/?s=XHX3CREK8Y49NTDM
Or if the initial questionnaire is not accessible, please drop an email Dr Daniel Missailidis at:
Another good post from Fred Rossi
"The Inventory of Loss
What chronic illness takes that no one warns you about"
https://substack.com/home/post/p-196221159
"Chronic illness is built on grief. Not as a side effect. Not as something you process once and move past. As a permanent condition layered on top of a physical one."
(sorry, it's a substack link)
Bitte geht am kommenden Wochenende zu einer #liegenddemo in Eurer Nähe. Macht Aufmerksam, verteilt den Link, schickt Freunde, Verwandte, Kollegen!
Check out the latest News in Brief (April 17 - May 3) from the Science for ME forum. This is a weekly summary of ME/CFS and Long Covid news including research, advocacy, and coming events.
🚨 May 12, International ME/CFS Awareness Day, is next week!
https://www.s4me.info/threads/news-in-brief-april-2026.49767/#post-690568
When thoughtfully implemented, these tools support continuity, inclusion, and better outcomes for students and their communities.
Read the full article:
https://whn.global/when-children-are-sick-schools-must-adapt/
#LongCOVID #COVID19 #COVID #PublicHealth #HealthEducation #Education #EducationSystem
What COVID and Chronic Illness Have Taught Us About Education, Health, and Inclusion For many families, the phrase “remote learning” conjures memories of the early pandemic, unplanned shifts to online instruction that were often confusing, uneven, and frustrating for students, families, and educators alike. But it’s important to remember that what most children experienced in … Continued
Mat Wright
Ahimsa
David Davies-Payne
Christophe Veltsos
Andreas Ufert
WHN