UK research funded by ME Association

Testing a Personalised Dysautonomia Management Protocol in Patients with Orthostatic Intolerance and a Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or Long COVID

Free:
https://www.mdpi.com/2077-0383/15/7/2510

#MEcfs #LongCovid #PwME #ME #MyalgicE #POTS @mecfs @longcovid @pots

COVID‑19 variant BA.3.2 is spreading quickly across US...

"There’s no sign so far that BA.3.2, nicknamed Cicada, is any more dangerous or causes more severe disease than the variants that were circulating in the winter of 2025-26. But because it’s significantly different from them, 👉 the current COVID-19 vaccine may not be as effective against it." 👈

#COVID #LongCOVID #COVID19 #COVIDisNOTover

https://theconversation.com/covid-19-variant-ba-3-2-is-spreading-quickly-across-us-a-doctor-explains-what-you-need-to-know-279447

Do You Have Unexplained Symptoms? They Might Be Post-Viral

The common wisdom about catching a virus is that in a few days—a few weeks, tops—everything will be back to normal. And in many cases, that’s true.

But as the flood of Long COVID cases during the pandemic demonstrated, sometimes it can take much, much longer. Additionally, doctors and scientists are realizing that post-viral symptoms can be more subtle than the crushing fatigue and brain fog commonly seen in Long COVID and other post-acute infection syndromes, as these conditions are known.

https://time.com/article/2026/03/25/post-viral-symptoms-common/?utm_source=beehiiv&utm_medium=email&utm_campaign=newsletter-health-matters&_bhlid=084e1aff84f59822873fb9d8b3d73de49506861d

#LongCOVID #Covid19 #CovidIsNotOvver #PubicHealth #WearAMask #GetVaccinated

Are you in latinoamerica and need masks? Please contact us.

¿Estás en LATAM y quieres mascarillas? Contacta con nosotres! Hablamos español!

Do you know someone in latinoamerica that need masks? We can coordinate to send them! Contact us!

[email protected]

#MaskUp #WearAMask #CovidRealist #CovidIsAirbone #LongCovid #YallMasking #DisabledLiberation #DisabilityJustice

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Problemas de la piel al usar mascarilla, explicaciones y soluciones.

Thai Brows hizo un vídeo corto y uno largo hablando sobre los problemas de acné al usar mascarilla explicando posibles explicaciones y soluciones.

https://autodefesasanitaria.substack.com/p/problemas-de-la-piel-al-usar-mascarilla

Resumen:

· Hidratar + hidratar la piel antes de la mano.

· AHA/BHA/retinoides por la noche

· Ácido hipocloroso para calmar la irritación.

Transcripción del vídeo largo de Thai Brows:

“Si usar mascarilla te está causando brotes, este mensaje es para ti.

Hay varias razones por las que puede estar pasando. Usar una mascarilla durante mucho tiempo puede provocar acné mecánico, que es causado por la fricción y la presión sobre la piel. Para prevenirlo, asegúrate de que tu piel esté bien hidratada antes de ponerte la mascarilla.

También considera que puede haber factores internos y externos que estén contribuyendo a los brotes: estrés, hormonas, medicamentos, contaminación, clima, entre otros.

Si estás empezando a usar mascarilla con regularidad otra vez, trata de evitar introducir nuevos ingredientes activos en tu rutina. Evita usar exfoliantes químicos como AHA, BHA o retinol debajo de la mascarilla. Reserva esos productos para la noche.

En tu rutina de la mañana, enfócate en:

· Un limpiador suave que no reseque la piel

· Un tónico hidratante y/o un sérum hidratante

· Una crema hidratante que no sea demasiado pesada, pero tampoco tan ligera que tu piel se reseque debajo de la mascarilla

Busca hidratantes que humecten bien sin ser grasosos y que dejen un acabado suave, para que no se sientan pegajosos.

Actualmente hay muchas opiniones sobre el ácido hipocloroso, pero puede ser una gran adición tanto a tu rutina de cuidado de la piel como a tus precauciones contra el COVID. El ácido hipocloroso ya se encuentra de forma natural en los glóbulos blancos. Es antimicrobiano y antibacteriano, ayuda a calmar la piel y puede reducir el enrojecimiento. Además, puede ayudar a eliminar bacterias, virus y hongos. Puedes usarlo al quitarte la mascarilla, por ejemplo durante tu descanso para comer, antes de volver a ponértela.

Otra razón por la que puedes seguir teniendo brotes es que tu mascarilla no se ajusta bien a tu rostro.

· Si es muy grande, se moverá demasiado y generará fricción.

· Si es muy pequeña, será incómoda y apretará demasiado la piel.

Además, algunos materiales pueden no ser compatibles con tu piel. Las mascarillas de tela pueden acumular bacterias, especialmente si se reutilizan, y no ofrecen tanta protección contra virus. En general, se recomienda cambiar a una FFP2, KN95 o N95.

No te desanimes al buscar una mascarilla que funcione para ti. Aunque la irritación y los brotes pueden ser molestos, el impacto de enfermar puede ser mucho mayor. Además del COVID, también circulan otros virus como RSV, resfriado y gripe. Protegerte sigue siendo importante.

Sé que probar diferentes mascarillas puede ser costoso o intimidante si no sabes por dónde empezar, pero vale la pena encontrar una opción adecuada para tu piel y tu salud.

Si esta información te resultó útil, puedes seguir informándote y adaptando tu rutina para cuidar tanto tu piel como tu bienestar general.

Productos mencionados en el vídeo:
Limpiador en gel a espuma renovador de barrera para el cuidado de la piel

Ejemplo: RoC Barrier Renew Gel-to-Foam Cleanser

Spray de ácido hipocloroso

Ejemplo: tower 28 SOS Rescue Spray

Crema barrera con Ácido Hialurónico

Ejemplo: tower 28 SOS Recovery Cream

Tónico bomba hidratante

Ejemplo: belif Aqua Bomb – Tónico Facial Hidratante 200 ml

Suero de control de poros

Ejemplo: Peach Slices Oil Control Pore Serum

Crema que hidrata y ayuda a retener la hidratación.

Ejemplo: Mixsoon Bean Cream 65ml

Hidratante biótico fresco para el cuidado de la piel

Ejemplo: Dr. Brandt Cool Biotic - Crema prebiótica para aliviar el enrojecimiento

Mascarillas para personas con piel sensible y/o neurodivergentes:

https://autodefesasanitaria.substack.com/p/mascarillas-para-personas-con-piel

#CovidPersistente #LlevaMascarilla #RealistaCovid #AutoDefensaSanitaria #CovidSonAerosoles #birdflu #gripeaviar

#MaskUp #WearAMask #CovidRealist #CovidIsAirbone #LongCovid
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Skin problems when wearing a mask, explanations and solutions

Thai Brows made a short and a long video talking about acne problems when wearing a mask explaining possible explanations and solutions

https://healthselfdefense.substack.com/p/skin-problems-when-wearing-a-mask

Summary:

· Hydrate + moisturize skin before hand

· AHA/BHAs/retinoids at night

· Hypochlorous acid to soothe irritation

Transcription of Thai Brows’s long video:

“If wearing a mask is making you break out, this video is for you.

There are several reasons why this might be happening. Wearing a mask for long periods of time can lead to acne mechanica, which is caused by friction and pressure on the skin. To help prevent this, make sure your skin is properly moisturized before putting on your mask.

Also consider internal and external factors that may be contributing to breakouts, such as stress, hormones, medications, pollution, and weather changes.

If you’re starting to mask regularly again, try to avoid introducing new active ingredients into your routine. Avoid using exfoliants like AHAs, BHAs, or retinol under your mask. Save those chemical exfoliants and retinoids for nighttime use.

For your morning routine, focus on:

· A gentle, non-stripping cleanser

· A hydrating toner and/or hydrating serum

· A moisturizer that isn’t too heavy but also not so light that your skin dries out under your mask

Look for moisturizers that are hydrating without being greasy and that leave a smooth finish so your skin doesn’t feel sticky.

A lot of people have strong opinions about hypochlorous acid right now, but I think it’s actually a great addition to both your skincare routine and your COVID precautions. Hypochlorous acid is naturally found in your white blood cells. It’s antimicrobial and antibacterial, helps calm the skin, and can reduce redness. It can also help kill bacteria, viruses, and fungi. I like to keep a spray with me when I go to work or out in public. If I take my mask off during a lunch break, I’ll spray it on before putting my mask back on.

Another reason you may be breaking out is that your mask doesn’t properly fit your face.

· If it’s too big, it moves around too much and causes friction.

· If it’s too small, it’s tight and uncomfortable, adding pressure to your skin.

Some mask materials may also not be compatible with your skin. Cloth masks can harbor bacteria, especially if they’re reused, and they’re not as protective against viruses. In general, upgrading to a FFP2, KN95 or N95 is recommended.

Please don’t get discouraged from finding a mask that works for you. Even though dealing with irritation and breakouts can be frustrating, getting sick can have a much bigger impact on your life. In addition to COVID, other illnesses like RSV, colds, and the flu continue to circulate. Protecting yourself still matters.

I know trying different masks can be expensive and overwhelming if you don’t know where to start, but it’s worth finding the right fit for both your skin and your health.”

Products mentioned in the video:
Skincare barrier renew gel-to-foam cleanser

Example: RoC Barrier Renew Gel-to-Foam Cleanser

Hypochlorous Acid Spray

Example: tower 28 SOS Rescue Spray

Barrier cream with Hyaluronic Acid

Example: tower 28 SOS Recovery Cream

Moisturizing bomb toner

Example: Aqua Bomb Hydrating Toner for All Skin Types 200mL

Control pore serum

Example: Peach Slices Oil Control Pore Serum

Cream that moisture and helps lock in hydration

Example: Mixsoon Bean Cream 65ml

Skincare cool biotic moisturizer

Example: Dr. Brandt Cool Biotic Prebiotic Redness Relief Cream

Masks for people with sensitive skin and/or neurodivergent:

https://healthselfdefense.substack.com/p/masks-for-people-with-sensitive-skin

#MaskUp #WearAMask #CovidRealist #CovidIsAirbone #LongCovid #YallMasking #DisabledLiberation #DisabilityJustice

I loved seeing so much support for covid safety & long covid at the community connecting event today!

#MasksSolidarity #CovidIsNotOver #Comrades #AntiAbleism #VictoriaBC #CommunityCare #Solidarity #BeTheChange #NormalizeMasking #HumanitariansMaskUp #LongCovid #Labor #PeopleWithDisabilities #Covid