Ik dacht dat “chronisch zieken moeten oppassen met hitte” te maken had met dat je al ziek bent en dan sneller uitgedroogd raakt en zo. Mais non! Het gaat niet om het water. Het gaat niet om de warmte. Het gaat om de complete anarchie in het kansloze bosje neuronen dat ooit een prima zenuwstelsel vormde.

#LongCovid #pots #dysautonomie

https://nescia.nl/anna/2026/06/19/weet-je-wat-we-doen-het-eens-anders/

Weet je wat? We doen het eens anders!

Deel 5 in de serie “waar heb je nou eigenlijk last van?” Zie ook Fluctuaties, Betalen, De Bandbreedte, Even Concreet. Dysautonomie, kent u die uitdrukking? Ik niet, totdat ik het had. Het…

nescia/anna
2300 days #LongCOVID
And no cure in sight.

In looser terms: feeling mentally exhausted for two or more years? Science says that's very believable, and you're not alone!

#SARSCoV2 #LongCOVID #COVID19 #COVID

RE: https://disabled.social/@tomkindlon/116773452568133668

Another highly interesting reference from Tom Kindlon:

in 40 patients with LC ...

18F-FDG PET-CT scans were performed, and brain metabolic activity was compared to a control database

In some the difference is remarkable. One patient illustrated in Figure 2

shows near global hypometabolism particularly pronounced in the occipital lobes, correlating with the participant’s symptoms of cognitive dysfunction and fatigue with post exertional malaise

The findings showed significant cerebral hypometabolism in 29 patients with fatigue and post-exertional malaise (PEM), particularly in the left sensorimotor cortex (p=0.0253) and bilateral primary visual cortex (right: p=0.0096, left: p=0.0016),

and

our data shows that this cerebral hypometabolism persists 2 years post COVID-19 infection

finally

The correlation of the symptom clusters and cerebral hypometabolism between LC and ME/CFS, particularly in those with PEM, suggests similar underlying pathophysiology.

https://journals.sagepub.com/doi/10.1177/21501319261458748

#SARSCoV2 #LongCOVID #COVID19 #COVID

Transcutaneous Auricular Vagus Nerve Stimulation for Post-COVID-19 Condition: A Systematic Review and Critical Appraisal of Clinical Evidence

https://www.mdpi.com/2077-0383/15/11/4247

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers

Does anyone else with #LongCovid have FEWER #migraine headaches than pre-covid?

2/
Clinical Utility of SARS-CoV-2 Antibody Titers in the Management of Patients With Long COVID Infected With the Omicron Variant

https://www.frontierspartnerships.org/journals/british-journal-of-biomedical-science/articles/10.3389/bjbs.2026.16255/full

Screenshot from latest Science for ME weekly update

#LongCovid #PASC
@longcovid

Immunothrombosis in hospitalized COVID-19 patients identified by multiomics profiling and linked to postacute complications

https://www.cell.com/iscience/abstract/S2589-0042(26)01701-3

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers