International Declaration in Support of Research and Drug Development for ME/CFS and Long Covid

https://declaration.mecfs-research.org/en/declaration

Image is from June 2026 IACFS/ME Newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Council of Medical Specialty Societies (CMSS) Long COVID Resource Repository
https://cmss.org/programs-and-resources/long-covid-resource-repository/

I haven't vetted this page properly but some resources are good

Image is from June 2026 IACFS/ME Newsletter

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
#MedMastodon

NIH press release:

"Immune system may attack nervous system in some Long COVID patients"
https://www.nih.gov/news-events/nih-research-matters/immune-system-may-attack-nervous-system-some-long-covid-patients

Paper:
A causal link between autoantibodies and neurological symptoms in long COVID
https://pubmed.ncbi.nlm.nih.gov/42208499/

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

Transcutaneous Auricular Vagus Nerve Stimulation for Post-COVID-19 Condition: A Systematic Review and Critical Appraisal of Clinical Evidence

https://www.mdpi.com/2077-0383/15/11/4247

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers

Immunothrombosis in hospitalized COVID-19 patients identified by multiomics profiling and linked to postacute complications

https://www.cell.com/iscience/abstract/S2589-0042(26)01701-3

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers

"The predominance of cerebral hypometabolism in [Long covid] patients with PEM draws important corollaries to similar changes seen in patients with FM & ME/CFS in prior neuroimaging studies"

https://journals.sagepub.com/doi/10.1177/21501319261458748

Screenshot from Science for ME update

#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC #Fibromyalgia #Fibro #FMS #FM

Single-cell profiling of innate and adaptive immune dysregulation in Long COVID

https://www.biorxiv.org/content/10.64898/2026.06.04.730206v1

Screenshot from latest Science for ME @s4me weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From Chile

De novo COVID-19-associated insulin resistance drives dysregulated neutrophil extracellular trap formation (NETosis) four months after infection

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2026.1787799/full

Screenshot from science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

1/

C1-esterase Inhibitor [RUCONEST] Treatment is Associated with Immune and Vascular Pathway Modulation in PASC with Neurological Symptoms: Longitudinal Plasma Proteomics

https://link.springer.com/article/10.1007/s10571-026-01736-4

Screenshot from science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC