FriekeWeer een voorstel vanuit de Tweede Kamer om post-acuut infectieuze syndromen aan te pakken. Ingediend bij de VWS begroting 2027.
Nog steeds druppels op de gloeiende plaat en met 1 jaar horizon, maar iets is beter dan niets.
Hoort zegt het voort...
Protestactie om een heel grote groep chronisch zieke mensen te ondersteunen.
Sibylle Dahrendorf🎥 #Documentary #ChronicallyIgnored
Only a few days left until June 20th. I would be very grateful for sharing, so that as many people as possible can be reached! Thank you so much for your support!
A Wake-Up Call To Politics, Medicine & Research
#POTS #SmallFiber #SIBO #Autoimmunity #MCAS #FQAD #FQToxicity #FlagylToxicity #EDS #hEDS #Marfan #CCI #LongCovid #LongLyme #VacInjury #LongList #LongTragedy
Film Link here:
🎥https://vimeo.com/ondemand/chronicallyignored
Sliding further down into PEM today 🫨
P.s. If you're on Instagram, I recommend me_in_a_comic (fennine) who makes great cartoons showing chronic illness life.
When a picture says more than a thousand words...
#LongCovid #pwME #longlyme #QVS #SEID
Tom KindlonFrom the Massachusetts #MECFS & FM Association e-newsletter:
(#Boston, #Massachusetts)
MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls
Links in image
https://talresearchgroup.mit.edu/mitmaestro
https://intake.mit.edu/surveys/?s=WLPFP8M9YD73WXY9
Wes Ely MD 
3/fin
This study by @maayanLevy_lab is a marvel of dozens of avenues of science that all point to a greater understanding of the realities of #LongCOVID as a chronic disease state.
Through work like this, we legitimize not only LC, but also #MECFS #LongLyme etc & take one step closer to finding medical solutions for past & future post-infectious states + syndromes like #PICS
bit.ly/3Fjx3Jp
AhimsaThe PolyBio Fall 2023 Symposium is scheduled for October 20, 1 to 5 pm, EST
A speaker list, with links to their projects, has been posted on the Science for ME forum:
https://www.s4me.info/threads/polybio-fall-2023-symposium.35177/
PolyBio is "a 501(c)3 transforming how infection-associated chronic conditions like LongCovid, ME/CFS & Long Lyme Disease are studied, diagnosed and treated"
Description from their website -
https://polybio.org/
#LongCovid #PASC #MEcfs #LongLyme #ChronicIllness
#MedMastodon
Yale School of Medicine Post-Acute Infection Syndromes Will Be the Focus of New YSM Center
On the newly launched Center for Infection & Immunity (CII) at Yale created by Akiko Iwasaki, PhD, which will investigate ME together with #LongCOVID and #posttreatmentLymedisease
@mecfs #MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #postcovid #longlyme #lyme
1/
LymeDisease.orgA new way of thinking about persistent infections, such as long COVID and chronic Lyme disease
“Infection-associated chronic illness” sounds like a mouthful.
But using that name has sparked a paradigm shift in how researchers and others view ailments that can keep people sick for years—with few or no options for getting better.
READ MORE: https://www.lymedisease.org/new-way-of-thinking-long-haul/
#longcovid #longlyme #chronicillness #chronicfatigue #chronicdisease #mecfs #ms #pots #dysautonomia
Erin C. Sanders, NP This is what hope looks like ♥️ h/t @microbeminded2 and all the teams involved
#pwME #pwLC #LongCOVID #LongLyme #SARSCoV2
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RT @polybioRF
PolyBio is excited to be leading the LongCovid Research Consortium (LCRC): a global scientific collaboration to rapidly & comprehensively study #LongCovid disease mechanisms, with a focus on SARS-CoV-2 reservoir (https://polybio.org/longcovid). LCRC projects we are supporting include:
https://twitter.com/polybioRF/status/1645800172084158469
