Is there anyone here who has dealt with instability in the spine and can talk to me about what's that feels like? I've got doctors telling me I don't have it, that (some) of my symptoms are due to something else, a lesion on the spine and I jus don't believe them .

@disability #CCI #spine #eds #hEDS #ehlersdanlos

Nice thing to read in a book about your hereditary condition

#hEDS

I’m covered in KT Tape and medical braces to distract people from all of my red flags

#kttape #braces #eds #heds #ehlersdanlos #rheumatoidarthritis #joints #jointpain #chronicillnesshumor

Dammit, I let my moderate to severe joint pain define me again

#chronicillness #chronicillnesshumor #autoimmune #autoimmunedisorder #autoimmunehumor #jointhumor #jointpain #jointpainhumor #jointhelath #rheumatoidarthritis #humor #ehlersdanlos #eds #heds

My vertebrae are moving. Like my neck is. They're doing this thing where they click or pop and I get lots of symptoms from it. It can feel like swelling or pinches nerves. I get the feeling there's not enough blood in my brain, burning pain in my fingers, numbness weakness paralysis.

What could be swelling there? Who would I see to get care? Please boost!

@disability #eds #hEDS #pwme #mecfs #bedbound

KT Tape & support braces are great conversation starters, which is why I regret having a connective tissue disorder

#connectivetissue #connectivetissuedisorder #mctd #uctd #eds #heds #edsmemes #hedsmemes #ehlersdanlos #lupus #lupusmemes