Mastodawn

I'm really struggling with chronic pain due to my genetic disorders, am not able to afford meds, & I'm *not* okay.

If anyone can help, that would be so appreciated, but no one has to! I'm sorry I'm even asking. I need $70. I hate asking for help, I feel like a jerk, but I don't have another option.

PayPal paypal.me/motleychick
Cashapp $izzi6
Venmo @egdirbretla

#NEISvoid #hEDS #EDS #MECFS #chronicpain #chronicillness #spoonie #spooniechat #longcovid #marfansyndrome #POTS #disabled

Rook 🏳️‍⚧️6d ago

I've had enough. Time to be that bitch!

#POTS #MedicalGaslighting #dysautonomia #hEDS

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Fallon the chronic gremlin Mar 15

#NEISvoid #ChronicIllness #HEDS

Fallon the chronic gremlin Mar 13

Having some disability grief about how I had to quit guitar because my hypermobile fingers couldn't hold down the strings without pain. I didn't know it was a disability at the time. I just thought it was the pain everyone felt playing guitar, and that I was uniquely bad at tolerating it. #HEDS #NEISvoid #ChronicIllness

illmarks Mar 11

2026_2_16 “Botox for Migraine” Injection Set #2, and 5 Hour Drive to/from Appt

https://www.illmarks.com/2026_2_16-botox-for-migraine-injection-set-2-and-5-hour-drive-to-from-appt/

#2 #art #bodyHorror #bodyMapping #bodyart #bodymapping #chronicIllness #chronicIllness #chronicmigraine #disability #disabilityart #DisabledArtist #eds #healthcare #heds #longCovid #longcovid #mcas #medart #medical #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme #queer #QueerArt #QueerArtist #SciArt #SciComms #trans #transArt #TransPride

Varceptious Mar 8

Its starting to get warmer out and my body is hating it. This winter was fun while it lasted in the sense of cool weather so im able to do more without passing out. My #POTS is already starting to kick my butt with the small temp increase we've gotten. Guess im going to have to go back to being accessed all the time and doing fluids everyday so I can do really anything besides being horizontal. Hopefully my meds my specialist gave me can make a difference too. Otherwise now that its warmer ill be horizontal and staying indoors doing nothing. I also have at least another month for physical therapy to help me understand my body better with my #hEDS Guess its gonna be a lot of hand held gaming and reading for a while

DrChronically M.D.Mar 7

In der #Praxis habe ich den Satz „Das kann nicht sein!“ gestrichen. Erkrankungen wie #MECFS, #hEDS, #HIT, #MCAS, #MCS, #FQAD, #PoTS und #SFN haben mich rasch eines besseren belehrt!

Rook 🏳️‍⚧️Mar 6

Having one of those days where I have to lay down for half an hour, to recover from washing my hair while sitting down...

#POTS #HEDS #ChronicIllness

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Malka Beth Mar 3

@pixelate yeah, as much as this irks me, I agree. I'm not at all a programmer or coder, just a disabled person with mobility issues that basically make touchscreen use impossible.

Part of the issue for me is, even as there are organizations that cover my disabling medical conditions, none really cover quality of life measures, beyond "join a support group based on & in Facebook" & "get a caregiver to do whatever it is for you".

I'm planning on getting #Elementary within the next 2-4 months and as I can, with other projects, try to get physical keyboard smartphones to work with degoogled operating systems.

#Neuropathy #DegenerativeDiscDisease #hEDS #DisabilityAccessibility