This 2-part video series from the Bateman Horne Center about Orthostatic Intolerance in ME/CFS is very helpful:
"What is Orthostatic Intolerance in ME/CFS?"
Part 1 - Diagnostic Workup
https://www.youtube.com/watch?v=X3Ym8rnYk_4
Part 2 - Management
https://www.youtube.com/watch?v=GIkS4w3tIg8
11/n
#MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia #BatemanHorne
Bateman Horne Center is hosting another session of "Coffee" with a Clinician tomorrow
April 8, 10 am Mountain Time
Topic: Post-Exertional Malaise (PEM) Part 2
Learn how PEM is identified and what tools help measure function.
What questions help identify post-exertional malaise (PEM)?
Details:
https://batemanhornecenter.org/event/coffee-with-a-clinician-4/
Registration:
https://batemanhornecenter.zoom.us/meeting/register/Rn-ETqlIT6qCQwjKR5S_3A#/registration
Bateman Horne Center hosts free, online support groups twice a month tailored for folks living with ME/CFS, Fibromyalgia, Long COVID, and co-existing conditions.
The next session is tomorrow, Tuesday, Jan. 20, at 1 PM Mountain Time (registration link shows time in your time zone)
Topic: Navigating Loneliness and Rebuilding Connection
Registration link:
https://batemanhornecenter.zoom.us/meeting/register/vAyIqSnoR6ubU7TWx8ibTQ#/registration
Details:
https://batemanhornecenter.org/event/online-support-group-111/
#MEcfs #LongCovid #Fibromyalgia #POTS #Support #BatemanHorne
@ImmedicableME
That's good to hear! I've never attended myself.
They have a support group scheduled for tomorrow, Tuesday, May 13.Topic: Tapping Into the Collective Wisdom of the Group.
See link for details:
https://batemanhornecenter.org/event/online-support-group-94/
Looks like they'll be sharing photos, videos, drawings, poems, etc. that were submitted previously.
Next organization on my list is the Bateman Horne Center
https://batemanhornecenter.org/
They recently posted a Clinical Care Guide for ME/CFS & Long Covid
They also post helpful videos, like these 2 on Orthostatic Intolerance - I share them a lot!
What is Orthostatic Intolerance? Part 1: Diagnostic Workup
https://www.youtube.com/watch?v=X3Ym8rnYk_4
Part 2: Management
https://www.youtube.com/watch?v=GIkS4w3tIg8
11/n
#MEcfs #PwME #LongCovid #POTS #Dysautonomia #MillionsMissing #BatemanHorne
Message from Open Medicine Foundation:
"MERC [Medical Education Resource Center] has taught 15K+ providers in 89 countriesβchanging how ME/CFS & Long COVID are diagnosed and treated.
Our new Clinical Care Guide launches May 9!"
Learn more: https://www.omf.ngo/transforming-mecfs-care/
Video from Bateman Horne Center (about 50 minutes):
"Staying within Your Energy Envelope by Modifying Tasks"
https://www.youtube.com/watch?v=RVJG6t1tjbE
"Amy Mooney β¦ discusses the details of pacing strategies from the perspective of an occupational therapist and mother of an adult daughter with severe ME/CFS"
I have not watched this video myself yet, just passing it on! π
#MEcfs #LongCovid #ChronicIllness #Pacing #PEM #BatemanHorne
New video on PEM (post-exertional malaise) from the Bateman Horne Center, second video in "the Basics" series. About 3 1/2 minutes long.
https://www.youtube.com/watch?v=UkS6L3Klc00
Roughly half of Long Covid patients meet the ME/CFS criteria which means they will also have PEM.
#MEcfs #LongCovid #PEM #MyalgicEncephalomyelitis #BatemanHorne
From the Bateman Horne Center:
Free Online Support Group
Tuesday, January 9
1 PM Mountain / 3 PM Eastern
Advance registration required.
Full details here: https://batemanhornecenter.org/event/online-support-group-62/
This link shows time in your time zone:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday%2C+January+9+online+support+group&iso=20240109T13&p1=220&ah=1
#LongCovid #MEcfs #PwME #ChronicIllness #NEISvoid #BatemanHorne
From the Bateman Horne Center:
Free Online Support Group
Tuesday, December 5
1:00 pm - 2:00 pm MST
Topic: Improving the Holiday Moments While Ill
Strategies for keeping the holidays fulfilling
Advance Registration Required
https://batemanhornecenter.org/event/online-support-group-60/
#MEcfs #LongCovid
#Fibromyalgia #ChronicIllness #Support #BatemanHorne
Ahimsa
