The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal

https://www.youtube.com/watch?v=pgqi2W9dmLc

From February 2026 Massachusetts ME/CFS & FM Association newsletter

https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253

Comment: I haven't watched it myself so far

#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM

"I have long Covid. Don’t call my chronic disease a ‘journey’: I would sooner call the experience a bad trip"

Screenshot from February 2026 AMMES newsletter

https://www.statnews.com/2025/11/25/chronic-disease-journey-long-covid/

#chronicillness #LongCovid #hiddenillness #invisibleillness
#Spoonies #Spoonie #ChronicallyIll #MEcfs @mecfs @longcovid

I’m fortunate to hold occasional dinner parties with groups of my healthy friends (my parents do all the work). Accommodations include having my feet up & going for a rest (or two). 21 minutes yesterday: hard to break away from the chat but worth it

#MyalgicEncephalomyelitis #pacing #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #spoonie #spoonies

How can we manage our wellbeing when interacting with others online?

https://www.actionforme.org.uk/resource/behind-the-screen/

"In this article, we start a conversation about life online, with some reflections on how to manage our wellbeing in this environment."

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #LongCovid #chronicillness @mecfs #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie

Important advice for anybody on any sort of #disability support when you are being evaluated for your capabilities and limitations:

DO NOT pace yourself for that meeting.

DO NOT top up your meds so you can function.

Instead do everything you can to max out your fatigue and your pain in the days prior.

These people have no understanding of PEM or the hacks we use to survive. SHOW them what you deal with daily.

It's counter intuitive, but success is you failing to perform.

#spoonies