Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

 

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

Understanding the Mankoksi Pain Scale | Jade Wellness

Discover how the Mankoski Pain Scale empowers neurodivergent, hypermobile, and LGBTQ+ individuals to communicate their pain effectively in healthcare settings. Learn why this tool is essential for better care and advocacy."

The Jade Tree - Wellness From Within
🤯🤯STICK RACK🤯🤯 well I think it was ment for brooms 🤷🏼‍♀️ but for me it’s my sticks!! I mainly use the pink one and always have a spare in the car 😀
Being physically fracked isn’t easy but you can be shiny and accessorise with all kinds of things 🤩
#eds #heds #ehlersdanlos #ehlersdanlossyndrome #hypermobile #bendy #dislocate
To all my #ChronicallyIll and #Hypermobile peeps...what do you do when your finger decides to go into subluxation? Is there any taping methods or supports or anything to help my finger feel normal again? First time I've had a finger do this. #Advice

New Instance, Old Me.

#introduction post for the new place

Hi! I'm Ryn! No, not that one, the OtherRyn.

Hobbies include (but are not limited to):
#knitting #boardgames #videogames #crossstitch #sewing #reading #audiobooks #gardening

A little about the meatsuit I pilot: #AuADHD #T1D #hypermobile

2024 Household includes:
Polecat Ferret 1 - Kivalina
Polecat Ferret 2 - Nikiski
Irish Wolfhound Mix - Basti
Human (Spouse) - Augs

Other locations on Mastodon: @OtherRyn

Info to be added as I remember and my brain deems it important.

Had to put my left scapula back in place this morning. Took some interesting angles to get it lol but now my entire shoulder structure doesn't feel entirely cockeyed. Just kinda fuckin' sore, which is fair; usually that one goes out at the ball and socket, to the point I just shrug it back in, not the scapula sliding tf out.

(I am Aware of how body horror this sounds if you're not, y'know, symptomatically #hypermobile. There's REASONS I've been trying to push for an EDS dx. 😅)

Now that this poll about hypermobility and broken bones has closed, here's some results.

57 hypermobile participants. 31.6% had broken any bones, 66.7% hadn't.

145 regularmobile participants. 31.7% had broken any bones, 68.3% hadn't.

I conclude: hypermobility probably doesn't affect whether or not you break any bones, maybe?

#poll #polls #hypermobility #hypermobile #hEDS #EDS #EhlersDanlos #EhlersDanlosSyndrome

How many bones have you broken, and are you hypermobile?

This is a poll for everyone, but I'm tagging a few specific groups to make sure I get a good sample!

#poll #polls #hypermobility #hypermobile #hEDS #EDS #EhlersDanlos #EhlersDanlosSyndrome

I've broken ZERO bones; I'm hypermobile
18.8%
I've broken ZERO bones; I'm NOT hypermobile
49%
I've broken ONE OR MORE bones; I'm hypermobile
9.4%
I've broken ONE OR MORE bones; I'm NOT hypermobile
22.8%
Poll ended at .