What it's like to spend your whole life in pain

https://spectra.video/w/xnRmvFcTF6xyGAAA9GBbVR

Symptom: Chronic Diarrhea

https://www.illmarks.com/symptom-chronic-diarrhea/

#anxiety #art #autism #bodilyFunction #bodilyFunction #bodyHorror #bodyMapping #cfs #chronicIllness #depression #diarrhea #eds #ehlersdanlossyndrome #FunctionalGastrointestinalDisorder #gastroenterology #gastrointestinal #GI #gutBrainAxis #gutbrainAxis #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #ibs #longCovid #longcovid #mecfs #MECFSBuy #medart #medicalArt #MillionsMissing #MyalgicEncephalomyelitis #neurodivergence #PIIBS #postInfectiousIrritableBowelSyndrome #postIfectiousIrritibleBowelSyndrome #pwLC #pwme #rritableBowelSyndrome #SciArt #SciComms

Symptom: Mast Cell Itching

https://www.illmarks.com/symptom-mast-cell-itching/

#allergicreactions #Allergies #allergy #art #bodyHorror #bodyMapping #buildingSafety #chonicillness #chronicIllness #claws #eds #ehlersdanlossyndrome #environmentalIllness #environmentalillness #fingers #formaldehyde #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #immunology #itched #itching #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastcell #mastcellactivationsyndrome #mastcelldisease #mastocytosis #mcas #medicalArt #MillionsMissing #nails #POTS #prop65 #publicHealth #publicHealth #pwLC #pwme #scratched #scratching #scratchy #severeallergy #vocs

Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

New Instance, Old Me.

#introduction post for the new place

Hi! I'm Ryn! No, not that one, the OtherRyn.

Hobbies include (but are not limited to):
#knitting #boardgames #videogames #crossstitch #sewing #reading #audiobooks #gardening

A little about the meatsuit I pilot: #AuADHD #T1D #hypermobile

2024 Household includes:
Polecat Ferret 1 - Kivalina
Polecat Ferret 2 - Nikiski
Irish Wolfhound Mix - Basti
Human (Spouse) - Augs

Other locations on Mastodon: @OtherRyn

Info to be added as I remember and my brain deems it important.

Had to put my left scapula back in place this morning. Took some interesting angles to get it lol but now my entire shoulder structure doesn't feel entirely cockeyed. Just kinda fuckin' sore, which is fair; usually that one goes out at the ball and socket, to the point I just shrug it back in, not the scapula sliding tf out.

(I am Aware of how body horror this sounds if you're not, y'know, symptomatically #hypermobile. There's REASONS I've been trying to push for an EDS dx. 😅)