Imagine being the kid who could always win at Twister, the one whose fingers bent back like they were made of rubber. Friends might have called you "double-jointed," and it was all a bit of fun. #Beightonscore #collagen #EhlersDanlossyndrome #JointHypermobilitySyndrome #jointpain #looseligaments #physicaltherapy

https://refreshbalance.com/joint-hypermobility-syndrome/

#3goodthings #threegoodthings

1. I got tickets to see Social Distortion/Descendents at the Stone Pony in September.

2. I made my husband watch Airheads. He's from LA so of course he's like, "I've been to all of those locations." OK COOL THANKS.

3. The doctor who deals with my Ehlers-Danlos Syndrome recommended that I microdose a GLP-1 for the heart and musculoskeletal benefits. That comes tomorrow.

#music #punk #ehlersdanlossyndrome #movies

https://www.ohjoysextoy.com/wrestling-with-my-body-inam
Inam discovers Play Flighting in their explorations with their disability and desires.

Become our Friend With Benefits on https://patreon.com/OhJoySexToy Your support directly pays the artists we commission to create these original comics just for our site.
#Webcomic #Hypermobility #EhlersDanlosSyndrome

Answered an email, then tried to make it a hat trick* by calling the allergist, but for some reason that office is always closed when I call. It was farking 330!

*next time I'll go for the Gordie Howe hat trick, which is a goal, an assist, and a fight.

#mentalhealth #eds #ehlersdanlossyndrome #hockey

I've been dreading calling the dentist because I had to ask him a Hard Question.

No one answered, and I was so mad. I finally got the damn guts to call and ask Hard Question, but then, ah ha!

I said to myself I says, "You can ask Hard Question to not a human, but a machine."

Message left! Hard Question asked! I can cross this off my to list from like last farking year!

#mentalhealth #ehlersdanlossyndrome #eds

Today the new functional medicine doctor I'm seeing described me as being in "multi-systems failure" and I laughed my entire ass off because she is *completely* correct.

So we're doing some tests.

Thankfully, she is conversant in EDS. Actually, she was able to speak more intelligently to me about EDS than anyone except the EDS doctor.

I'm happy.

#ehlersdanlossyndrome #chronicillness #adhd

#Introduction and Pinned Post

I generally post about #Disability, #MCAS, #EhlersDanlosSyndrome, #EDS, and #Celiac.

Due to EDS, I use a #PowerChair.

I also enjoy #Writing and #Reading.

All of my books, recipes, and some crafts are on my website.

I am #DeafBlind, and write about #Accessibility.

Things I miss: Gardening, Sewing, Crafting, Crocheting, Cooking, Baking, Knitting, Walking, Hiking, Exploring.

Photos are rare, as words are easier to use to explain concepts. If I add a photo, I describe it in the main text for everyone to read.

Yes, I know this sadly leaves out those who rely on photos.

Primary Website - https://uncoveredmyths.wixsite.com/uncoveredmyths

Greeting Card Website - https://uncoveredmyths.wixsite.com/musedlines

Symptom: Chronic Diarrhea

https://www.illmarks.com/symptom-chronic-diarrhea/

#anxiety #art #autism #bodilyFunction #bodilyFunction #bodyHorror #bodyMapping #cfs #chronicIllness #depression #diarrhea #eds #ehlersdanlossyndrome #FunctionalGastrointestinalDisorder #gastroenterology #gastrointestinal #GI #gutBrainAxis #gutbrainAxis #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #ibs #longCovid #longcovid #mecfs #MECFSBuy #medart #medicalArt #MillionsMissing #MyalgicEncephalomyelitis #neurodivergence #PIIBS #postInfectiousIrritableBowelSyndrome #postIfectiousIrritibleBowelSyndrome #pwLC #pwme #rritableBowelSyndrome #SciArt #SciComms