๐Ÿ”ฅ psa for anyone taking quercetin on a regular basis ๐Ÿ”ฅ

this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay  

take care people and good luck  

#MCAS #POTS #hEDS #LongCovid #allergies

Today is #MEAwarenessDay!

The Swedish study finding 1 in 5 people with hypermobile Ehlers Danlos Syndrome #hEDS or hypermobility spectrum disorder #HSD (which the EDS Society found are the same) have myalgic encephalomyelitis/chronic fatigue syndrome #MECFS #pwME: https://pmc.ncbi.nlm.nih.gov/articles/PMC7485557/

The study found 20% #pwME studied had #hEDS and 50% had #HSD

This study was prior to the 2026 reclassification merging HSD and hEDS

Given 2026 changes, 44 hEDS + 115 HSD = 159 hEDS of 229 is 69.43%

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Oh my goodness, I'm so nervous. I have a very important doctor's appointment in a half an hour that I really NEED to go well. I'd appreciate it if anyone sends me good vibes/wishes me luck/whatever. Aaaaa!!! ๐Ÿ˜–
#chronicpain #chronicillness #NEISvoid #ehlersdanlossyndrome #hEDS
Oh my goodness, I'm so nervous. I have a very important doctor's appointment in a half an hour that I *really NEED* to go well. I'd appreciate it if anyone sends me good vibes/wishes me luck/whatever. Aaaaa!!! ๐Ÿ˜–
#chronicpain #chronicillness #NEISvoid #ehlersdanlossyndrome #hEDS
Oh my goodness, I'm so nervous. I have a very important doctor's appointment in a half an hour that I *really NEED* to go well. I'd appreciate it if anyone sends me good vibes/wishes me luck/whatever. Aaaaa!!! ๐Ÿ˜–
#chronicpain #chronicillness #NEISvoid #ehlersdanlossyndrome #hEDS
guyyyyys i've just hit my first #hEDS milestone! There's a stretchmark on my side and on one of my hips.

I should have made the four posts above public and used hashtags, but I brained badly.

Scroll up ๐Ÿงต for polls about three autoimmune disorders and neurodiversity and/or gender stuff.

Poll 1: EDS
Poll 2: MCAS
Poll 3: Psoriatic arthritis
Poll 4: other autoimmune in the same cluster

#MCAS #hEDS #EhlerDanlos #PsoriaticArthritis #ADHD #Autism #nonbinary

Meditators with EDS/Hypermobility

In what position have you gotten your deepest meditative states?

If another pose, please reply with it.

Feel free to boost for reach.

#meditation #hypermobility #EDS #hEDS

Crossed Legs (Lotus, Half Lotus, etc)
8.3%
Kneeling (Zazen, stool, etc)
0%
Seated in Chair
16.7%
Reclining or Laying Down
75%
Poll ended at .
#hEDS spoonies: have yall noticed that your hEDS symptoms get worse with age? Im nearing 30 and idk if im just more aware or sth, but i swear i can feel my arm subluxing sometimes #disabled
Ranting aside, I am humbly accepting advice for recovering from post-exertional malaise. #PEM #hEDS