I have potential other comorbidities to look forward to having #hEDS, but for as long as I can safely work for myself, I'm not going to stop. I just need more work when I have the capacity for more work. It seems to always be a moving target. That's the part that really discourages me. /18
Now I have some physical confidence again and I am working tirelessly in mutual aid because the paid work isn’t there for me. Not enough. #MassageTherapy #hEDS #MCAS

That feeling when you can hear your jaw joint crunching and clicking while you chew 😮🥂

#hEDS

#CCBiz ^^ Free stuff #NEISVOID ^^ Free videos, Free content for self care, self massage, my take on supplements (anti quack here) #MCAS #POTs #hEDS #MitochondrialDysfunction #HyperlexicAuDHDResearchesAllTheTimeAndInfoDumps #Looking4Followers #Looking2Help #Writer #Writing #AeraWrites #KoFi

Is there anyone here who has dealt with instability in the spine and can talk to me about what's that feels like? I've got doctors telling me I don't have it, that (some) of my symptoms are due to something else, a lesion on the spine and I jus don't believe them .

@disability #CCI #spine #eds #hEDS #ehlersdanlos

Nice thing to read in a book about your hereditary condition

#hEDS

Fuck me i’m bored of #fibromyalgia and #hEDS