#chronicillness #mecfs #pots #hsd
It's going good, but it would be nice if some more jumped on, especially since Emi just open international shipping:
Hotzone, a heist skirmish board game in the Hc Svnt Dracones universe by Emily Fraser, via https://www.kickstarter.com/projects/wgfproductions/hotzone-a-heist-skirmish-board-game-0
Knobbly thumb joint got more obvious last night. Distinctly stiffer than the other thumb and a bit painful too. They weren’t painful before (the other knobble is my middle finger, both left hand). The other one is worse than I remember too.
At least it doesn’t affect typing. I couldn’t think which fingers I use to type and now I see it’s the middle of each hand, at least on the iPad. Don’t need to bend my fingers to type 🤷🏻♀️
Diagnosis: Hypermobile Ehlers-Danlos Syndrome
After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.
Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:
Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.
Metallic version of the hardware in my leg — I looked at my own x-rays for reference!
Final close up.
https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/
#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme
I Am Me ‼️🇳🇬✅👍♥️
🌼 #Sunday, #November2, 2025 ✨🙌
Happy 1st Sunday in #November2025 💙
“Always remember that your own resolution to succeed is more important than any one thing.” ✅♥️ #quoteoftheday #sundayfunday #NewMonth #SundayService #HSD #BahdlexEmpire #bahdlex
Symptom: Arthralgia and Arthritis
I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.
Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:
Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?
https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/
#art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking
#ELF scores week 13:
Ended games:
09.08.2025, 15:00 #BTH 31 @ 34 #ENT
09.08.2025, 17:00 #SRG 44 @ 3 #CCE
09.08.2025, 18:00 #WPA 36 @ 50 #VIE
09.08.2025, 18:00 #HEL 0 @ 77 #PAR
10.08.2025, 13:00 #HSD 7 @ 40 #NOR
10.08.2025, 13:00 #MBR 27 @ 30 #MUN
10.08.2025, 13:00 #FGY 28 @ 21 #PRA
10.08.2025, 16:25 #SRT 24 @ 34 #RHE