Mastodawn

From @MayaLongCovid on X/ @mayabee24 on IG

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

#MECFS #ME #CFS #LC #LongCovid #PostCovid #Covid Wissenschaftliche Bewertung von Methoden für den Nachweis von „Post-/Long-COVID-Syndromen" und ihrer Überlappung mit „ME/CFS" Stellungnahme der Deutschen Gesellschaft für Neurowissenschaftliche Begutachtung" (DGNB)👇 dgnb-ev.de/ploxmedia/_1...

dgnb-ev.de/ploxmedia/_1_/...

Nori 🇳🇴1d ago

#Pflege #MECFS #ME #CFS #HäuslichePflege Transdisziplinäres Expert:innen-Statement: Pflegeleitfaden für Menschen mit schwerem ME/CFS in der häuslichen Versorgung👇 link.springer.com/article/10.1...

Transdisziplinäres Expert:inne...

Transdisziplinäres Expert:innen-Statement: Pflegeleitfaden für Menschen mit schwerem ME/CFS in der häuslichen Versorgung

ravenlb

1d ago

ugh, PEMd up to the eyeballs today #cfs

Tom Kindlon 1d ago

From Canada

Irisin Signaling Resistance in Myalgic Encephalomyelitis: A Proposed Mechanistic Framework for Post-Exertional Malaise Involving the TSP-1–HSP90α–αvβ5 Axis

https://www.mdpi.com/1422-0067/27/11/4770

Part funded by Open Medicine Foundation Canada

Screenshot from Science for ME weekly update

#MEcfs #CFS #ME #MyalgicE
@mecfs

Tom Kindlon 1d ago

Develop Microfluidic-based Diagnostic Approaches for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

https://escholarship.org/uc/item/0fm949w9

Screenshot from Science for ME weekly update

#MEcfs #CFS #ME #MyalgicE
@mecfs

Tom Kindlon 2d ago

Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Leading to Assisted Suicide in a Patient in Her Late 30s: A Case Report

https://cureus.com/articles/487401-severe-myalgic-encephalomyelitischronic-fatigue-syndrome-leading-to-assisted-suicide-in-a-patient-in-her-late-30s-a-case-report

A case report detailing the failure of medical care in a young Swiss woman, that resulted in the patient deteriorating to an extremely severe level of ME/CFS.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Leading to Assisted Suicide in a Patient in Her Late 30s: A Case Report

A patient in her late 30s developed severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) following an Epstein-Barr virus infection. No distinct autoimmune or autoinflammatory disorder could be identified as the underlying cause of her symptoms, as the observed constellation of cytokine elevations (IL-2, IL-6, and IFN-γ) was not consistent with any known or established disease entity. Despite comprehensive multidisciplinary treatment over two years, including medical, psychological, and rehabilitative approaches, her condition deteriorated, and treatment-related hypersensitivities emerged. The severity and progressive nature of her symptoms, compounded by the absence of effective therapeutic options, ultimately led the patient to pursue assisted suicide.

Tom Kindlon 2d ago

There are a lot of rainy days in Ireland so I use our little porch for shelter and hot water bottles to give warmth, or otherwise I would have to spend all day stuck inside for most days of the year.

Haven’t been well enough to go for a walk in nearly 32 years.

[The hot water bottles will be going under the blankets when I lie down]

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #spoonie #chronicillness

Tom Kindlon 2d ago

"A Normative Pragmatic Inquiry into the Volatility of Norms in Argumentation"

Case study of the current Cochrane review of exercise therapy in ME/CFS

https://link.springer.com/article/10.1007/s10503-026-09705-3

Screenshot from Science for ME weekly update

#MEcfs #CFS
@mecfs

Tom Kindlon 3d ago

Last May, a team of researchers led by Braeden Charlton and including ME Research UK-funded researcher Associate Professor Rob Wüst published a pre-print paper, which made a case against deconditioning as a primary cause of ME/CFS symptoms.