I wanted to go.
My body said no.
Now I’m home fighting the guilt on top of the pain.

If you deal with chronic pain, do you push through… or stay home?

#ChronicPain #ChronicIllness #InvisibleIllness #Spoonie #SpoonieLife #ChronicPainAwareness #DisabilityAwareness

This YouTube video closes with a very catchy saying that surprisingly I've never heard said before: "Don't judge a disability by its visibility."

This is a great educational point for people with invisible illnesses like me to get behind and leverage!

https://www.youtube.com/watch?v=XoKmJA-onqg

#DIsability #InvisibleIllness

What is PoTS?

YouTube

1/2

They think it’s a vacation..

They picture beach chairs, easy money, no worries....

Reality?

It’s denial letters !

It’s endless paperwork !

The non-stop advocating for yourself while TRYING to manage health- no easy feat!

It’s appointments you can’t miss and pain you can’t escape !

It’s being treated like you’re lying just to survive !

NOBODY is “living it up” on benefits !

Full Stop !

#Disability #InvisibleIllness #SystemFailure

From @onelife_livedwell on IG:
The PACE trial shaped an entire research paradigm, but the methodology tells a more complicated story. This is what happens when lived experience and research conclusions don’t align and why how we define things matters so much. #invisibleillness #invisibleillness #spooniesupport #mecfs #longcovid @mecfs @longcovid
I just saw that and darn it’s right. So many times I’ve been told I’m exaggerating and its variations. I’ve not been accused of looking happy in a long time, though.
#chronicPain #disability #humor #invisibleIllness #meme #rareDisease

But you don't look sick. Well, tell me what "sick" looks like and I'll try to get it right next time.

By Lisa

#mentalhealthhumor #funnymemes #copingwithhumor #humorheals #ymhc #mentalhealthawareness #mentalhealthmatters #invisibleillness

We remember diagnoses, heartbreak, miracles… but what about the quiet days between them? Living with sarcoidosis taught me the moments we forget may matter most. #ChronicIllness #Sarcoidosis #InvisibleIllness https://www.buzzsprout.com/2548730/episodes/18812441
The Forgotten Days: What Living With Sarcoidosis Taught Me About the Ordinary Moments Between the Milestones - Thoughts While Surviving Chronic Illness: Ramblings From a Chef Whose Body Constantly Rebels

We remember diagnoses, heartbreaks, and miracles—but what about the quiet days that carry us between them? Living with sarcoidosis has made me realize the most important parts of life might be the ones our memory quietly skips over.

Buzzsprout

A beautifully framed certificate acknowledging my amazing wife @CarolineG has been accepted by OBOD as a fully fledged Druid. It took her seven years while she was battling with fibromyalgia and other health issues.

#pagan #druid #ChronicIllness #Invisibleillness