I usually vote by mail because I've been housebound with severe #MECFS for two years. I missed the timeline for returning my absentee ballot for an election Tuesday, in large part because of being #housebound--these days a calendar is something that happens to other people.

So Jalan drove me yesterday to vote curbside (i.e., through the car window) at an early-voting site. We also needed to pick up prescriptions. We were out about an hour, with me never getting out of the car.

Notably, the last time I was out of the house (other than an emergency hospitalization in November) was to vote curbside in early October last year.

Friends and neighbors, going out broke me. Most days, I spend most of the time in my lift chair in the living room before moving to the bedroom sometime late afternoon or evening, where we have, in addition to bed, another, very comfortable, recliner.

Yesterday, though, we were home by around 2pm, I couldn't leave the bedroom the rest of the day. Sometimes sleeping, constantly in pain (more than baseline), hypersensitive to sound and light, all the terrible.

I hate this.

#NEISVoid

Recap: "Support Group: Navigating Loneliness and Rebuilding Connection"

https://batemanhornecenter.org/wp-content/uploads/2026/02/20260120-Support-Group-Recap-.pdf

Conditions like ME/CFS can be very socially isolating. I found it nice to read how others deal with this.

#MEcfs #Spoonielife #LongCovid #chronicillness #CFS #PwME #homebound #housebound #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #POTS @pots

I swear I'm starting to sound like Roy Kent, like every five minutes I find myself growling, "FFFFAAAAACHKHK!" Usually in #pain. I'm not fit for company anymore. It's probably not too big an issue because I'm #housebound, and almost never see a living soul other than my partner who loves me fbombs and all. At least I'm not combative, so if medical staff has to deal with me, I shouldn't be too much trouble. #fuck #tedlasso #mecfs #disability #chronicpain #roykent

‘M3GAN 2.0’ Filmmaker Gerard Johnstone Won’t Be Surprised If There’s “Another Five of These Movies”
#MovieFeatures #Movies #GerardJohnstone #Housebound #M3GAN #M3GAN20

https://www.hollywoodreporter.com/movies/movie-features/m3gan-2-0-filmmaker-gerard-johnstone-sequels-1236297385/

‘M3GAN 2.0’ Filmmaker Gerard Johnstone Won’t Be Surprised If There’s “Another Five of These Movies”

The writer-director talks those 'T2' comparisons and the fateful decision to include M3GAN dancing as part of the marketing for the first film, a move that helped it become a viral phenenon.

The Hollywood Reporter

Currently sitting in the phlebotomy waiting room with Emerson.

I haven’t had a blood draw in so long because it’s so damn difficult to get up here. I’m full of surprises, I guess…

They’re drawing for a thyroid level on me. I didn’t know this, so this should be interesting. I’ll let you know how it goes.

-Allēna

#chronicillness #eepy #Emerson #housebound #limitedmobility #NEISvoid #phlebotomy

Challenges

Ah yes. An interesting prompt.

What is the biggest challenge you will face in the next six months?

Staying alive, in all honesty. We live in a hellscape and I’m under a lot of stress right now being a repository of knowledge and stress buffer/mediator for a lot of people. It’s so bad right now that I don’t know how I feel personally about a lot of the situations I’m the human DMZ in, and I am currently too exhausted to try. Alexithymia and chronic fatigue are bitches and a half.

I’m still trying to care for myself as best as possible in all of this, finding a balance is just…. Difficult. It’s one of the reasons my phone is eternally on Do Not Disturb. It gives me some semblance of artificially manufactured peace and quiet amidst all the chaos.

I think in another life, I would have made a great emergency medical technician.

-Allēna

#actuallyAuDHD #ChronicPain #chronicfatigue #chronicillness #contemplation #CripplePunk #dailyprompt #dailyprompt1854 #eepy #housebound #jointpain #MECFS #NEISvoid #Spoonie #strokesurvivor

What’s this? Another prompt I want to actually take somewhat seriously?

Who are your favorite people to be around?

People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.

I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.

I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.

-Allēna

#charisma #chronicfatigue #chronicillness #community #CripplePunk #dailyprompt #dailyprompt1854 #Disabled #eepy #friends #hopeposting #housebound #jointhypermobility #jointpain #MECFS #NEISvoid #neurodivergence #partners #queer #socialtime #Spoonie #strokesurvivor #winning

Unfortunately for some people with mobility issues, problems being upright (#OrthostaticIntolerance) mean they can't use traditional #wheelchairs or if they do, they can't be upright for long. This looks a interesting idea!

Not sure the context!

I found it here:
https://www.tumblr.com/mathew/765339413020622848?source=share

@chronicillness
@spoonies
@disability
#Disability #Spoonie #MEcfs #Bedbound #SevereME @severeme
#SevereME
@longcovid
#LongCovid #dysautonomia @dysautonomia #POTS @pots
#homebound
#housebound
#Disabled

Mathew Tumbles

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Labour IS pushing ahead with horrific DWP WCA changes - hitting 450k people

In yet another U-turn, the Labour-led DWP is set to press ahead with plans to reform the WCA - affecting 450,000 peoples' benefits

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