Mastodawn

Another rant.
We talked about how stress also causes gut issues, about breathing exercises and vagus nerve stuff. It totally bothers me that people don't seem to understand that my stress levels aren't going to improve any time soon. If I just mention that I'm ill and that it's depressing she just circles back to "you should do breathing exercises". Yes ma'am I've been doing those for about 5 years. Yes daily. Several times per day actually. So she goes "okay you're working on it, it's improving?"

No. "Working on it" and "improving" are two completely different things.

For someone who works with chronically ill people I expect you to know that.

#neisvoid #LongCovid

lez-anya 6d ago

Previously safe foods are, tinight, being proven otherwise.

Exhausted, feel like trash.

Can anxietyy/stress/etc make MCAS reactions worse?

#MCAS #NEISvoid

Stray Fish/ 野良魚 Mar 24

#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ?

lez-anya Mar 23

Just had another functionally useless doctor appointment.

First appointment of hell week down and it has left me in a sour mood.

So fuckin tired of all of this.

#NEISvoid

lez-anya Mar 21

"Pain whenever I eat anything that isn't chicken or rice" is up there with "insomnia, but always fatigued" and "allergic to water and sunlight" as some of the worst symptoms I experience with my disabilities, NGL.

#NEISvoid #pwME #MECFS #MCAS

lez-anya Mar 20

"I forgot what I was going to say because my brain was too busy forgetting other things."

#NEISvoid #brainfog #MECFS #pwME #LongCovid

Belle (she/her)Mar 20

Trying to figure out if being in this much pain the day BEFORE the pressure drop means tomorrow is going to be better or worse?
#ChronicPain #NEISvoid

starryeyes Mar 19

I'm really struggling with chronic pain due to my genetic disorders, am not able to afford meds, & I'm *not* okay.

If anyone can help, that would be so appreciated, but no one has to! I'm sorry I'm even asking. I need $70. I hate asking for help, I feel like a jerk, but I don't have another option.

PayPal paypal.me/motleychick
Cashapp $izzi6
Venmo @egdirbretla

#NEISvoid #hEDS #EDS #MECFS #chronicpain #chronicillness #spoonie #spooniechat #longcovid #marfansyndrome #POTS #disabled

starryeyes Mar 19

Wooooof I am in so much pain from my #chronicpain and #chronicillness that it's unbearable...aaand I can't afford my pain medicine, since I can't work *because* of those #disabilities I can't afford to treat. Aaaand I don't know what the hell I'm going to do or how I'm going to get through this. I can't think straight because of the pain and it's make me switch between dissociation and panicking. 😖 #NEISvoid

Taco Blacc Mar 17

Amid the fallout from a bedbug infestation I have to get done (or even replace) a ton of laundry. In addition I have the electric bill due again (now LATE).

Disabled, broke.
Update 032326 - As you might have seen, a miscalculation & other expense wiped my progress. Adding ko-fi link as an alternative (people seem to prefer that)

@mutualaid @mutual_aid @MutualAidVisibility @disability @blackmastodon @edendestroyer

https://ko-fi.com/bpsycho/goal
https://www.paypal.me/longbongsilver
https://Cash.app/longbongsilver
https://venmo.com/u/longbongsilver

#MutualAidRequest #disabilitycrowdfund #disabledmastodon #showupforwishes #NEISvoid #emergencycrowdfund #disabilityaid #blackmutualaid