Mastodawn

Conclusion: I’m definitely going to use the chair for some upcoming parades, which will be all asphalt, but I think festival/tabling events are going to just be suck it up events until I get a chair with better wheels.
#NEISvoid #AmbulatoryWheelchairUser

FunkisHen 2d ago

Please sign this petition to prevent the NHS from killing another very severe ME patient by their ignorance and lack of empathy and respect for their patients and patients' carers/loved ones. It must be stopped. #PwME #VerySevereME #NEISvoid #LongCovid #CCI

Sign the Petition

Sign the Petition

Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk.

Change.org

melody | Stenography VTuber 2d ago

because there was a shortage of 20mg of Adderall from Express Scripts, my med provider experimented, and now i have 2 Adderall bottles: one of 10mg and one for 30mg. combined, it is my total of 40mg. how goofy is that lol #VTuber #NEISVoid

bebatjof 🇵🇸6d ago

Rested for 3 days, did a small errand yesterday, too tired to stand on my legs today.

My condition is so, so bad. It's horrible.

#LongCovid #neisvoid

serenebabe 6d ago

the prednisone is going to make me feel so much better, but really it only masks what’s going on so I don’t use it often. I’ve used it often enough, however, that I need to have cataract surgery next month at 56 years old. #NEISVoid

serenebabe 6d ago

Fatigue so bad… standing up to pour coffee and add cream requires a long sit down and what I’ll have enough strength for to make for breakfast is an unsolvable puzzle. #NEISVoid

RE: https://bsky.app/profile/did:plc:2upfrv4dza66bon4yh67n46l/post/3mnmmr2rzus22

Rhyothemis Jun 5

Shedding Light on FIRE Syndrome: An Overview of a Novel Condition in Eosinophilic Esophagitis [2025]
https://www.mdpi.com/2076-3417/15/11/6375

Like this redditor - I'm triggered by inhaling VOCs
https://www.reddit.com/r/EosinophilicE/comments/1cjbdld/fire_like_reaction_from_something_inhaled/

If I get exposed to VOCs, my reactivity to food increases - so not exactly like the OP on the reddit thread.

#EosinophilicEsophagitis #NEISVoid #AirPollution #EnvironmentalHealth

Taco Blacc Jun 5

My electric bill jumped up cuz of having to run AC & fans (I'm heat sensitive). Also need to get bandages & antibacterial stuff for a rough spot on my hip that I'm watching for a wound (an infection of one on my leg last year put me in the hospital).

250 total would cover all, will delete upon completion

115/250. Due soon 😬

@mutualaid @mutual_aid @MutualAidVisibility @disability @blackmastodon @edendestroyer

https://www.paypal.me/longbongsilver
https://Cash.app/longbongsilver
https://venmo.com/u/longbongsilver
https://ko-fi.com/bpsycho

#MutualAidRequest #disabilitycrowdfund #disabledmastodon #HelpFolksLive2026 #NEISvoid #blackmutualaid #emergencycrowdfund #disabilityaid

brian nicholson Geld mit PayPal.Me senden

Folgen Sie dem Link PayPal.Me/longbongsilver und geben Sie den Betrag ein. Es ist bequem und sicher. Sie haben noch kein PayPal-Konto? Kein Problem.

PayPal.Me

SingsongRaptor Jun 1

Overdid it cleaning yesterday & getting my kid together this morning, so now I'm stuck downstairs 😭 at least there's food, and my computer, which I moved downstairs so I could have an easier time studying when that time comes. Sucks to not be able to walk around much
#disability #disabled #NEISvoid

melody | Stenography VTuber May 30

one of those nights when the ambien doesnt work #NEISVoid